As long as all the test come back ok, Lauren will start the GMCFS (Nupegen) on Wednesday the 17th and continue it until Sunday the 21st and head back to Sloan for her first infusion of antibodies on Monday the 22nd. The actual infusion doesn't take that long. 2 hours of Nupegen going through her tubes followed by 1 1/2 hours of the antibodies. Her cycle will last 2 weeks. So she will stay at Sloan M - F be home for the weekend, head back for another week then get to stay home for 3 weeks where she will get Accutane for 2 of those weeks, Nupegen for a week and start the cycle back over again. Arrangements are being made so Debbie and Lauren can stay at the Ronald McDonald House during the treatments.
Lauren is still on her TPN which they hope to stop some time next week. She is eating a bit and if they wean her off the goal is that she will be hungry enough to start eating normally again. Lauren is also complaining about headaches. Nobody wants to jump to any conclusions and I can't speak for Debbie or Bill, but on more then one occasion I have thought about the possibility of the NB already returning. I get angry that this cancer has me living in total fear most of the time. It's something that you don't get out of your head no matter how busy you make yourself with normal day to day activities. Lauren is the last thing I think of when I close my eyes at night and the first thing I think of when I open them each morning. You try not to think of numbers, everyone tells you not to, but the fear is still there because we all know the relapse rate is high. :o( We will know soon enough once all of Lauren's scans are finished....so I hold my breath and pray that it's something else causing her headaches.
Lauren continues to amaze me. To think of all the crap she has been though, I am not sure most adults would be able to mentally handle it and physically come though looking as great as she does! My mom and I spent some time with her last weekend and had a ball. We did our nails...toes and fingers, used real make-up and finished the look with some really great dress up clothes. I must say she looked stunning! She was giggling, dancing and having herself a great time!
Loves and Hugs Lauren! I will come by and visit this weekend and bring one of the dogs....hum how about Mackenzie? She would love for you to dress her up in your fancy dress up clothes!!! :o)
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