ok...now for the update.
Lauren has definitely enjoyed being home these past four weeks. She's feeling good and finally eating enough to put on some weight. The food of the month is now plain tortillas, frozen mini pancakes and milk (by the gallon!). Her appetite finally picked up after finishing the cycle of Accutane about 12 days ago. Not sure if it was the Accutane or a stomach virus but she had
vomiting & diarrhea during the last week of the cycle. We'll have to wait and see if it happens during the next cycle too
We were supposed to be back at Sloan this past week for round 3 but we got bumped a week. So, we'll be heading to the Ronald McDonald House on Sunday (4/8) and round 3 will start on Monday and go til Friday 4/20. Lauren's scans are also due so we'll have to stay into the third week to get them done. They can't do them at the same time as the antibody treatments because of the 2 hr gm-csf infusion she gets before the antibodies each day. They're trying to set them up for Mon-Wed of the third week.
We had all of our doctor appointments last week and the results are.....
General checkup - Looks great, blood counts great
Hearing test - passed with flying colors Yeah!
Eye exam - Lauren's starting to cross her eyes again even with her glasses on so they want to check her again in 3 months instead of 6 to see if it gets any worse.
We saw an orthopedic sx for the first time too, to start following her back.
He said she has a slight curve in her spine as a result of all the surgery.
But it might not get any worse. So they too want to check her again in 3
months. If it does progress they may have to put her in a brace of some
sort.
All in all it's been a good month home. Lauren has had a lot of fun just doing normal 2 year old stuff. Like going to Grandma & Pop Pop's house for a fun weekend with Daddy & Timmy. She had a great time seeing everyone and told me that the best thing was that Melissa painted her nails & toes for her!
She's also been running around outside & playing on her swingset, going to the park with Sierra & Cheyenne and having playdates at their house, coming with me to watch Timmy at karate, helping daddy put up the Easter decorations and of course... going shopping. She is also so excited that Tim's soccer has just started up again. Now she gets to see her favorite soccer coach......Coach Dan!
Aunt Nean and Lauren got to play together this past Friday night while we were at Timmy's karate banquet. I'm not sure all that went on but I do know I heard ...makeup...please! as we were heading out the door.
Timmy is off from school next week for spring break so he and Bill will get to do some guy things together while the girls are away.
Thanks for checking in and we'll update again when we get home.
Guestbook Archives
