Thursday, August 9 - Well the HAMA results are in and Lauren is still negative. We were so hoping that she was positive so that she could be done with treatment but that just isn't the case yet. So she's scheduled for Round 6 of antibodies Aug 27 - Sept 7. It will be her first round without a line so they'll have to put in a peripheral iv on the first day and then one the following Monday.  She told me that she is a little afraid of getting "poked" but she is still glad she doesn't have a line anymore.

Lauren's checkup at the Valerie Center on Monday went well. Her counts were great and she's gained a little weight. She was a trooper when the time came to draw blood. She screamed a lot but held really still. When it was over she told everyone how brave she was and showed off her "sparkling" bandaid. 

Due to the extreme heat, we haven't done a whole lot this week. Lauren doesn't do well at all in the heat plus she's not supposed to be in the sun much while on Accutane. I also had to put drops in her eyes 3x a day for the past four days to dilate her eyes for a checkup at the eye doctor today. The poor kid has been living in sunglasses.  So for all these reasons we've spent much of our days just hanging out in the cool air conditioned house.
We did get back to the fair on Tuesday night and again the kids had a ball. Lauren rode her three favorite rides again while Timmy headed for the hang glider ride and the rollercoasters.  Then we all walked around and Bill and I actually got to see the rest of the fair! Unfortunately our walking was cut short by a thunderstorm that blew through (and I swear it  rained only over the fair grounds). We took shelter in the closest solid barn (a tent had blown down earlier in the week) and it happened to be the rabbit/fowl barn. Well Lauren was thrilled because she had be begging all night to see the ducks!

We were down in Morristown again today this time to see the eye doctor. By using the drops to dilate Lauren's eyes she was able to see that there has been an increase in her farsightedness. This means that there is a chance that with stronger glasses we "may" be able to avoid a second eye surgery. We'll check her eyes again in about two months. Hopefully the new glasses will help.
After the eye doctor we went across the street to the hospital for a 50's party on the pediatric floor. Lauren immediately made a beeline for the playroom, waving to the nurses as she ran past. Everyone commented on how great she looks and "all that hair"! It was nice to be there as a visitor and not a patient. The kids had a good time watching a magician and playing bingo and of course they came home with an armfull of goodies. Thanks Michelle and Kelly! Lauren was in a really good mood and even talked to some of the nurses (in the past she's been known to yell at them and tell them all to "go away") though she told me she was really sorry that we forgot to bring "Cheezer" with us. She told me to tell Gretchen that she promises to remember him next time! :-)  (long story)

Tomorrow we are all heading down to Pop Pop's house (Bill's parents) for the weekend. We have a party on Long Island on Saturday and Patrick's (Bill's nephew) christening on Sunday (Bill and I are the godparents). It's been a long time since the four of us have been down there all together so we're really looking forward to it. Some much needed R&R. Hopefully this heat wave will break soon!

Have a great weekend everyone!
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