| "Starting Moebius organization in Venezuela - need some information" |
| translated from Spanish by Martha Walker - [email protected]) "We would like to obtain names, addresses, telephone numbers or emails of patients with Moebius Syndrome that live in Venezula. We woulld like to get in touch with them. We are a specialized group of (neurologists, psychologists, and genealogists) and patients with Moebius Syndrome that live in Venezuela. We are interested in setting up an organiztion similar to yours. This is the reason we need to locate other patients so that we may get to know each other to form a group, so that we can compare experiences with one another. Since we found your organization through the internet, we were hoping you would have this information with all the Moebius residents that live in Venezuela. As of this moment we are trying to form a foundation. We hold Moebius meetings at the Genetic Faculty of Medicine at the University of Zulia in Venezuela . We await your reponse. We hope to hear from you soon. You may return you reponse via emai." Jos� Chong ([email protected]) |