| Dylan Clark |
Parents: Matt and Jen Clark Email: [email protected] Birthday: 10/22/03 Hometown: Wheaton, Illinois Siblings: Brother, unaffected Age at Diagnosis: 1 week - Newborn Screening |
| Dylan's Information as of May 2006 |
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| well as how to get around insurance. Further tests confirmed that
Dylan did have ASA. Dylan is now 2 1/2 years old. If it was not for the monthly blood test and strict diet, you would never know he had ASA. We have been lucky that his case is not as serious as others. His levels have never been elevated to a point of concern. He now sees the specialist every three months. His development has been a little behind the curve. He did not walk until he was about 13 months old (not that late, but his little brother walked at 10 months). His speech is the area he is most behind. He still talks in 2 or 3 word phrases (note I did not call them sentences). He loves Thomas the train and baseball. I am not sure how those go together, but he is always asking to watch one or the other. As I mentioned above, Dylan has a little brother, Brady, who is now 1. Brady does not have ASA or any other known conditions. Dylan is extremely protective of his brother in public and beats him up at home (typical brothers). Dylan's physical growth has been normal, in fact he has always been tall for his age. He is as happy and healthy as any other little boy. We are very lucky to have caught his condition so soon and to have such great medical help! |
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| Dylan was born on October 22, 2003. He weighed 8 pounds and 3 ounces and was 21 inches long. He was our first child, and the pregnancy and birth were normal. Dylan was eating without any issues and showed no signs of ASA. We received the call when he was 6 days old that there were abnormalities in his newborn screening and we needed to see a specialist that weekend. This was the beginning of an education on ASA as |
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