| Saturday, July 21 - Lauren finished up round 5 of antibodies yesterday and is very happy to be home. She had a much easier time this week and actually had no pain at all the last three days. Wishful thinking would be that she has developed a HAMA but it's definitely too early to know that yet. She won't get blood drawn for the HAMA test until Aug 6th. Lauren also had most of her three month scans this week - CT, bone scan and bone marrow biopsies and aspirates. I should have the results this week. The rest of the workup (MiBG scan and HVA/VMA (urine markers) will be done this week. We head back to RMH Monday night. Tuesday will be a quick visit to the clinic to drop off urine and get a radioactive isotope injection. Then on Wed she'll be sedated for the MiBG scan. If all goes well we'll be back home late Wed night. Like last week, Lauren was able to enjoy more of the evening activities at RMH. This week they had a western BBQ/minature golf night, bingo (Lauren gets to help call the numbers), jewlery making (we must have 20 bead necklaces!) and a pizza party. We also took a looong walk to find a new Zainy Brainy toy store. Lauren picked out a stick horse and rode it all around the store saying "Giddyup" up and down the aisles. She wanted to ride it home but I convinced her that it was too long of a ride for the horse and he would get too tired. She reluctantly agreed to let it ride in the back of the stroller. On Thursday, I had a visit from an old high school friend that I hadn't seen in almost 10 years! We had a great time catching up over a pizza lunch. Thanks Lenny..... You really brightened up my week! Unfortunately Lauren slept through the entire visit. It was actually really funny ..... just as we turned around from walking him to the subway, Lauren woke up and said "are we going to lunch with your friend?" I laughed and said 'honey we already went to lunch you just slept through it! She was upset at first but all was forgiven by the time we got to McDonalds for a Happy Meal. All in all it was a fun week for us. We got to see and catch up with some old friends from previous rounds and also made some new friends. Lauren's roommate this round was a sweet little girl named Hannah, who just happens to be treated at the same hospital where Lauren's favorite doctor - Dr. Kristen, now works. Lauren was very excited when she found out that Hannah knew Dr Kristen too! The girls had a lot of fun together both in the clinic and back at RMH. Well that's about it for now. As always... Thanks for thinking about us and for including us in your prayers! |
|||||||||||||
| Main Journal Page / Home Page | |||||||||||||
![]() |
|||||||||||||
![]() |
|||||||||||||
![]() |
|||||||||||||