| "Moebius Conference in Spain - a Report" |
"Hello to everybody! We are the Moebius Syndrome Foundation of Spain http://www.moebius.org/entrada.htm. We had our meeting on 25th/26th November, in Valencia. At the conference, a report was presented on the first project of investigation in Spain regarding Moebius Syndrome. This project has been developed by several Spanish doctors in collaboration with our Foundation. We hope that it will help us to know more about this condition. Regarding this matter we think that we have to be all together in order to help the doctors, so if in your country you know something on any other investigations or doctors that are interested in this research, please let us know. We could put anyone interested in contact with our doctors, to collaborate and make it easier for all. We also had speeches of the situation of smile surgeries and other treatments int Spain. We also had a very interesting speech on acceptance of facial difference, carried out by Henrietta Spalding, member of the organization "Changing Faces" of UK http://www.changingfaces.co.uk/ and member of our Foundation also. We also have the opportunity to know Mr. Steve Clarke who presented his "Bodybrushing Treatment" www.bodybrushing.co.uk/, which impressed everybody. In this sense we would like to know if in your country is known this treatment and would be pleased to received any information on the situation. (Results, personal experiences, photos, videos, etc) Thanking your collaboration and offering any information you may need on Moebius in Spain, receive all our support and our very best regards. Merry Christmas and happy new year to everybody!!! FUNDACION SINDROME DE MOEBIUS ESPA�A. "Ugo y Lucas" [email protected] |