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| "How do you help brothers and sisters of a child with Moebius syndrome?" |
(May 7, 2000) editor's note: The following is written by a parent of a child with cerebral palsy, in response to questions raised by other parents re: how to help all one's children cope with a disability. Your comments are welcome .... what experiences have you had in helping your non-affected children to cope with the effects of Moebius? "We have 4, the youngest of which is the more challenged child. All are young: 6,6,4,2. The 4 year old - a boy - has been receiving counseling through our regional center. It was at my insistence! He was displaying aggressive behavior and was being a disruptive factor in class - always trying to be at the center of attention. Part of it is just the age, and your 7 year old may just be "growing" emotionally. [I would go by my own instinct before taking the word/opinion of a teacher on this]. If you see the tendencies in the home then you may want to explore the special sibling workshop mentioned, or inquire about private [1 on 1] sessions. Our son has private "play" sessions. They have been very beneficial. The counselor's opinion is that ours is a typical 4 year old, who wants attention. The special sessions help get him some of this attention. And I started spending 2 hours with just him on Saturdays. It is hard with three others - all very close in age - and one who is very high maintenance, but we manage. Explore your community based options - many local agencies offer counseling of just this nature. It is worth the effort for the child and the family." What else can a family do if they feel one child is having a hard time coping with another child's disability? If you know of any resources or ideas, please let us know! - [email protected] |