David was beneficiary of 2 wonderful organizations, The Sunshine Foundation from Stratford, Ontario and the Make a Wish Foundation Southwestern Ontario.  Courtesy of the Sunshine Foundation, David and his family were treated royally at Disneyland, Florida, where he and his brothers got to meet Mickey and friends.   At Sea World, David and I were splashed by Shamu the Killer whale.  Lots of fun and laughter.  The Make a Wish Foundation blessed David and I with a trip to Chicago, to meet his favorite hockey player, Doug Gilmour of the Chicago Black Hawks.  The absolute joy and smiles have left very special memories for us all.  Thank you so much to both organizations, we shall treasure the memories always. We also went to Niagara Falls and to Kingsville, Ontario for special times with Uncle David and Aunt Kim.

 By July '98, David's walking was becoming difficult, his word retrieval difficult, speech halting, movements were becoming spastic.  In September '98, basic care was generally with much assistance, everything from eating to walking to dressing, diapering was a constant now.  By the end of October  '98, David was wheelchair bound.  Really to best describe 1998 - it was an escalator going downhill and fast.  Through it all David kept good spirits, still always concerned about others and what a laugh he had. 

 At Christmas time, a special friend of David's was reading Robert Muncshs' book "I have to go Pee" David started laughing, laughing and laughing - he was laughing so hard, everyone else started to laugh with him.  In the hospital one of David's friends was reading David a story he made up (friend), David started laughing, he was laughing so hard the nurses ran in to see if he was OK, they were concerned he was choking.

 By December '98 - our final Christmas with David, he required total care, he still enjoyed the good laughs, and friends were very special to him.

 
 
The last 3 months of '98 and January '99, things were becoming tough, difficulty sleeping, swallowing becoming worse, painful contractures.  About every two weeks, mystery infections would occur, affecting his eating after each bout, after each infection, a little piece of David was taken away.  January 31, '99,  David was admitted to hospital and there he stayed 'til his death on December 16 '99.  Approximately a week after his admission a G-tube was surgically put in.  Walking up to surgery with David, outside the surgery doors, I told David a private joke, he entered the room, he laughed and laughed and laughed; that was the last time I seem him laugh.  Like the infections mentioned above, each taking their toll, the surgery seemed to be the final straw. 

 Life in the hospital consisted of seizures, pain control, being turned every hour, tube feeding.  Gone was David's beautiful smile and his contagious laughter.  Life was now sleeping, letting us know when he was uncomfortable (crying out),  I do believe he was aware of our presence, especially at his birthday party, you could tell he was in some form taking it all in.  David had many set backs while there, I was called about 4 times to get in there, things were not good, but, David with his strength and courage pulled through.

 On December 16, 1999, at 7 am in the morning, I received a call from the hospital, stating, David's condition had worsened, and recommended I should get up there.  Upon arrival, David's feeding tube was shut down, due to him constantly throwing up, his breathing was labored, I stayed for a couple of hours.  I headed out to get some lunch, came back in the afternoon, no change.  I spent the evening with the boys and I got a call around 11 pm, David's condition, had deteriorated, I better get up there.  I called Mom to take care of the boy's, gathered my things up.  I was 5 seconds to being at David's bedside, however, the nurse met me at the door and said David just passed away.  I will never forget the SILENCE AND THE STILLNESS of his room.  No feeding pump clattering, no breathing, SILENCE.  I approached David and gently touched his face; I recall the wind whistling through the window, it seemed to be the appropriate sound for what had just happened.  I did not leave his room until 4:30 in the morning, during that time; I brought David's brothers up, Brendan and Brady.  Auntie Ellen came up, Grandma and Grandpa Reid, Tammy Thynne, David's Dad and Grandma Stamper, several nurses and also David's Doctor all dropped in.

 

  
             My Mom Is A Survivor

My Mom is a survivor, or so I've heard it said.
But I hear her crying at night when all others are in the bed.
I watch her lay awake at night and go to hold her hand.
She doesn't know I'm with her to help her understand.
But like the sands on the beach that never wash away....
I watch over my surviving mom, who thinks of me each day.
She wears a smile for others....a smile of disguise.
But through Heaven's door I see tears flowing from her eyes.
My mom tries to cope with death to keep my memory alive.
but anyone who knows her knows it is her way to survive.
As I watch my mom through Heaven's open door,
I try to tell her that angels protect me for evermore.
But I know that doesn't help her or ease the burden she bears.
So if you get a chance, go visit her...and show her that you care.
For no matter what she says...no matter what she feels,
My surviving mom has a broken heart that time won't ever heal~!
 

This poem was written by
Kaye Des'Ormeaux
and dedicated to:Clarissa.
All rights reserved. 
It is illegal to take or use a copy right poem or work without 
original author's permission.


 
  

 


 
 
 
 
 
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