| The National Center for Missing and Exploited Children's Home Page Click here |
| Virtual Children's Hospital Home Page GREAT reference LOOK here FIRST |
| GENERAL INFORMATION |
| * PLEASE EXCUSE any typos we are still under construction |
| American Academy of Pediatrics I am not particular fond of the way this site is set up and normally would not suggest it. But it is a good resource to see where the AAP stands on issues. |
| Center for Diease Control and prevention (CDC) Health Topic Infants and Children Medem: Medical Library Good asortment of articles Usually AAP or AMA wrtten |
| Entrez-PubMed Great for researching, a database of articles on various issues |
| Congenital Heart Disease Our Story - Daniel's Heart of Gold - My son's fight against CHD Glossary of terms Pediatric and Congenital Heart Disease Hearts With CHD support This is Fabulous Yahoo group of easy to talk to mothers of children with CHD and some survivors too |
| Growth in children under 3 Many parents are concerned about height and weight of their chldren, espically if they have any health issues. BabyCenter | Growth Percentile Calculator Quickly calculates for newborn, 3, 6, 9, 12, 18, 24, 30, and 36 months Childrens Growth Charts at Keep Kids Healthy Height Predictor Just enter parents heights and sex of chld and you will see and estimate of potiential adult height |
| Prematurity American Association for Premature Infants (A.A.P.I.) Prematurity Research Preemie Discussion Group |
| Neurofibromatosis (NF) My Neurofibromatosis (NF) Page THE NEUROFIBROMATOSIS, INC. HOMEPAGE NF, Inc. is an organization made up of independent state and regional chapters, providing support and services to NF families. |
| Fibromyalgia Fibromyalgia CD ROM |
| Fetal Alchohol Syndrome FAS Community Resource Center National Organization on Fetal Alcohol Syndrome Article: Active Learning: Bridging the Gap for Fetal Alcohol Effect Children |
| Special Needs links (general) KidsCope Frames MUMS National Parent to Parent Network -matches mothers with other mothers with a similar child Homeschooling Special needs children Special Child: For Parents online magazine comeunity A MUST SEE!!!!! PACER Center - Parent Advocacy Coalition for Educational Rights The National Information Center for Children and Youth with Disabilities (NICHCY) |
| Tourette Syndrome Tourette Syndrome - Now What? Helping families who have just received a diagnosis, may be in a panic, reading everything they can and thinking "Now What?" An Encounter with Tourette's Syndrome VERY interesting personal accounts Friendship and Support Circle |
| Intrauterine growth retardation (IUGR) Biological mechanisms of environmentally induced causes of IUGR |
| State Resource Sheets The NICHCY State Resource Sheet for your state will help you locate organizations and agencies within your state that address disability-related issues. Included on NICHCY state sheets are: senators, governors, state agencies serving children and youth with disabilities, state chapters of disability organizations and parent groups, AND parent training and \information projects |
| Feeding and growing issues from the same site mailing lists Gtube - Gastrostomy Support Mailing List Failure to Thrive |
| Sensory Intergration Disorder (SID) Sensory Intergration - Great source for researching Sensory Integration Dysfunction -This page has books, support groups, information on Adults with SID and a page listing sensory equipment and where it can be purchased |
| Hypotonia The Benign Congenital Hypotonia Site ... serve as a nucleus for collecting people and information dealing with the various benign congenital hypotonias Message board |
| Please email me if you have a link you recommend I add or if you are looking for something I can help you find. |
| These are links are not necessarily the "official sites" for these issues, disorders, diseases, and syndromes. I assume that anyone looking for information on some issue of concern for their child has already found such pages through searches on Google or Yahoo, already. These pages are anecdotal web pages done by parents, or links to support groups or little "jewels" i have picked up in my on-line journeys. |
First weigh your child. If she's too small to stand on the scale herself, try this method: Hold your toddler and get on the scale. Write down that number. Then put your baby down and get on the scale alone. Subtract that number from the combined weight you wrote down and you'll end up with your child's weight. Next measure your child's length. Lay her down and stretch a measuring tape from her head to her toes. It's easier if you have someone to help. You can also measure her head circumference. Wrap the measuring tape around her head just above her eyebrows and ears, and around the back where her head slopes up prominently from her neck. The goal is to measure her head at the spot where it has the largest circumference. From Baby Center: How to measure your child at home |
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| Colic Colic and newborns The "c" word was not allowed in my home when the twins were newborns!!! |
| Indoor Health Hazards The Healthy Indoor Air for America's Homes Program was developed to provide basic but comprehensive information to consumers on how to get a handle on indoor air quality (IAQ) in their homes. |
| Online Directory of Audiology and Speech-Language Pathology Programs |
| FIND AN EMAIL GROUP: FOR YOU AND YOUR CHILD List includes ADD & ADHD, Adoption, Allergies & Asthma, Autism, Aspergers & PDD, Birth Defects (Congenital) Brain Injury (Neonatal), Feeding, General Parent Support, Genetic, Kidney, Learning and Education, Motor & Movement, Neurological (Tourettes, OCD), Prematurity, Sensory Integration, Speech & Communication, Vision |
| Cornelia de Lange Syndrome CdLS_USA Foundation Outreach |
| Charter Schools and Students With Disabilities: A National Study: Final Report 2000 Examines how charter school developers have used the opportunities provided by their charters to serve students with disabilities. click here |
| Alergies Check the pollen count in your area from Benadryl |
| Speech spoken language problems are discussed and a great list of language milestones and activities to encourage language development is included What is Speech? What is Language? Expalins the difference betwween a speech disorder and a Language disorder. Apraxia Wonderful site! This is the reference page with LOTS of good articles. Late Blooming or Language Problem? late-talking child in the 18-30-month-old range Are Twins Delayed in Speech Development? A literature review on the subject Speech Teach "Our site has been developed to provide teaching resources for parents and professionals supporting children with speech and learning difficulties for example dyspraxia, apraxia and autism. Other areas of articulation, literacy and late speaking are also covered together with links and reviews for other websites specialising in these areas." |
| COMING SOON: SIDS books |
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| Torticollis TorticollisKids.org Parents helping Parents Support board |
| Selective Mutism Selective Mutism.org Selective Mutism ( formerly called Elective Mutism) is a psychiatric disorder that is characterized by consistent failure to speak in SELECT social settings in which there is an expectation to speak; such as school. |
| Learning Disabilities LD OnLine: Learning Disabilities Information & Resources The Interdisciplinary Council on Developmental and Learning Disorders Learning Disablities Easy to read guide, hits the highlights of the problem Includes: Understanding the Problem, Getting Help and Sustaining Hope |
| Hearing Impaired Michigan State University's ASL Browser web site, an online American Sign Language (ASL) browser where you can look up video of thousands of ASL signs and learn interesting things about them. Uses Quicktime. EXCELLENT!!!! message and support boards Hands & Voices Seems like a great group, they provide lots of differnt types on information, and support, very advocate based... Hearing Resources "I think the hardest part for us as parents was the lack of information that was given to us when we were told our son could not hear" Parent Site |
| Down's Syndrome Down Syndrome: Health Issues - Medical Essays and Information "Author's note: I'm a pediatrician and the father of Avi, 8 years old, and Nathan, 10 years old. (Photos!) Avi has Down Syndrome ("DS" for short) and has inspired me to write these essays about children with DS for other parents." ONE OF THE BEST!!! INCLUDES: Toilet Training Made Semi-Easy Down Syndrome Parent Network (Downsyndrome Links) Includes a list of local Down Syndrome Associations The Oral-Motor Myths of Down Syndrome Discusses previous accepted speech difficulties present in DS children. Explores therapeutic solutions. For example: . "Excessive tongue protrusion is a learned behavior that creates a physical manifestation". Finds that, "Our therapeutic goal should be to normalize the oral-motor system through feeding beginning in infancy." |
| Infecticous Diseases Infectious Diseases in Children |
| Find a support and information group: Yahoo Groups Parents Place Boards AOL Health Community and AOL Support Groups (AOL members only) |
| Erythema Multiforme Erythema Multiforme Target Rash Pictures with basic information (may make some veiwers uncomfortable) Email me This is a NASTY looking rash, on the second day my son had it i wanted to cry all day because he looked like a burn victim, will be happy to hold anyone's hand through email if you need it. Diagnosing erythema multiforme can be tricky Around 50% of the diagnosis's are wrong! Take a look, you may have to register for the site, but it has lots of good information on several topics so VERY worth it! |
| Measuring Baby |
| Pregnancy (Coming soon) |
| MORE PAGES OF MINE |
| Vaccines (Coming Soon) |
| HEALTH A to Z |
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| I hope you will find everything and anything you need here. This site includes everything from Colic to Growth to Selective Mutism. I have some good broad-based sites that are excellent references for the first time parent, grandparents, or parent of six. And am constanly adding new information and categories. If you find anything lacking or want to send me some links to post so that you can help others, please email me at [email protected] |
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| HEALTH TOPICS |
| Childcare in your home. Thinking about it opening a mini-daycare? Check these out: Facts About CACFP Child Care Aware - America's most trusted child care resource |
| Age 0-6 mo 7 m-1yr 1-3 yrs 4-6 yrs |
| Estimated Average Reqmnts (kcals) 515-690 765-920 1165-1230 1545-1715 |
| Catch Up Reqmnts (kcals) 770-1035 1148-1380 1748-1845 2318-2573 |
| QUICK REFERENCE |
| Please email me if you have a link you recommend I add or if you are looking for something I can help you find. |
| These are links to sites that have good general information on a wealth of young child concerns from diaper rash to ear infections to open heart surgery.... |
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| FREE Recovery Zone Guidebook A "Recovery Zone" is a place designated as an environment to help your child get better. |
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| Night Terrors Night Terror Resource Center more nightmare pages EXTENSIVE list brought to you by Kinderstart |
| Genetic Disorders Tetrasomy / Pentasomy Support Group Page Klinefelter Syndrome and Associates Sex Chromosome variations Unique is a source of information, mutual support and self-help to families of children with any rare chromosome disorders including deletions, trisomy, balanced translocations, unbalanced translocations, rings, inversions, duplications, tetrasomy, monosomy, triploidy, isodicentric, marker, mosaic, sex chromosome aneuploidy March of Dimes: Genetic Counseling Online book fairly thorough |
| Join Wright's Law and subscribe to their newsletter! Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date information about effective advocacy for children with disabilities. |
| Attention-Deficit/Hyperactivity Disorder CHADD: Children and Adults with Attention-Deficit/Hyperactivity Disorder |
| Sign Language Read ANY text as if it were being finger spelled VERY neat! Not sure how practical though... GG Wiz's FingerSpeller |
| Picky Eaters Picky Eaters |
| Ehlers-danlos-syndrome Ehlers-Danlos Syndrome UK Support Group - site contains publications and Message Boards |
| Feet and Legs Clubfeet To Parents of Children Born with Clubfeet Ignacio Ponseti, M.D. Department of Orthopaedic Surgery, University of Iowa Hospitals and Clinics GREAT article and several GOOD resources Assessing Those First Steps Breifly discusses Pigeontoeing Uneven Legs and Bowleggedness Bowlegs and Knock-knees When to be concerned.. Bowleg By John A.K. Davies, MD BASIC information Pigeon Toes (Intoeing) BASIC Information from the AAP |
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| Make a Wish Foundation Homepage |
| CHARGE Syndrome CHARGE Syndrome Foundation, Inc. Contains links and resources |
| PKU National PKU News .....dedicated to providing up-to-date, accurate news and information to families and professionals dealing with phenylketonuria |
| Serenity Program Dolphins and children with special needs Builds child's range of motion, relaxation, muscle tone and communication skills |
| Cleft Lip and Palate WIDE SMILES was formed to ensure that parents of cleft-affected children do not have to feel alone. We offer support, inspiration, information and networking for families everywhere who may be dealing with the challenges associated with clefting. |