Kloe and Zach and Brandi and Papa are coming home today from Laughlin! They had a fun trip!
June 4th, 2004
Today we went to see the Little Mermaid dinner play! It was based on the Disney Little Mermaid! Kloe loved the play and she got the autographs of the actors afterwards! It was fun. The only thing she was sad about was that we didn't get to dress her up for the play! So the next thing we have to dress her up for!
June 6th, 2004
We took the kids to the Tempe water park and let them play for awhile. Kloe loves water! They all had fun!
June 7th, 2004
We have the Shrek 2 movie to go to! It is with A hand of Hope. Kloe really looks forward to the movies because she can see Annie and sit by her as well! The movie was great!
June 8th, 2004
Today is Kloe's intrathecal... this is the first time she will have it done while being awake! She cried so bad it hurt but we have to do it this way because she sneaks drinks through the night! She came through it alright and all the flluid looked great!! She also had her breathing treatment that day! Her labs have been awesome as well!! We are so proud of her!! She also starts Predisone today for a week!
June 9th, 2004
Well her addicition this week while on the prednisone is what we call Moonstruck eggs. Moonstruck eggs come from the movie Moonstruck with Cher. The take bread and cut a whole in the midddle and put the raw egg in the whole while it is in a frying pan and cook it! she loves them!!!!
June 13th, 2004
Today she starts her new phase. It is continuation. which means her meds get raised a bit and she doesn't have to take the methotrexate 3 times in one day it is once a week and no leucovoren. Yay!!!!! Everything is looking good!!!
June 14th, 2004
ended Prednisone today! It wasn't so bad this time. She didn't have to many fits!
June 21st, 2004
Went to see Garfield with A Hand of Hope today! It was a cute movie Kloe really enjoyed it. She missed Annie because she wasn't there but hopefully the next one she will get to see her!
June 23rd, 2004
Kloe and her mom Left for Chicago to see Alexis for her Birthday and they are staying out there til the 14th of July! Love you Kloe have a safe flight! They had totransfer planes in alberque but they did fine!! Kloe is excitied to be there!
June 24th, 2004
HAPPY BIRTHDAY ALEXIS!!!!!!!! Love you lexi-loo!!
June 26th, 2004
They had Alexis's party and it was alot of fun!! They had it at Alexis's grandma's house! Hope you liked all the gifts you got lexi!
June 29th, 2004
Kloe went to see the movie notebook with her mom and Alexis and Papa.
