| All of these sites offer information on CF. Many also offer items for awareness and fundraising as well. Be sure to check them often for new research findings or opportunities to participate in studies as well as fundraisers going on in your country or area. Visit the sites, get to know other people with CF - from all over the world - and see what's going on in our community! Personal Pages www.caringbridge.org/visit/johngoldberg John Goldberg (a good friend of mine and the first person with CF I ever met--ed.) recently received a double-lung transplant. His journal and pictures are here. He is the biological father of a beautiful little boy. Support and Information www.cfroundtable.com a seasonal newsletter for and by adults with CF containing Focus Topics and research news Forums www.cysticfibrosis.com an international meeting place for information and fellowship within the CF community www.cystic-l.org a great place for information and chatting, it has archives and a shop for CF awareness items azcowboy88.tripod.com/welcome/ a CF Web Ring - this site has several links to other sites, information and fellowship www3.nbnet.nb.ca/normap/groups.htm a wonderful page listing discussion groups, chat groups & message boards communities.ninemsn.net.au/CFFamilyTimes a site, including message boards, for Jewish people with CF issues to get together. Gentiles are welcome also. Please read the introduction to learn about posting to this site. Foundations, Associations and Organizations www.cff.org to find out more about CF, donate, or participate in fundraising or research in the US www.cysticfibrosisaustralia.org.au information, fundraising, research and donating in Australia www.cysticfibrosisqld.org.au Queensland's CF Association www.cftrust.org.uk the CF Trust of the UK www.cysticfibrosis.ca information, fundraising, donation and research in Canada www.milanfoundation.org founded my a mom and run until recently from her home for fundraising, donation and awareness www.curecf4valerie.com information and a shop for awareness items www.sureshotforlife.com a fundraising organization benefiting the CFF Comprehensive Information and Links www3.nbnet.nb.ca/normap/CF.htm This amazing website is run by Norma Kennedy Plourde (43 with CF). It contains well over 2,000 links to information, research, support and personal pages for and by people with CF. Her website has been in operation since 1997 and has received a half-million hits! |
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