| CFS....FMS |
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| CFIDS--Chronic Fatigue and Immune Dysfunction Syndrome CFS--Chronic Fatigue Syndrome M.E.-Myalgic Encephalomyelitis FMS--Fibromyalgia Syndrome |
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| Running On Empty |
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| CFS AND FMS RECLINING CLUB |
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| Good Doctors List |
| THE DX CAROUSEL Age 41, a lifetime of perfect health. WHAM!!!! What it this??? Two hours late for work, still cannot get up out of bed. Call in sick again??? Call in late??? Nix that one, kinda obvious, late already. Take a shower, push myself, lie down, sit up, too exhausted to get out of bed. Hit with internal chills, burning in lower spine, muscle and joint aches, pounds, pings, traveling from fingers down to toes. Somedays feels like been beaten up by an entire football team.... Smells, three times as strong, reactions...molds, bleach, perfume. Migraines where must lie perfectly still, no lites or noise, head exploding, praying for death, eight hours of this. Allergist says I have no allergies, after extensive testing. No one else seems to notice these strong odors. Wall to wall carpeting,new or just shampooed,new clothes....formaldehyde!!!! White coated tongue, metallic taste in mouth, white spots on toenails, off to yet another doctor, systemic candiasis???? Too sick to drive, feel like have the flu, too dizzy to sit up in a chair. Forgetfullness, spelling is bad, words don't look right....My mind was like a steel trap, known for my recall and perfect spelling. Words missing, conversations lost, mixed up, rambling on. What am I talking about??? My better then 20/20 vision blurs from time to time, cannot concentrate to read, watch TV, drifting and blurring off.... Im losing my balance a lot, falling sideways or backwards.Chronic sore throats and sinusitis, having nitemares and running fevers... Still another specialist, more blood tests needed, testing, testing, testing. OH one, two, three, twenty million times TESTING!!!!! Tears, fears, being called crazy now. Survival, searching...for an answer...something is very wrong with my health, physically wrong. Im sick, Im sick!!! I tell you!!! It doesn't matter how much rest I get, Im still too exhausted to function . Independence slipping away..... EBV titers high??? Finally, something showing up in the blood work, some credibility. Old numbers, reactivated EBV . Don't know why, something all the docs can understand though, high blood titers. Diagnosis after four years of tests and being unable to work---- CFS---FMS, A NAME!!!!!!!! Doing research on my own, trying to find answers, there are none at this time. No cure!!!! Red crescents back of throat, mouth sores, fleeting paranoia, social isolation, family that cannot or will not understand this disease---CFS---FMS.... Wish I didn't have to understand it either!!! I wait....wait.....wait!!!!!!! |
| My name is Mellon and I am one of the founders at CFS and FMS Reclining Club. If you have CFS---FMS or care about someone who does, well please come join us there. Pull up a nice soft chair, get comfy and enjoy!!! We LOVE new people :) |
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| CFS as seen by sufferers |
| CFS FMS is also isolating, as plans are cancelled constantly.Family and friends don't understand and perhaps their feelings are hurt, resentments are often created. Our world becomes smaller and smaller and our homes become our prisons. No one would ask someone with the flu to jump thru hoops,do cartwheels or attend social functions. Being all things to all people is impossible for us, when we can barely tend ourselves. In the hopes of better understanding, please print out the following link "CFS as seen by sufferers" and mail to all your relatives and friends. |
| Mellon's Alcatraz |
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