| thoughts....from some parents ... |
| I just read your Letter to the Teacher. Thank you for putting that together. While Tessa is yet young and still loved and pretty well accepted, I am certain that I will need that letter in the future. I am also certain that your parents probably tried so hard to make you fit in as a child. It hurt them just as much when you were hurt by others. I do not look forward to the day that my daughter comes to me with tears in her eyes because she was laughed at. In fact, it makes me want to cry just thinking about it. (literally.......) I hope that you can say now that your life is beautiful and that you are a better person for having Moebius because I want my daughter to have a brilliant and hopeful future, too. (editor's note: I know - absolutely KNOW ... that my mom and dad (and my grandparents, aunts, uncles, cousins, siblings...) did the best job they could do! They had NO diagnosis, NO information, NO networking - NOTHING. Things are changing, now, however ... I truly believe the battle is NOT the "Moebius" but the ATTITUDES of others. For me, I KNOW that Moebius has given me a perspective I could never have had ... and for that, I am truly proud of the insight Moebius has given me. Tessa has a LOT of supporters and cheerleaders who are with her in heart and spirit ... she will never need to go through anything regarding Moebius all alone! |