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It's 3:20 in the afternoon. Today is a beautiful day in Arlington
Texas and our third day of vacation. I am not enjoying the weather
or the time off, but rather find myself in another reality wishing
to wake up.
I come back into focus, noting the white tile floor below me
and the strange unmistakable smell of a hospital filling my airways.
I am staring blankly at a doctor listening to him speak through
a mask as he informs me that my son will be born in the next few
minutes. I had been looking forward to the sound of those words,
but they were not supposed to be uttered for another three months.
This can't be, I think to myself. My wife and I are both healthy
and young with no history of problems in either of our families.
Not only that, but this pregnancy was special and meant to be.
Eight months earlier our family planning specialist informed us
that Jody might not be fertile and if she was it would be difficult
to get pregnant. My wife was apparently not showing the chemical
surges associated with ovulation that are necessary for impregnation.
That is why when, three months later, we found ourselves oddly
in possession of a donated station wagon, starting the lease on
a two bedroom apartment, and my wife holding a positive pregnancy
strip we not only considered this child a miracle but also a part
of some larger plan as every thing was lining up for his arrival.
The man in scrubs touches my shoulder gingerly as I tentatively
respond by asking what my son's odds of survival are at this early
stage of pregnancy. The doctor reluctantly replies that my son
will have less than a 40% chance for survival. I am speechless,
unwilling to allow myself to process what is happening before
me. How is this happening to us?
Just yesterday my wife and I had driven out of the largest flood
in Houston to arrive at my parent's house in Arlington. My wife
was concerned about the lack of movement from our son this morning,
which didn't truthfully concern anyone but her. By noon she insisted
on going to a doctor for a check up. When we arrived and the doctor
quickly found the heartbeat of our child we both assumed he was
fine and that we would be going home shortly.
As we were getting our things packed to go the doctor came in
a told us we had 30 minutes to get our son out of my wife or he
would die. Our son was apparently not getting any flow from the
placenta and essentially fighting for his life. Not only was he
fighting now, but he had been fighting for some length of time
causing his growth to be small for this stage of the pregnancy.
We would have no time to discuss who his doctor will be, what
hospital he will be born at, what environment he will have during
the birth, what type of birth he will have, or who would be present
in the delivery room.
At that moment I truly became a Dad. I knew so immediately because
the emotion and pain was so instantly overwhelming and impossible
to process. I had not met this child, this person, yet I already
loved him more that anything in life. This was fatherhood and
my life would now be changed forever.
It is now 3:23 and my son has just come into the world. The doctor
allows me to see him for a second as they cart him off for examination
and preparation of the life support he will need to continue living.
His weight comes in at 490 grams, 1 pound 1 ounce, the equivalent
of four sticks of butter, and he is too small. He is 10 grams
under the weight standard they consider for long term survival.
It would be up to the specialist on call that day to decide the
fate of my son with whether he should go to a specialty hospital
where he may die during the transport or be left at his current
facility to live a very short but peaceful life. At sometime during
this examination and decision process our newborn son twitched
his nose in frustration of the nurse applying tape to his face.
That nurse knew at that moment they had to give this child a chance,
and with that I was off in a car following his ambulance through
a 45 mile rush hour drive to Cooks Children's Hospital.
During this transport from one hospital to another our son nearly
left us several times. What I didn't know was this was just the
beginning of the longest roller coaster, of ups down and more
downs, than I would ever experience again in my lifetime.
We named our son Nolan Christopher Farris. Nolan after Nolan
Ryan an Arlington baseball hero, and Christopher after the Saint
who protects those who go through long difficult journeys. Little
did we realize how long and difficult a journey this would be.
Nolan and I would be fighting together those first few nights
while his mother stayed at a hospital on the other side of town.
Upon the doctors recommendation we had our son immediately baptized
in his hospital bed with just my parents there to witness it.
On the third day Jody was allowed to leave the hospital and come
see her son for the first time. We were only allowed to look at
him and no one was allowed to touch or hold him, as he was far
too fragile. Nolan was no bigger than the size of my hand. He
was so small that the beanie baby in his bed was actually longer
and thicker than him. He was visibly thin and his color was blood
red due to the transparency of his delicate skin. His eyes were
still sealed shut he had no cartilage so his nose and ears were
truly not formed. He was incredibly small, but he was a child
in every form and feature from his head to his toes. It was amazing
to behold him. Months later my wife and I would look at pictures
of him and realize how truly sick he appeared.
What we visually saw and perceived of our son at that moment
and what was captured on film were and still are two different
children to us. Even today when we look at the images and videos
of Nolan we don't remember him looking so frail.
So fragile was our son that we were not to talk to him or disturb
him with any noises. Nolan's odds of long term survival were as
slim as they get. Less than 40% of newborns his weight survive
the first few days. Statistics show that the majority of newborns
that survive as premature as Nolan are girls. Nolan would also
be placed at the highest risk for brain hemorrhaging due to the
frailty of his body. A simple bump on his head could cause serious
bleeding which happens to some degree in 3 out of 5 cases. Nolan's
lungs and body were not ready for the real world which would cause
a number of surgeries and issues that would threaten his life.
One such complication began on the fourth day when our son's
kidneys stopped functioning. Lack of kidney functions means that
all of the toxins in our son's body would no longer be able to
get out. They would build and swell our son until his body could
no longer function. This made our son's critical situation so
severe that within two weeks of the doctors trying everything
they could, we would be forced to discuss letting our son pass
away.
We had seen Nolan beat so many odds and prove so many statistics
wrong that such a topic was unbearable. I remember the conversations
to the exact detail. When I think back on those days, the memory
comes back to me the same way a bad car accident plays from memory
in your head. Every single detail is there and the recollection
of it in your head plays back in slow motion.
I was starring at a fish bowl in a very small office with my
wife sitting next to me. We were in the office of the hospital
priest visiting with him, unannounced, with the intent to discuss
to possibility of letting our son go; what that would mean for
us as parents; and what that would mean for Nolan and his quality
of life. The father described how they clear the intensive care
unit of people and then bring in a recliner for one of us to sit
in. They then remove all life support and let us hold him until
he takes his final breath. He explained it all so fluidly and
peacefully, but seemed hesitant that we should consider such a
step with our child. He was the father that baptized our son and
visited him with prayers at least twice a day. The father ever
so mildly gave us strength that our son had a purpose and asked
us to let go and let god take over.
The following day the doctors formally asked us to make a decision
about our son. They asked us to authorize a surgery that he needed
in order to keep his heart functioning properly, or avoid the
surgery and take our son off life support. Normally this answer
would clearly be surgery, but in this case the doctors felt certain
Nolan would not make it through recovery due to his non-functioning
kidneys.
We went to the chapel and kneeled on the front steps. I was angry
and sad for being in this situation. I wanted so bad to see my
son grow up, and I could do nothing to help him survive this.
We utterly broke down in that chapel and completely turned it
over to God. We decided that Nolan could not live without the
surgery and the only option for us was to proceed on with that
surgery, knowing that only another miracle could save our boy.
We got that next miracle. Nolan came out of his surgery peeing.
Nobody understands how or why, but his kidneys were working again
and going full strength. Nolan leaped hurdle after hurdle breaking
one statistic after another, and created miracle after miracle
from that day forward.
Nolan was heading in the right direction, but now Jody and I
had our own miracles that needing answering. We lived and worked
in Denver, yet our son was going to be in a Dallas hospital for
months. Jody was on summer leave from her job as a school counselor,
but I would have to begin commuting every week. Jody would now
start living with my parents in Dallas carpooling to the hospital
daily to watch over Nolan. These combined with a son in intensive
care would be nothing short of amazing to survive from. Nolan
was born on June 12th and Jody was due back to work by the third
week in August. Jody's current employer, shortly after hearing
about our son, terminated her on August 1st. It was an incredibly
difficult thing to comprehend. My wife had worked with this company
for over 4 years. As bad as it seemed, we quickly realized that
this was a clear direction for Jody to be 100% there for Nolan.
We decided that Jody would not work for the next several years,
freeing her up to focus on our son.
It is now two months since his birth and Nolan is being rushed
to another hospital to receive surgery on his eyes. Unfortunately
doctors were late diagnosing our son with a disease called ROP.
It only occurs in premature infants and can cause the retina to
detach from the eye if it is not caught in time. Nolan would wind
up going through several surgeries to try and prevent and minimize
this, but in the end he would wind up blind in one eye and legally
blind in the other.
Another three months, 8 surgeries, two hospitals, and 1,100 miles
between father and son were taxing us to a breaking point. We
needed to be together so Jody and I began to push for a transfer
to a hospital in Denver. Something that initially sounded so simple
became so incredibly difficult.
Nolan was still in intensive care and a flight would require
a staff of at least five on the plane to minimize any risks. This
would also mean starting from scratch for the third time on Nolan's
doctors and nurses. The poor experience we had at the second hospital
came into play constantly when trying to decide if and when we
should bring Nolan to Colorado. Moving Nolan would also cause
problems medically as the air, that Nolan was already struggling
to breath through is damaged lungs, would be less oxygen rich
at Denver's high altitude.
We eventually made the decision to go with the transfer. We wanted
and needed to be together as a family. By Thanksgiving we were
once again united as a family and my wife was sleeping in her
own bed after over 5 months of sleeping in my parent's guest bedroom.
Nolan began to gain weight and develop a true personality of
his own. Jody and I actually got accustomed to living in a hospital.
Washing our hands non stop all day, listening to the television
through a box beside the bed, having nurses tell us what we can
and can't do with our son, knowing that every day something might
change for the better or worse with our son but that in the end
Nolan will defy everyone and keep charging forward.
Seven months later it is June 12th and my son is celebrating
his 1st birthday. My wife and I have little hats on and have required
all the nurses in the unit to also wear the same ridiculously
small hats. We have brought a cake that feeds 100 and decorated
his room to the hilt with birthday theme decorations. We are excited
to make it to this day and trying to show gratitude for those
who helped us get Nolan there. My parents are at our first hospital
in Dallas cutting a cake for the staff there as we simultaneously
cut our cake here. It is a bittersweet day as we treasure his
health, but are overly ready to have him home and out of a hospital.
By his birthday Nolan was using a ventilator to assist his breathing
that does so through an opening surgeons made in his trachea.
This added equipment has made it difficult to get Nolan home and
out of the hospital. Health wise Nolan has been cleared by the
doctors to go home, but on one condition: 24-7 home nursing care.
The doctors gave us that news over four months ago. Knowing that
we could go home, and not being able to, made this period of time
intense for everyone. Nursing is in a shortage crisis and we find
ourselves yet again in need of another rabbit out of the hat.
Five days later that rabbit appeared. A company that my wife
contacted agreed to take on our son. That agreement came solely
through the heart of one nurse who committed to cover 6 nights
a week, which is exactly the times we needed to get final clearance.
One year and 5 days after his birth, Nolan got to sleep in his
home for the first time. It was truly the most amazing evening.
Nobody slept much, but everyone was at peace knowing that the
next hurdle had just been jumped.
As I write this down and begin to close this painfully yet healing
story I look up and see my 2-year-old son spinning in circles
on the floor banging loudly on his toys. He smiles and belly laughs
as I say something to him. He then goes back to licking the lights
on his rocket playing like any other child would. He is over 34
inches tall and weights 25 pounds. He is breathing on his own
and beginning to eat regular baby food. My wife is in the next
room preparing and organizing a trip to the zoo for disabled children.
She is now a board member for our local disability resource center.
I look around and still wonder how it is possible for so much
good to come from something that is so difficult and so scary
to handle? I wound up getting a great job within my company that
allows me to adequately support my family. Jody received compensation
from the government for the loss of her job. We managed to go
from nothing in savings to affording a home and a family car.
Our marriage survived a traumatic situation that sees 9 in 10
divorced. Our life is better now than it ever has been and oddly,
as odds would have it, none of it was planned.
Planned. Maybe that is the point. Not every thing can be planned
and not everything can fit into a statistic. We learned to let
go and have faith. Once we did we found a whole new world and
an elevated plane of happiness. That was Nolan's gift to us. He
exists even though everything says he shouldn't. We now live every
day that much fuller knowing each day is a precious gift that
can be as wonderful as you are willing to let it be.
To my son for restoring my faith, Your Dad
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