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| Familial Bowel Cancer Support Group | ||||||||||||||||||||||||
| Hi, all, please note my new email address below. | ||||||||||||||||||||||||
| Here I have some contacts that you might like to check out in the Perth area. As I said on the front page - there's not a lot of support mechanisms out there and hopefully, I can list them altogether for our use. |
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| I can be contacted by email at: [email protected] or by mobile: 0405 567 233. | ||||||||||||||||||||||||
| Familial Bowel Cancer Registry | ||||||||||||||||||||||||
| Co-ordinator: Lyn Schofield - 9340 1713 | ||||||||||||||||||||||||
| Familial Bowel Cancer Sub-Committee | ||||||||||||||||||||||||
| As a member of the above committee, I mentioned to the members that I have started this page and they have agreed that some things can be posted here to help us understand what is happening in the world of familial bowel cancers. There are a number of these cancers and I will post the names of these diseases to this page as I find them out. |
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| Well, here are the two I know: Familial Adenomatous Polyposis Hereditary Non-Polyposis Colorectal Cancer |
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| I have some information on desmoids that I am going to read and hope to add to the page, but I can't say when, so please have patience. | ||||||||||||||||||||||||
| Service for FAP patients & families & friends | ||||||||||||||||||||||||
| Well, I know I said this was mainly for Perth, Western Australia, patients and families and friends, but a friend of mine in Arizona has been running a project which she'd like us to also have access to. It's called "Operation Wanted: Books". It is a service where books are offered to patients with FAP and their patients and carers. This includes those with desmoids, of course. And, not FAP-related desmoids have access to this, either. Anyway, the site can be found at: Operation Wanted: Books |
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