1999 – 2000 Comprehensive Community Assessment

 

Elderly & Disabled Subcommittee

Review Team 1

 

Transcript Review: Family Caregivers

 

REVIEW TEAM SUMMARY

 

 

In attendance: Bill Tye, Gary May, James Sallee, Cissy Kraft, Sandy Craven, Dan Hayden

 

 

Summary of Stories:

 

 

Pam:

 

Pam has a 20+ year-old daughter with multiple disabilities (diabetes, heart problems, learning disability and, primarily, visually impaired). Pam also cared for grandparents when they were alive (died 4 years ago); and is currently helping a friend care for her elderly parents. “Caring” seems to be her “calling”. Transportation for her daughter is a critical issue. She had trouble with METS attempting to convince them her daughter was disabled. The daughter desires independence and Pam is trying to accommodate, but her attempts at independence have put her in “dangerous situations”. The daughter was married for only 17 days and the relationship did not work out. Similar problems with another boyfriend. Some of her “friends” seem to take advantage of her. Thus, while the mother also wants her to be independent she recognizes her limits and the fact that her social environment has been insensitive and uncaring. She is also concerned about her daughter’s career desires…. Wanting to become a chef, and her concern about her previous cooking attempts “almost burned down the house”. She was working in a sheltered environment until she got married. Pam does not want her to live in group home, or work in sheltered environment, would prefer independent or semi-independent arrangements. She has received help and support from her family and “Christian family”. She has also received help from an agency, but believes there should be a clearinghouse of information to better guide decisions about available services. She supports the development of Jacobs Village as an option if her child might need that type of sheltered environment.

 

 

Nancy:

 

Nancy has been caring for her 80-year-old mother for 10-15 years in her home. Mother has diabetes and arthritis and has been falling and “messing over herself”. Doctor told her to quit climbing stairs to 2nd floor bedrooms, but she is still very independent minded and refuses. She and her husband provide alternating care although there are short periods of the day when she’s unattended. There are major conflicts and tension in the family. Nancy reflects back when the family was tight knit when parents and siblings were younger and socialized frequently. Now that her mother is sick, other siblings provide little attention or care. Nancy appears very bitter about this. Mother wants to live with her because other siblings were not very accommodating. The sister helps sometime but seems to take financial advantage of the mother. Her mother is beginning to fall a lot (broke her hip getting out of the car), and is beginning to show signs of failing memory. The grandchildren are resistant to taking her to nursing home, but Pam and her mother appear to recognize the inevitability of it. Nancy is also very concerned about changes to her HMO that don’t cover prescription medications. Mother is resistant to going to doctor because of fear he may prescribe medicine which she cannot afford.

 

 

Cheryl:

 

Professional staff for home health agency, and has worked in a nursing home. She has seen a lot of the sick elderly in her professional experience. She has experienced some frustrations in dealing with family members who have high expectations regarding their loved one’s care. She also believes that clients are now coming to home health agencies much sicker than in the past, and that they would be better served in a nursing institution. Cheryl gets emotional support from her co-workers and her mother. She is concerned about the lack of resources to reduce the waiting lists for care; and supports the development of a service clearinghouse to disseminate information.

 

 

Joe:

 

Has an adolescent son with Downs Syndrome. Joe is married and works out of his house as a software developer for an airline company – which allows him the flexibility to care for his son. He is very proud of his son’s accomplishments and is torn between wanting to challenge him to be more independent, and his concerns about his abilities and the community’s ability to positively respond to his condition. His son did well in the Special Olympics but wants to involve him in a t-ball league. He doubts, however, he can prosper in a competitive environment and the “cruelty” of others. He wants him to be able to catch the bus by himself but is fearful of his ability to safely cross streets. His son can talk and is learning to write, refers to him as “a good kid”. Joe also cares for his elderly mother whom he moved closer to him to provide more convenient care. He has 6 siblings but he has been designated the primary caregiver because “he has a flexible schedule” and thus they assume the time to provide the care. He is concerned about the inadequate transportation options for his mother (also has concerns with school busses for his son – being on bus for inordinate periods of time). Joe made a significant career compromise to care for his son. He received an education in another field but when his son was diagnosed he felt he needed to stay with same company for fear of losing the needed health insurance coverage. He convinced his employer to allow him to develop their own software, and does his work while son is at school and after he goes to bed. Joe has other supports in his care: his wife, his 23 year old daughter, parents and in-laws. He has a concern about waiting lists for needed services (after-school enrichment tutoring). Although he wants his son to be independent and included in the mainstream community, he supports the Jacobs Village project as a good option if all else fails.

 

 

Sarah:

 

Was the sole caregiver for 92-year-old mother with Alzheimer’s. Cared for her for 3 ½ years in the mother’s home. Her mother developed pneumonia and was having a lot of problem walking, and becoming confused and disoriented. She was picking up sticks in the yard but sometimes would go out undressed. Also became incontinent and had a fear of falling. She needed a lot of help walking and getting into and out of bed. Became difficult to communicate with. Sarah finally put her in a nursing home and she’s been there for 2 years. Sarah visits daily to ensure quality of care. She is concerned about the facility being understaffed. Due to the severity of her condition, and the challenges being the sole caregiver, the decision to place her in the nursing home did not appear to be contentious. The cost of around-the-clock home care was also prohibitive. Sarah is the only child alive of 5 siblings. The grandchildren came around when she was at home, but do not visit at the nursing home. While her mother was at home, Sarah did receive some assistance from her church (volunteers).

 

Common Issues:

 

 

 


1999 – 2000 Comprehensive Community Assessment

 

Elderly & Disabled Subcommittee

Review Team 1

 

Transcript Review: People with Disabilities

 

SECOND TRANSCRIPT TEAM SUMMARY

 

 

In attendance: Gary May, James Sallee, Cissy Kraft, Sandy Craven, Dan Hayden

 

 

Summary of Stories:

 

 

Janet:

 

White female with MS. Uses a wheelchair. Concerned about inaccessibility. Can still walk, it hurts to be in chair all day. She can use a walker but it causes her some difficulty. Just recently found out that METS has wheelchair lifts -- now “she can go somewhere”. Takes no medication for her MS, just lives on her “Christian faith”. She receives social security income, Medicaid and food stamps. She has family but they don’t come to visit her often. She does not wallow in her problems, says -- “I run it, it doesn’t run me”. Complains about transportation companies that make her wait sometimes for up to 2 hours. She’s been in Evansville for 10 years and has not met anyone else with MS – she has problems with transportation and doesn’t know where to find them. Concerned about working and having her social security and Food stamp assistance cut – seems to have good knowledge of helping systems.

 

 

Daisy:

 

Black female with mental health problems. Mother of 3 children, one living in Evansville working and going to school – “doesn’t leave a lot of time for mom”, but they do talk on the telephone. She defines her “disability” as …” the most heartbreaking thing is not having a supportive family”. Family is mostly out of town except her daughter and brother (who is struggling himself). She was divorced and resulted in mental problems or physical problems.  She has problems getting to see a doctor and has been referred to a health clinic (wants to see her own doctor or one of her own choice). She wasn’t sure they properly prescribed “nerve medicine” for her and didn’t take it. She also complains about the lack of transportation and the need to get out more. She feels isolated without a husband. She’s buying her house but feels stuck with it – can’t keep up with all the maintenance. Her doctors’ want to “fill her with thorazine”, but she only wants help with falling asleep. Interested in “more activities”. She receives SSI for her disability but it restricted from working because her benefits will be reduced or eliminated. However, if she works and loses her benefits she’s concerned about another breakdown and having to “start over again from square one”. She is concerned about people like her who work their whole lives and then are forced into dependence (quit working) when they need just a little help; or have to give up their houses to qualify for nursing home assistance (Medicaid). Daisy expresses a concern about affording emergency ambulance transportation when needed.

 

 

Helen:

 

White female, widow, visually impaired (for 16 years). She uses a cane but it causes problems, she is falling. Uses METS Mobility – doesn’t like the amount of waiting. She doesn’t believe the METS staff are equipped to pass judgment about one’s disability. She has lots of visual aids and equipment. She has been active in support groups, and local blind association.  She has private insurance.

 

 

Agnes:

 

White female, visually impaired. Active in local blind association, appreciates the opportunity to “stick together and meet each other… just share your problems and how you cope”. She feels it’s important to have “people contact” so you don’t feel so alone. She lives in public housing and everyone is “so bored”. Wants more activities, especially for homebound people with disabilities – wants more opportunities to just talk to other people. Concerned about the cost of getting to hospital in case of emergency (ambulance services).

 

 

Mark:

 

White male. He worked construction and fell off a building, losing an eye and other injuries. He can’t walk very far and has problems reading. He suffered brain damage and has problems with his short-term memory, he “can’t remember what he reads” and that is very frustrating. But he has “learned to deal with it, I guess”. He lives with his mother and brother and they help him with transportation. He’s still drawing Workman’s Compensation. There are friends who provide emotional support, and he has been getting career counseling for a new occupation. He recently lost his workplace medical insurance and feels he’s “too young for Medicaid”.

 

 

Jean:

 

White female with diabetes, married at one time (status unclear). She lives in public housing, receives some income from disability. Very concerned about transportation. Not sure what to do in case of emergency – METS mobility requires 24 hour notice – the cost of taking a cab or paying for an ambulance is prohibitive. She has problems with several daily living functions. Her daughter comes by occasionally to help her and stay with her. Medicaid is only way she can afford her medication (costs about $8,800 per year – about her total income). Also feels the loneliness and sense of isolation. Feels like shouldn’t always be a burden on family, she needs a support system of friends – that’s hard for her to find. She doesn’t have her own transportation, public transportation is a major hassle, and she doesn’t want to bother her daughter all the time for rides. Feels like many people don’t know how to make contact with all the available associations. She wants to “Feel people contact”. Struggling financially, recently had food stamps cut, now she can’t afford to buy fresh foods – especially the costs of foods required for her diabetes. Says she has trouble getting help sometimes because she doesn’t have any children at home. Also had a bout with depression and a “mental breakdown”. Feels it “sneaking up on her” from time to time, so she got involved in her resident’s council. Has battled her depression and loneliness – has contemplated suicide. She feels that’s common among the disabled, the lack of choices – or being forced to make bad choices, the isolation, the insurmountable odds – leads to “what’s the use?” She feels like the government should let you keep some money for savings and deduct extra income when “limits” are reached. She wants: the ability to make her own choices, agencies that don’t talk down to her, the ability to get together and decide things for themselves, and the resources to live in dignity.

 

 

Carolyn:

 

White female mother of 4, grandchildren, suffers from depression. She also had a number of back problems and surgeries.  Two of her children live in town, the other two live away. She “misses them” -- even the ones in town. She has brothers in town but hardly sees them anymore – they all have their own lives. Her mom is still alive, and they rarely go see her. She’s had depression all her life and has contemplated suicide. She doesn’t want to be around other people but would, at times, like to be around her children. She has no friends except maybe her cousin.

 

 

Common Issues:

 

 


1999 – 2000 Comprehensive Community Assessment

 

Elderly & Disabled  Subcommittee

Review Team 2

 

Transcript Review: Persons with Disabilities

 

REVIEW TEAM SUMMARY

 

 

In attendance: Barbara Miller, C. Keith Krietenstein, Gerald Gustafson, Kathy Schoettlin, Dan Hayden

 

 

Summary of Stories:

 

Karl:

 

Male, blind at birth, married with 5 grown children. Graduated from school for disabled. Karl worked at a shelter workshop until he had a tear on his retina and had to retire. He gets some disability income. His son had a brain tumor that caused vision problems but new technology and surgery enabled him to retain his sight. Karl’s wife is employed in a low-wage job, and drives the car. They raised all 5 children and put them through college. Karl believes transportation is an issue for others with disabilities, but not for him. He is concerned about the cost of maintaining and insuring their automobile. Karl is concerned about getting older and becoming more dependent on others. He’s concerned they may not qualify for aid programs because they make too much money.

 

 

Russ:

 

White male with a visual impairment disability – although he can still drive a car. His wife is working and providing care. Russ is concerned about transportation and access to buildings. Expresses problems with local doctors not wanting to take Medicaid patients. He feels that many doctors don’t want to take the time to deal with the disabled, and often act unfriendly. The confusion and difficulty of completing medical forms is another issue for Russ. He believes it’s difficult knowing where to get information about local agencies. Russ did come up with several suggestions: motorized shopping carts, special shopping hours for disabled, employee assistance in reaching high shelves, help completing forms, and financial aid to help pay for exercise classes.

 

 

Charlotte:

 

Unmarried female, with multiple disabilities and ailments, including: arthritis, diabetes, asthma, and heart problems. No family in the area. Charlotte has a 2-year associate degree but is not currently working. She gets $512 per month on SSI. She does get Medicaid but complains about the limited number of trips available per year (20) – especially with her many physical ailments. She also gets Food Stamps and Section 8 assistance; believes getting a job would be difficult as any money she makes counts against her food stamps and housing assistance, so its no real gain. There also seems to have been a problem with welfare workers “looking down on her” when asking for aid – they don’t seem to have a good understanding of people with disabilities. She also thinks you have to “play dumb” with welfare workers to get their help. Charlotte is also concerned about the cost of medications and related “out of pocket” expenses.

 

 

Marleen:

 

White female, married for 37 years, has battled depression for the last 20 years. She has an opportunity to attend college at early age but chose marriage instead. Marleen worked at minimum wage jobs when her children were little, and began getting depressed around that time. She has helped her husband over time but he did not return the support for her needs. She attempted a career in real estate but the stress was too much – doctor said her depression was related to the business. She quit. Her income comes from a disability payment, but half of that goes to paying off debts. Her first doctor assessed her condition and on a “hopeless” scale of 5 she was a 4. Her family attempted to comfort her but the assessment struck hard. She tells a story about baking cookies for her new doctor sometime around Christmas and how her gift brought smiles to him and his staff. This seemed to have a positive impact and she made a vow to repeat it every year; she also helps transport others in need -- and this “gives her life meaning”. She also found social support at an exercise/weight class. She is making progress with her disability and is on less medications now, has excellent agency supports, and her personal goal is to get off disability. She is part of an association that recently gave her recognition for her struggles and accomplishments.

 

 

Kent:

 

White male, married with 3 grown children, a veteran with a physical and mental disability. He worked for 29 years until involved in auto accident. Is now retired with a lot of back pain from the accident. His income was cut 60% by receiving disability. Kent was vice-president of the union at his company, and active in his church and family – until the accident. He is in constant pain. He has become isolated from his family (many living quite near) and his past activities. He went to Voc Rehab for a job assessment – he would like to become employed again but only part time and something that accounts for his disability. Kent believes he may have to move into town to become closer to services. He can still drive but senses those days may be coming to a close. He has been treated for depression. His back problems began in Vietnam with 2 surgeries -- he also mentions “post traumatic stress disorder”, a common war disorder (his mental disability?). Kent believes computers will someday provide relief to the transportation and access issues for the disabled (applying for services online), and suggests a clearinghouse of information, and someone to counsel about services and application procedures. Kent would like to remain a productive member of society, but his disability is a major obstacle.

 

 

Common Issues:

 

 

Unique Issues

 

 


 

1999 – 2000 Comprehensive Community Assessment

 

Elderly & Disabled Subcommittee

Review Team 2

 

Transcript Review: Family Caregivers

 

SECOND TRANSCRIPT REVIEW TEAM SUMMARY

 

 

In attendance: Barbara Miller, C. Keith Krietenstein, Gerald Gustafson, Kathy Schoettlin, Dan Hayden

 

 

Summary of Stories:

 

 

MaryBeth:

 

White female in her 30’s with 16-year-old son with multiple disabilities, requiring great deal of care.  Uses a wheelchair and electronic communication devices. Believes that people with disabilities belong in the public mainstream. Son attends public school with full-time assistant. Another son with asthma. She volunteers on statewide advocacy council, and advocates locally for the disabled. Supports the need for central clearinghouse and referrals mechanism. Need for independent living center for and by people with disabilities. Believes there should be more flexibility in choosing providers for Medicaid (family members). Story of family caregiver with dying son had to keep working because State would not pay for her care, but ended up paying a provider more than what she was making.  Limited transportation options available. She provides transportation for her son in converted van – paid for by Medicaid Waiver program. Wants people to see her child as a human being first. Aware of the inaccessibility of public buildings and many businesses. Providing care for son primary focus of her life, gets support from “a circle of friends” and her husband, but also recognizes that for some this support does not exist. A caretaker comes in 70 hours per month to provide care support.  Believes there should be more flexibility in funding for care, that families be able to choose providers. Concern about providing child with independence but the risk of abuse and exploitation by others. Opposed to attempts to segregate disabled in separate community – believes it’s a civil rights issue.

 

 

Amy:

 

White female,  21-year-old daughter with many medical problems and disabilities (heart problems, depression, legally blind, borderline retardation). Attempting to find independent living arrangement for her daughter – she wants to be her “mother-friend” rather than caregiver. Daughter does not qualify for ADA, but receives Medicaid for transportation, and qualifies for METS Mobility. Problem with cab company making her stand outside for rides, and the 24-hour scheduling requirements of METS and the cabs. Daughter works at sheltered workshop. Agencies dispute daughter’s eligibility and degree of disability, she believes her disabilities are not apparent but real nevertheless. Daughter attempted suicide. Concerned about daughter being taken advantage of by friends and past marriage -- trying to get marriage annulled. She wants her daughter to be independent but concerned about the risk of abuse/exploitations. She would like a “medical alert” for daughter (containing medical information).

 

 

Florence:

 

White female, over age 65, husband with moderate disability. Year ago he had an aneurysm (or a stroke). He can take care of himself but she has to drive and pay all the bills (can’t use his hands and has some speech problems). Their lives changed overnight: he was active in church before but now very little activity. Would like to have relief from the care of her husband. Some of their friends began to shy away from them after the stroke. A sense of betrayal of their friendship. Believes that more people with disabilities could stay at home with some support and assistance. She has learned how to deal with his disabilities, sometimes she leaves him alone even though she knows she shouldn’t (to take care of needs).

 

 

ISSUES:

 

 


 

1999 – 2000 Comprehensive Community Assessment

 

Elderly & Disabled Subcommittee

Team 3

 

Transcript Review: Elderly Not Clients

 

SECOND TRANSCRIPT REVIEW SUMMARY

 

 

In attendance: Stephanie Gerbig, Sam Simpson, Tom Mix, Steve Patrow, Dan Hayden

  

 

Summary of Stories:

 

 

Alberta:

 

She lives with son and grandson, has 5 children. Concerned about other elderly who have no family and are isolated. She goes to an agency meal program 3 times per week -- “for the fellowship”, and encourages other participants to join. Belongs to church groups, card clubs. Transportation is not a concern of hers, but recognizes it for others. She likes to travel and takes advantage of church and AAA trips. Takes advantage of free or low-cost screenings. She’s very active in card clubs and quilts with her church. Has a concern about the high cost of medications. Also concerned about not being able to care of herself. If her condition worsens, she’s not sure her family can care for her.

 

 

Bernie:

 

He has a workshop behind his house where he spends a lot of time. Form of relaxation. He turns on the saw and “don’t know if the world is going on”. Form of therapy. He and wife eat out each day. Biggest problem: figuring out where to eat that day. Is active in church and goes on trips together with group. Every morning he goes to a 6:00 a.m. coffee with a bunch of old friends, they “drink coffee and swap lies”. He is concerned about round-the-clock care of elderly, and the cost of medications. He cared for his mother for a period and relates the difficulty and cost of finding care in the home.

 

 

Maxine:

 

Over age 60, she has used health screening, concerned about bone loss, arthritis. She feels that youth don’t respect elderly. Is concerned about her health – getting to a point “where we can’t do for ourselves”. She does have private insurance, but it doesn’t pay for screenings. She did get a private screening, but waited to give to doctor – didn’t want to pay for doctor visit. She does take care of her sister-in-law but would like some in home help for her. She is concerned about her income, even though somewhat comfortable now, not sure what will happen if health needs rise. She does state –“things can’t get much worse”, but she doesn’t worry about it.

 

 

Helen:

 

Over age 60, she and her husband are retired. Very health conscious. She has cancer. She enjoys hospital programs: screenings, education and short trips. Involved in women’s health program. Used to be active in senior games, but not since cancer treatment. States that its hard for her to meet new people, but is active in her church, helping with transportation, playing cards, keeping active. Also drives the church van, and is member of ladies guild. Concerned about the cost of medications, especially for her cancer treatment. She feels that a lot of aid is only for the “destitute”. She looks for good deals on cost of prescriptions. Is concerned about staying independent and in her home.

 

 

Hal:

 

77-80 years old. Moved from Michigan here 20 years ago. He has problems with kids in neighborhood. Lot of health problems, but “life is good”. Concerned about property taxes, especially for those on fixed incomes. His wife is 15 years younger and is concerned about her care after he is gone. He believes there should be a clearinghouse of information about senior needs. Also believes there should be low-cost mental health services for seniors. Had a problem with depression recently but didn’t want to pay for professional counselor. Instead, enrolled in university class and worked his way out of depression – “was cheaper than a psychiatrist”. Describes himself as “poor working class”.

 

 

Evelyn:

 

She and husband live in house they’ve owned for 30 years. Knowledgeable about public transportation, senior meal programs, and legal services for elderly.

 

 

Clara:

 

Over age 70, she and husband own their home. Is busy with her church and the food pantry they operate. Has asthma. Children visit often. She feels fortunate to be able to stay at home. They are concerned about their finances and the stability of social security.

 

 

Bertha:

 

Over age 80, she was married, 2 grandchildren, just moved back to Evansville. She’s had “a good life” with some disappointments. Interested in her health – including interest in alternative medicines such as vitamins. Good relationship with her kids. On a leave of absence from her work. Husband passed away in ’87 and she has worked ever since. Worked as a caregiver for the elderly, “really enjoyed it”. She feels the people she cared for also helped her as well. Developed a good working relationship with one lady and became “a dear, dear friend” but was recently moved to nursing home. She likes to keep busy. Her daughter lives here in town. Bertha had a car wreck recently and the daughter wanted her to stop driving. Her daughter and other children made her move into an apartment recently, which she regrets in hindsight. She liked her home and garage. Sounds like the children are being overprotective and she’s not sure she likes it.

 

 

Common Issues:


1999 – 2000 Comprehensive Community Assessment

 

Elderly & Disabled Subcommittee

Review Team 3

 

Transcript Review: Elderly Clients

 

REVIEW TEAM SUMMARY

 

 

In attendance: Stephanie Gerbig, Sam Simpson, Jim Collins, Dan Hayden

 

 

Summary of Stories:

 

 

Ada:

 

Ada is a widowed 80-year-old  who lives by herself in an apartment. She has arthritis and other pains, but has a very positive outlook on life. She had a number of children, and when a daughter died she ended up raising her 3 children as well. Her 61-year-old son has cerebral palsy and vision problems. At a young age, the doctors said his vision problems were irreparable and he would soon be blind – although he can still see today. She recounts the trials and joys of caring for this son -- “He was a gift from God”. He had surgery to assist spinal problems and was then able to sit upright in his char. When she saw him, It was like looking into the gates of heaven”. She recounts with obvious joy how the other son would race him around in his wheelchair, both laughing, playing, bouncing off the curb, and obviously posing the danger of falling, but how much she loved his brother not treating him like an invalid. Her husband drove a semi truck and was gone a lot. He died in 1985. She recalls how the disabled son had a weak relationship with the father, even though he cried when the father passed away because “He just loved sitting in those semis”. Ada is concerned about the son’s continued independence. He is living in a group home now and works in a sheltered workshop, a job that  he loved. Ada recently had a home health aide come help her with some living chores. The aid was about the same age as her and really appreciated the way in which she “helped”. More like a friend and not a client. Unfortunately, the lady did not last long. Ada has some physical pain primarily from her arthritis, but does not dwell on it. She is concerned about what will happen if her condition worsens. She doesn’t want to be a burden to her other children, even though they are willing to take her in. She is very independent and wants to remain that way. She is not comfortable asking for help. Ada also has a very strong faith in God and her religion and spirituality appear to be a source of comfort and strength. She still enjoys social activities, although transportation is an obstacle (she doesn’t drive anymore). She is concerned about HMO’s and the cost of medication. She appreciated the opportunity to share her story.

 

 

Louise:

 

White female, married with 4 grown children (two sons and two daughters). She and her husband recently retired, they live on 5 acres in a rural area.  Her husband, however, went back to work for the same company but at reduced hours and pay. She also works as a merchandiser to help with their family income. She tries to do as much for herself as possible. The husband loves to garden on their property. Her son was in an accident and lost his leg (age 37). He is on disability and lives in a house they built on a back pond. He “fishes out the window” and seems to be “angry with God”. She does recount how the church came to their aid while the son was in the hospital. They were out of food and the church delivered 13 sacks of groceries – “exactly” what they needed.  It was miraculous as she tells it. She expresses strong religious values and faith in God – “I just love God”.  Louise and her husband recently took in their daughter and her 3 children. The daughter has a weight problem and is diabetic. She needs to exercise, but has difficulty doing so. Louise and her daughter are walking together for exercise and spend time with each other. She told Louise that she would take care of her when the time comes, even though they are willing to go to a nursing home. Louise took care of her ailing mother the last three months of her mother’s life. Louise has faith that things will work out OK. She is concerned about medical expenses and believes the government should help. She has some concerns about their burial arrangements, and has prepared a will. To save money, Louise chooses restaurants that offer senior citizen discounts.

 

John:

 

White married male, 69 years old. John has been retired for 1-½ years, but receives no retirement from the job he worked 47 years. He was “bored” with retirement and went back to work full-time. He enjoys working. His blood pressure and vision problems require $200 per month in medications. His wife also has medical problems. He considers them to be “in good health”.  He does have a son who lives in town, daughter lives out of town, but doesn’t mention family as source of support. There does seem to be friends and church support. Expresses a strong desire to remain independent. Concerned about his ability to stay independent if he stops working (doesn’t think they could make it just on his social security). He feels OK now, both financially and health-wise.

 

Common Issues

 

 

Unique Issues:

 

 


1999 – 2000 Comprehensive Community Assessment

 

Elderly & Disabled Subcommittee

Review Team 4

 

Transcript Review: Elderly Clients

 

REVIEW TEAM SUMMARY

 

 

In attendance: Julie Orman, Connie Ralph, Kelly Barnett, Paula Guzzo, Sue Hartig

 

 

Summary of Stories: 

 

 

Nat:

 

White male, over age 60, lives in public housing apartments. He has a walking problem that limits his mobility. He can’t stand for very long. Attempted to work recently but was disturbed by the housing policy to increase rent as income increases, and quit.  Nat is bored and wants more relationships and activities, in addition to gainful employment. He has some mechanical skills. He laments the fact that out of the 100 residents he only knows maybe 20 of them. He does receive some Food Stamp assistance, social security and SSI, and Medicaid. He has limited contact with his “caseworker” – didn’t like her. He seems to be knowledgeable about some assistance programs. He cites transportation problems and has problems getting additional subsidies for the cost. There is a van available for taking a group of seniors grocery shopping, but is difficult buying a lot of groceries as a group. He does have a friend (girl) who occasionally cooks together with him, and he helps her with her groceries. He does have some security concerns about living in the apartment complex. He wants to attend more community events and discusses some recreational opportunities he would like to attend – if transportation and costs could be worked out. He discusses his church involvement with another participant and is invited to attend their church. They discuss attending some meal programs but are concerned about attending programs for the needy --- which he does not consider himself.

 

 

Dean:

 

White male, over age 60, lives in public housing apartments (same as Nat). Dean has walking problems and uses a motorized scooter. Also had strokes and heart attacks. He can walk short distances, but also falls a lot. Is concerned about costs of medications. Dean is active in the apartment complex: vice-president of the residents’ council, volunteers as a floor security guard, and helps deliver the mail inside the complex. If he doesn’t see someone for several days, “They see if there is a problem”. He also is active in a pool league. He uses METS Mobility for transportation. His social relationships are important. He goes to some church meal programs, for the “good food” and “nice people”.

 

 

Madeline:

 

A white female, over age 60, lives in apartment complex on 2nd floor. Has some college education. She has a variety of health problems including  heart problems, repressed immunity disorder, and inner ear problems. She loses her balance easily and falls a lot. She cites delays in getting services – wanted home health care but was told they were “out of funds”. Her major concern now is getting an apartment on the 1st floor. Because of her medical problems, she anticipates needing a wheelchair in the near future. She appears to have few social supports and relationships, and says she voluntarily withdrew from her family relations. States that her “repressed immune disorder” makes her susceptible to communicable diseases, and thus shuns a lot of social contact. She has a lot of knowledge about services and assistance and likes to think of herself as an “advocate” for the elderly. She currently receives Medicaid assistance.

 

 

Edie & Mel:

 

Married white couple who live in their own home. They tried apartment living sometime earlier but were not pleased. They both want to remain independent. They like going out and doing things: grocery shopping, taking the mail to post office. They are active in their church (meals, church sponsored trips, church service), play bingo and are involved in a seniors group. They both have mobility limitations but complement each other: Mel has some walking/feet problems (phlebitis), cannot drive anymore, but can still walk fairly well. Whereas Edie has trouble walking (falls a lot) but can still drive. Mel helps Edie walk to the car, and Edie then does the driving. They are concerned about what will happen if the other is not around – Edie believes Mel would have to enter an “assisted living” arrangement. They have good health insurance coverage. They receive some in-home assistance from a nutritionist.

 

 

Common Issues

 

 

 


1999 – 2000 Comprehensive Community Assessment

 

Elderly & Disabled Subcommittee

Review Team 4

 

Transcript Review: Elderly Not Clients

 

SECOND TRANSCRIPT REVIEW SUMMARY

 

 

In attendance: Julie Orman, Kelly Barnett, Sue Hartig, Dan Hayden

 

 

Summary of Stories:

 

Marie:

 

Feels there are not a lot of activities for seniors. Lives in apartment complex with no activities. Likes to go to the racetrack. Also likes golf, but that’s expensive. Problems getting prescriptions filled by pharmacy, offered substitutes to what doctor ordered (generic?). Worked at nursing home saw people with tubes where life was dragged on, or people who were resuscitated but didn’t want to be. Is aware of need for written instructions. Thinks older people should be able to continue driving, they’re more cautious and defensive than younger drivers. Concern about medications and difficulty of getting to places where discounted medications are sold. She doesn’t want to be a burden to family when she needs more intensive care – doesn’t want to burden them and plus “they get on your nerves”. Believes that assisted living facilities are a luxury – refers to one community as “gorgeous”. Her husband had Alzheimer’s, was evaluated by VA, but they didn’t have any place for him, she ended up taking care of him by herself. Took care of him for 2 years (5 years ago), she was hurt when people called him “stupid”.

 

 

Mabel:

 

Stays very busy, “not enough hours in the day”. Church, auxiliary, community groups. Lives in retirement community – next to her church. Church (or apartments) has lots of activities: bingo, potluck dinners, card night, pool leagues. Husband plays pool in a.m. at the “community room”. A nice life. They have 3 daughters, 9 grandchildren. They have HMO coverage, and she retired from local hospital and gets a discount on their medications. Has an interest in “old time remedies” but doctors seem to discourage it. Interest in Gingko but then read medical journal and thought better of it. Has started giving away possessions to her children – “don’t miss it”. Grocery store sends out bus to take people grocery shopping – interferes with her schedule though. Wants to die in her sleep. Does not want to live with her kids, does not want to be a burden to them.

 

 

Harry:

 

“Living in the best time of our lives”. Feels there are plenty of things to do, even for teenagers, much more than when he was young. Is well off financially, helps his children and grandchildren in emergencies. “Volunteers” to help family and others. Had his own business before he retired. Goes to the “boat” – but doesn’t gamble. Drives a car. His children come back to live from time to time (52 year old divorced and living with him now). Has had his share of life challenges but says he doesn’t let it get him down. Concerned about a friend who is on life supports. He has prepared a living will or medical directive – no CPR. Doesn’t want to live with his kids if the situation arises.

 

 

James:

 

Likes animals – his hobby. Takes care of 90-year-old mother with dementia. Has someone staying with her 7 days per week. Comes over once a week and takes care of the house chores. Still drives. His wife works part-time, and he fights with stockbrokers over retirement investments. Likes to work on lawn mowers, used to work on cars “but got out of my class”. Built a dog house for sister. He has 2 children and various grandchildren. Open to alternative remedies (vitamin supplements), believes you should stay away from chemicals. Feels that without Medicare he “wouldn’t have anything”.

 

 

Mollie:

 

Still lives in her own home, 90 years old. No children, no brothers or sisters.  Keeps house, cooks for people, and took Clyde in (other participant). He had cancer and a stroke and didn’t want to live by himself and “now I can’t get rid of him”. They were friends before their spouses died. She likes to go to the horse races. But they have both been feeling “under the weather” and she doesn’t drive much anymore. She prepares meals for neighbors with physical problem; the husband eats at her house and takes the meal home to his wife. She and Clyde cook together (and go to races together). Clyde drives her. Has good insurance coverage, pays little for medications (pays $333 per month). But her doctor “isn’t much on medicine”. She’s been going to him for 11 years, she doesn’t want to “take too much medicine”. Doctor has her on vitamin E for heart condition. She has a will. Nothing is to be sold, all given away. She also has prepared for the funeral and gravesite.  A cousin and friends will take care of her assets. Likes living in her home, not into bingo or cards. Likes to work. “Just like her dad”, says Clyde. Concerned about going on “welfare” to provide for her living needs.

 

 

Clyde:

 

Lives with Mollie. Had a stroke and cancer. Doesn’t have many activities except helping Mollie cook and clean up around house. He has 3 children, and some great grandchildren, but they all live out of town. They were neighbors and friends with Mollie and her husband. Goes to the races with Mollie “just for the fun of it”. Feels he’s been “pretty fortunate”. Has insurance that pays most of his medical bills, and only takes aspirin for medications.

 

 

Alice:

 

She has a lot of back problems, doesn’t go out much. Likes to sew and quilt. Lives by herself. Wishes she had some help with taking care of house. Very involved in her church. She enjoys life, enjoys being by herself. Feels that some people can’t accept getting old.

 

 

 

 

Common Issues:

 

 

 

 

 

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