| Thursday May 10 - Well we found out late yesterday that Lauren is still HAMA negative. So we're due back at Sloan on Monday 5/14 to start round 4 of antibodies. We'll actually head to RMH on Sunday (Mother's Day). Lauren was not too pleased that we had to start up the gmcsf shots again last night but she's really being a trooper about it. She no longer wants the "magic" numbing cream beforehand so it's actually faster. (The cream had to be on for at least an hour before giving the injection). She's also down to her last day of Accutane for this cycle. She'll get a two week rest while doing antibodies then start cycle 3 when we get home. The effects on her skin have gotten worse these past few days. And keeping her out of the sun all day is nearly impossible. So we just pile on the sunscreen. It's really funny...she knows she can't go out without lotion so she runs around yelling "I need sunscream, I need sunscream". The 2 week break should hopefully give her skin enough time to heal before we start again. Lauren also had a checkup the Valerie Center on Monday. It had been 5 weeks since our last visit so it was nice to see everyone again. Lauren was a little upset when we first got there but then was running around like she owned the place. She even let Dr Kline examine her without yelling at him. We stopped down on the floor & got to see Gretchen & Edie (2 of our favorite nurses)& also visited with little Billy who was in having chemo. (Billy is 2 1/2 & has the same cancer as Lauren) Everyone said she looks great. Her counts were good and her weight is exactly the same as it was there last month. Tho I was sure she would have gained something with all the milk she is now drinking. I swear she's drinking a half a gallon a day! And this is a kid that up until the end of March hated milk! Her other favorites are still Tostitos, mini frozen pancakes, fortune cookies and of course McDonalds burgers (still without the bun). We'll see if this all changes after the next round. That's pretty much it for now.....we'll see ya in 2 weeks! As always, Thanks for keeping us in your thoughts and prayers! |
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