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Money
and Madness
June 3, 2002
By Kelly Patricia O'Meara
A
child who doesn't like doing math homework may be diagnosed with
the
mental illness developmental-arithmetic disorder (No.315.4). A
child who
argues with her parents may be diagnosed as having a
mental illness called
oppositional-defiant disorder (No.313.8).
And people critical of the
legislation now snaking through
Congress that purports to "end
discrimination against
patients seeking treatment for mental illness" may
find
themselves labeled as being in denial and diagnosed with the
mental
illness called noncompliance-with-treatment disorder
(No.15.81).
The psychiatric diagnoses suggested above are no
joke. They represent a few
of the more than 350 "mental
disorders" listed in the American Psychiatric
Association's
(APA) Diagnostic and Statistical Manual of Mental Disorders
(DSM-IV),
the billing bible for mental disorders which commingles
neurological
diseases with psychiatric diagnoses. (Click here to see more
examples
of the mental disorders listed in the DSM-IV.) Whether the
described
diagnoses are real diseases or subjective speculation, science is
at
the heart of the debate about whether lawmakers will require
employers
and insurers to cover mental illness on the same level
as physical disease.
Advocates of the Mental Health Equitable
Treatment Act of 2002 (S 543), and
its sister proposal in the
House (HR 4066), are seeking to expand the 1996
"mental-health
parity" legislation. It mandates employers with more than
50
employees and that offer mental-health coverage to provide
insurance
benefits equal to those of standard health care, such as
surgery and
physician visits.
The pending proposals would
expand the 1996 legislation to require that
caps, or limitations
on coverage, be the same for mental illnesses as those
provided
for medical illnesses, in the name of so-called mental-health
parity.
When it comes to "mental illness" and "medical
illness" however,
there is no scientific parity between the
two schools of thought. That is,
only one is based in physical
science.
Proponents of mental-health parity believe, and have
for the most part
successfully convinced lawmakers, that the
mental illnesses described in the
DSM-IV are medical diseases. For
example, obsessive-compulsive disorder
(OCD) is considered
medically equivalent to, say, measles or anemia.
But critics
patiently explain that the psychiatric "mental illness"
as
described in the DSM-IV is a subjective diagnosis that lies in
the eye of
the beholder rather than in proved medical science. How
this issue is
decided, these critics say, likely will determine
whether millions of
American families will be priced out of health
insurance.
Fred Baughman, a San Diego neurologist and leading
critic of the alleged
mental illness called attention-deficit/
hyperactivity disorder (ADHD) (see
picture profile, Feb. 18),
tells Insight the question that must be answered
before a mental
illness can qualify as a disease is this: "Where is
the
macroscopic, microscopic or chemical abnormality in any living
patient or at
death/autopsy?"
Baughman explains: "No
one is justified in saying anyone is medically
abnormal/diseased
until such time as they can adduce some such abnormality.
This, by
the way, would apply to a person suspected of having diabetes
or
cancer."
The fact is, Baughman adds, "There is
no psychiatric diagnosis for which any
part of this question can
be answered in the affirmative. In other words: no
abnormality; no
disease. There is no confirmation of abnormality in the
brain in
life or at autopsy for any of the psychiatric diagnoses. And they
[in
the psychiatric community] don't say this because it's part of
the
propaganda campaign to make patients out of normal people. The
findings at
autopsy would be very specific and would reveal
whether it is a diseased
brain and, if so, which disease it is.
There is no proof in life or at
autopsy of any of the alleged
psychiatric mental illnesses, including
schizophrenia, psychosis,
depression, OCD or ADHD."
Here is Baughman, an
internationally respected neurologist, denying there is
any such
thing as an authentic diagnosis of psychiatric disease at
precisely
the same time that Congress appears to be getting ready
to mandate equal and
comparable coverage of psychiatric and
medical diseases as the same thing.
Perhaps lawmakers haven't
asked for the supporting science, or perhaps it
has just been
withheld from them.
To try to find out which, Insight sent
carefully prepared questions about
mental illness to the APA and
the National Institute of Mental Health
(NIMH), the two leading
advocates of mental-health parity. Here are those
questions:
How
many disorders that are listed in the DSM-IV are curable?
What
documentable, confirmatory, diagnostic, physical abnormality is
found
in schizophrenia, ADHD and depression?
What
confirmatory, diagnostic tests are available and currently utilized
to
detect a chemical imbalance?
The APA would not respond
to the questions and the NIMH, which claimed not
to get involved
in policy issues, deferred to a psychiatrist who refused to
speak
on the record. Both groups did, however, suggest reviewing the
1999
Surgeon General's Report on Mental Health, which Insight
promptly read. The
report contained the remarkable statement that,
"in the United States,
mental disorders collectively account
for more than 15 percent of the
overall burden of disease from all
causes and slightly more than the burden
associated with all forms
of cancer."
But nowhere in the surgeon general's report
was there any reference to a
single confirmatory, diagnostic test
that proves any physical abnormality in
any psychiatric diagnosis.
More importantly, several chapters into the
report the surgeon
general admits what Baughman and other neurologists have
been
saying for years: "The diagnosis of mental disorders is often
believed
to be more difficult than diagnosis of somatic or general
medical disorders
since there is no definitive lesion, laboratory
test or abnormality in brain
tissue that can identify the illness"
[emphasis added].
Naturally, one might assume, it would be
difficult to diagnose a mental
illness if there were no confirming
physical evidence that one exists. And
one might even ask the
surgeon general how he could make the statement that
"mental
disorders collectively account for more than 15 percent of
the
overall burden of disease" when he admits later in the
report that there is
no physical proof thus far of mental disease
in any of the psychiatric
diagnoses.
More important,
critics say, is his honest admission that there is no proof
of any
physical abnormality that causes any psychiatric mental
disorder.
This begs the question: If there is no way to prove that
a single
psychiatric mental illness exists in life or death, how
does one diagnose
something that doesn't exist and then require
insurance companies to pay for
treatment?
While the
observations of the nation's top medicine man seem crystal clear
-
and are, in fact, a carbon copy of what critics such as Baughman
long have
been saying about mental disorders - apparently the
sponsors of the pending
legislation missed the surgeon general's
report. According to Allison
Dobson, communications director for
Sen. Paul Wellstone (D-Minn.), a
cosponsor of the Senate bill, "We
know that mental illness is valid based on
the volumes of science
that have been presented to the senator. The mental
illness thing
has pretty much been proved by science."
Sen. Pete
Domenici (R-N.M.), the biggest cheerleader for
requiring
mental-health parity, didn't respond to Insight's calls.
But Michael Zamora,
the policy adviser for Rep. Patrick Kennedy
(D-R.I.), a cosponsor of the
House parity legislation, tells
Insight: "We've had a number of specialists
from NIMH who
have talked about what they're doing. While they don't have
any
diagnostic criteria developed yet, they are making advances and
starting
to document the linkages between the physical and mental.
But they haven't
necessarily been able to establish yet exactly
how these are working."
Indeed, says Kennedy's spokesman,
"I'm pretty confident and trusting that
the science base of
the National Institute of Health, the surgeon general
and Nobel
laureates have researched this stuff when they say there is a
science
base behind mental illness. I know that the congressman is
confident
that the surgeon general and our premier
medical-research facility, NIMH, is
not full of quacks."
But
that's not the issue, critics say. It's whether as-yet medically
proved
illness ought to be paid for by insurance companies,
employers and patients
at the same levels as diseases science
physically has confirmed.
Neither former surgeon general David
Satcher (author of the 1999 Surgeon
General's Report on Mental
Health) nor former NIMH director Steven Hyman
would agree to an
interview to discuss these matters. Given the official
admission
by former surgeon general Satcher it is tempting to speculate why
the
interviews were denied. What is unclear is why lawmakers continue
to
push for mental-health parity with medical disease when, to
date, there is
no physical proof that any of the psychiatric
mental disorders can be
confirmed as abnormalities of the
brain.
As recently as late May sponsors of the House parity
legislation, Marge
Roukema (R-N.J.) and Kennedy, continued the
push to "end discrimination
against patients seeking
treatment for mental illness." In a "Dear
Colleague"
letter to members of the House of Representatives entitled "The
Truth
About The Impact of Mental Health Parity," Roukema and
Kennedy
attempted to "eliminate any confusion about the DSM."
The authors sought to
give credence to the APA's diagnostic
manual, explaining that, "for 50
years, DSM has been widely
recognized as the 'international standard' system
for classifying
mental disorders," and the "DSM is the state of the art
of
the knowledge base."
The "Dear Colleague"
advocacy letter closed by observing: "There will always
be
those who oppose ending insurance discrimination. . While we
strongly
disagree with them, we look forward to a debate on the
facts." Perhaps so.
But nowhere did the letter so much as
mention that none of the psychiatric
diagnoses in the DSM are
based in physical science such as abnormalities of
the brain found
in life or death.
Meanwhile, independent groups representing
businesses and other insurers say
they are alarmed about the
financial burden the proposed legislation is
certain to produce.
It is widely estimated that nearly 45 million Americans
already
are without health insurance and there is little doubt that
mandating
expanded coverage of undefined "mental disease" will run up
costs
and premiums still further. No one knows how much, but
consider these
guesstimates:
In 2001 the Business Journal
estimated the likely increase in costs would be
as high as 40
percent; the National Association of Health Underwriters
suggests
insurance premiums likely would increase by 11.4 percent.
The
National Federation of Independent Businesses (NFIB) conducted a
study
among its 600,000 members that indicates even existing state
benefit
mandates could increase premiums by as much as 30
percent.
An April 2002 PricewaterhouseCoopers report estimates
that government
mandates and regulations, which increased 25-fold
from 1970 to1996, will add
$10 billion to the overall increase in
health premiums.
Charles N. Kahn III, president of the Health
Insurance Association of
America (HIAA), testified before Congress
in 1999 that coverage for
psychiatric hospital stays alone already
had increased premiums by 12
percent.
In Maryland, a 1992
Blue Cross/Blue Shield Association study documented "the
most
expensive individual benefits were estimated to be substance-abuse
and
mental-health-care services." Outpatient
mental-health-care visits increased
more than 78 percent once
mandates were expanded - from 448,000 in 1983 to
800,000 in
1986.
The NFIB, the National Association of Manufacturers, the
U.S. Chamber of
Commerce and the HIAA are among the many
organizations opposed to the parity
legislation. According to
Randy Clerihue, a spokesman for HIAA, "We don't
like this
bill because it's going to raise the cost of health care. It's
not
that we don't think mental-health services aren't important,
but we don't
think government should be mandating the kind of
insurance employers
purchase on behalf of their employees. The
problem comes when you have a
mandate that forces everyone to pay
for something whether they want it or
not. We're headed in the
direction of mandating everyone out of health
insurance."
Each
of the many business and insurance groups with which Insight
spoke
expressed similar sentiments and each was aware of a
little-discussed fact:
While lawmakers seem prepared to force
private insurers to pay for the
increase in insurance premiums for
mental disorders, which then will be
passed along to employees in
the form of higher costs and lost take-home
pay, the federal
government itself is not included - neither Medicare nor
Medicaid
are included in the mandate. Imagine the uproar if payments for
these
had to be increased 40 percent or so!
Bruce Wiseman, U.S.
national president of the Citizens Commission on Human
Rights, a
nonprofit organization committed to ending abuses in
psychiatry,
tells Insight: "The government won't include
Medicare and Medicaid in parity
legislation because they know the
taxpayers couldn't afford it - it would
break the bank. And even
excluding those programs it will break the bank
because mental
illness is subjective."
According to Wiseman, "Numerous
studies show psychiatrists tend strongly to
use health-insurance
benefits up to the point that they are exhausted, at
which point
the patient is declared cured. For instance, a person is found
to
have anxiety disorder up to the insurance cap, whereupon the
psychiatrist
tells them they no longer have it. This kind of
diagnosing would milk the
system dry. In this legislation, the
government is saying that if there's a
million-dollar cap on
treating a patient's cancer then there has to be a
million-dollar
cap on treating shyness when it is called social-anxiety
disorder.
So once the person gets 'treated,' the bill reaches the cap
and
they're pronounced cured. Such diagnoses will run insurance
costs into the
stratosphere. Parity legislation is ripe for abuse
if for no other reason
than bogus diagnosis."
The
former surgeon general, however, might put an end to the debate if
he
were to testify before Congress about what he wrote in the 1999
report -
that there is no known abnormality in the brain as a
marker for any of the
psychiatric diagnoses. Meanwhile, the
critics say, they will continue to
insist that until a physical
cause of mental disorder is identified it is
not comparable to
medical disease and there should be no government mandate
that
insurance companies treat them the same.
Kelly Patricia
O'Meara is an investigative reporter for Insight magazine.
Email
the author: [email protected]