I am single, unfortanately haven't been dating much lately, and I like to work out whenever I feel physically able.
I have a sickle cell crisis every other month or so, and I usually have to be hospitalized for pain control and most likely receive a blood transfusion. There's nothing new there. I have been having crises as long as I can remember being alive.
I really like going out and enjoying life, but having a pain crisis every other month or so really has cramped my style.
I haven't been able to work since 1980 something. I've been on disability since 1990, which doesn't leave me much extra money to play with, or really enough money to live with, for that matter.
Living with Sickle Cell Anemia, or any chronic illness for that matter, is tough. I have noticed, however, that there are many outlets for adults with most other illnesses. Not only are there not many outlets for those of us that suffer from sickle cell period, there are certainly not many avenues available to the adult with sickle cell disease. There are, at least, support groups for children who suffer from the disease. Once you become an adult, you're on your own.
Well, I'm an adult living with Sickle Cell Anemia. If there are others out there who just need to talk sometimes...to someone who can really relate...I'm here. Let's talk.