Connect to health information you can trust.
"The sites...are organized by Traditional Medicine, Alternative Medicine, Research, Known Diseases and Veterinary sites."
"GeneTests Web site, a publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons."
"[The March of Dimes'] mission is to improve the health of babies by preventing birth defects and infant mortality."
"The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service."
"The ectodermal dysplasias (ED) are a group of genetic disorders which are identified by the absence or deficient function of at least two derivatives (i.e, teeth, hair, nails, sweat glands) of the ectoderm. At least 150 different forms of ED have been identified. Charles Darwin first identified ED in the 1860s."
"[The] site is dedicated to providing access to useful information on a class of diseases that remains comparatively obscure."
"This database is a catalog of human genes and genetic disorders authored and edited by Dr. Victor A. McKusick and his colleagues at Johns Hopkins and elsewhere, and developed for the World Wide Web by NCBI, the National Center for Biotechnology Information. The database contains textual information and references. It also contains copious links to MEDLINE and sequence records in the Entrez system, and links to additional related resources at NCBI and elsewhere."
"Everything you ever wanted to know about the human hand is here, or can be accessed from this site."
"Operated by the Sturge-Weber Foundation, this site is dedicated to the parents, professionals and individuals who deal with the daily problems of Sturge-Weber Syndrome, Klippel Trenaunay and Port Wine Stain," an intergenerational problem in my paternal family.
"The CMA's mission is to provide leadership for physicians and to promote the highest standard of health and health care for Canadians."
"Search Terms: ADVANCE DIRECTIVES, (PRINCIPLE OF) AUTONOMY, (PRINCIPLE OF) BENEFICENCE, BEST INTERESTS, CONTRACT LAW (IN CANADA), FUTILITY, HIPPOCRATIC OATH, INCOMPETENCY, INFORMED CONSENT, IN VITRO FERTILIZATION, MEDICAL PATERNALISM, PATIENT RIGHTS, PHYSICIAN PATIENT RELATIONSHIP, SUBSTITUTED JUDGMENT"
Specific Web Pages Which Have Been of Use to Our Family
Jeremy had tubes in his ears for several years. "[A]ccording to a study presented Wednesday at the annual meeting of the American Society of Pediatric Otolaryngology in Palm Desert, Calif., more than half of a group of 248 children who had undergone the surgery in both ears experienced improvements in their physical symptoms, hearing ability and level of distress." We could not agree more!
Jeremy has an atrial septal defect. ASD is present in 4 out of 100,000 people. The World Wide Web has been an invaluable source of information about congenital birth defects. Recent news articles about Israeli Prime Minister Ariel Sharon, such as Ariel Sharon to Undergo Heart Procedure, put the odds of having an ASD much higher.
Jeremy also has pulmonary valve stenosis. It affects about 1 out of 8000 infants.
At least eight of every 1,000 infants born each year have a heart defect.
"CACHNET.ORG is home to the Canadian Adult Congenital Heart Network and the Toronto Congenital Cardiac Centre For Adults at the University of Toronto. Our aim is to provide comprehensive care and information to adult patients with congenital heart disease and their care providers."
If your family is anything like ours, you'll appreciate John Hopkins Health's interactive flu map.
Okay! Okay! This site is not one of the "Specific Web Pages Which Have Been of Use to Our Family!" Fortunately, after many years of coping with back pain and after one back surgery, I am symptom-free. Knock on wood! As a former "back patient," I can highly recommend it. I found this Web site on AskMen.com. There's a link to it on Rexanna's Page.
"The ultimate Canadian web site devoted to sexuality education and information. Our site provides credible and reliable information on the topics that are most important to you. From Sexually Transmitted Infections (STIs) to contraception awareness, lifestyle choices to talking about sex, we offer you guidance and advice that will help you develop and maintain a healthy sexuality. So sit back and get ready to surf the site!"
Injuries are the number one cause of death and disability for children and youth in Canada.
We work to keep kids safe where they live, learn and play.
Imagine every child safe. We do."
Send Jeremy or Rexanna an e-mail!
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Copyright Rexanna M. Keats 1999, 2000, 2001, 2002, 2003, 2004, 2005, 2006, 2007, and 2008. All Rights Reserved.