Well, nothing's happening as of this holiday time. I haven't called down there yet because of all the serious flooding we had (and they had) last week but I think I will call this Thursday. I should also call the ctscan place and see if U of P called them for the scans or not. If not, I will ask that they send them down. Isn't it funny? First you DON'T want to hear and then when you don't hear, you WANT to hear from them. I have a feeling they looked at my file and decided I was way too far gone to even think of LVRS.
7/5/06
Well, got a little nervous so finally called. They said they just got the files on Friday (??) and Sarah (assistant) is going to look through them and see if they need anything else. She is going to call Advanced for the scans and I shall call St. Luke's and Palmerton and ask them to forward any x-rays down to U of P. This certainly isn't the prompt response Colleen got but at least I've not been turned down...yet!
7/8/06
STILL haven't heard back from U of P. I just double checked and I sent all that information on 6/23...and Sara at U of P said they didn't have any flooding....so how come Colleen got a response in 3 days and it's taken ... oh, I just looked...it's only been 2 weeks. My, how time seems to drag when you're anxiously waiting for something!
I've wondered what I will do if I get turned down. I think I will be very disappointed, to say the least, and then I think I might look into getting the TTO system. I'm so tired of this nose hose. Only trouble with the TTO is that when I'm at work and have to get up to go to the files or wait on a customer or something, I just take the cannula off and go do whatever then put it back on when I get back to my desk. Won't be able to do that with the TTO. Plus, here at home I use the concentrator and when I go out in the barn, I use the portable. I wonder how hard it would be to switch between the two.
As far as a transplant, I don't think I'd want to go that route...at least not at this point. That is a VERY SERIOUS operation and there are too many complications that could arise. I think I'd rather not do that at all. Of course, I'm not at the stage where it's "tx or die" (at least I don't THINK I am) and when I DO get to that stage, I think I'll be too old for the tx anyway so worrying about it might be a moot point.
Oh, if only I knew then (back in 1985 when I was first dx'd) what I know now, I'd be in much better shape. If only I had quit smoking THEN! Oh well, can't waste time on the "if onlys"....got to work on the here-and-now and the future.
