Her schedule is pretty straight forward. They get to the clinic at 8am and Lauren gets GMCFS through her tubes for 2 hours, then gets an hour break. 15 minutes before the infusion she gets pre-medicated with Tylenol, Benadryl and Dilaudid. Once the infusion starts she gets the pain meds again in half hour intervals and right away again when the pain hits which is has been about half way through. The only way to describe how it feels is "like your blood is on fire" Deb said they are very good at trying to make Lauren as comfortable as possible and when Debbie talks to her later on about it, she doesn't remember any of the pain.
She is eating pretty good during the morning, but not after the infusions. She spends the afternoon and evening sleeping off all that medication at the Ronald McDonald house then heads back in again the next morning.
Loves and Hugs Lauren...you'll be home soon. :o)
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