E-mail: [email protected]
Birthday: August 16, 1995
Age at diagnosis: About 2 weeks old
Other diagnoses: None
Home town: Port Coquitlam, British Columbia, Canada
Siblings: Siblings not affected, Jessica 13, Elyce 12 and Evan 11
Daily protein allowance: 25 to 27 gms
Weight: About 54 pounds
Medications: Hydrochlorthiazide 12.5mg. for BP
Formula: 270ml 1%, 70 gms 80056, 9gms Buphenyl, 10gms arginine, water to 560
Liver status: Liver functions down
Developmental status: Delayed, probably about 3 to 3.5 years of age, speech delayed
