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UPDATES

FEBRUARY 5TH, 2001- MADISON DEVELOPED A BLOODY NOSE EARLY THIS AFTERNOON. IT ONLY LASTED ABOUT THREE MINUTES, BUT IT BROUGHT BACK A LOT OF BAD MEMORIES AND THAT'S ENOUGH TO WORRY ME! I AM GOING TO WAIT AND SEE WHAT HAPPENS THE REST OF THE DAY BEFORE I CALL THE DOCTOR....

FEBRUARY 9TH, 2001- MADISON DID GREAT TODAY DURING HER MRI, SHE WOKE UP WONDERING WHERE MOE WAS (HE'S CURRENTLY OUT OF THE COUNTRY) BUT THEN SAW ME AND WANTED A DRINK. DURING HER CLINIC VISIT THIS AFTERNOON DR.WOLLMAN CHECKED HER NOSE TO SEE IF HE COULD FIND THE CAUSE TO HER BLOODY NOSE, AND HE DID, A VERY DRY SINUS. MADISON HAD HER LAST ROUND OF VINBLASTINE TODAY, SHE WILL BE GOING OFF ALL MEDICINES ON THE 14TH, YEAH! THE PLAN AS OF NOW IS TO HAVE HER COME BACK IN 6 WEEKS JUST TO GET HER PORT FLUSHED, THEN AFTER WE COME HOME IN APRIL FROM HER WISH TRIP WE WILL DO ANOTHER MRI TO SEE HOW THE TUMOR HAS REACTED. I GUESS THE "WAIT AND SEE" PROCESS IS THE BEST TO DETERMINE THE NEXT COURSE OF ACTION IN HISTIO. BUT, THINGS COULD CHANGE AFTER MONDAY WHEN HER MRI RESULTS COME BACK. DR.WOLLMAN ALSO SAID THAT HE WANTED TO TAKE HER NEW SCANS NEXT THURSDAY TO THE TUMOR REVIEW BOARD AND SEE WHAT THEY THINK. I WILL UPDATE EVERYONE ONCE I KNOW THE FINAL RESULT!

FEBRUARY 14TH, 2001- I TALKED TO DR.WOLLMAN THIS MORNING AND HE HAD SOME GOOD NEWS WAITNG FOR ME. THE MRI SHOWED THAT THE TUMOR DID SHRINK SINCE THE NOVEMBER SCANS. THAT MEANS THAT SHE WILL BE TAKING A TINY BREAK FROM ALL OF THIS AND WILL HAVE ANOTHER MRI DONE IN APRIL TO SEE HOW THE TUMOR IS REACTING, WE WILL THEN GO FROM THERE. MADDIE IS REALLY CRANKY TODAY, MOE HAS BEEN IN TAIWAN SINCE THE 6th AND SHE MISSES HIM LIKE CRAZY. SHE WAKES UP AT LEAST TWO TIMES A NIGHT CRYING FOR HIM TO HOLD HER. HE'LL BE HOME ON FRIDAY, WE CAN NOT WAIT!

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MARCH 7TH, 2001- MADDIE WOKE UP AT 11PM (ON THE 6TH) CRYING OUT FOR ME, INSTANTLY I KNEW SOMETHING WAS WRONG. I COULD SEE IN HER EYES THAT SHE DIDN'T FELL WELL, SO I FELT HER HEAD AND SHE WAS BURNING UP. I TOOK HER TEMPERATURE AND IT READ 104.1. I TOOK IT AGAIN A MINUTE LATER AND IT READ 103.9. IMMEDIATELY I CALLED THE ONCOLOGIST ON-CALL IN PITTSBURGH AND THEY SAID THAT BECAUSE SHE STILL HAS HER PORT IN THAT WE NEED TO TAKE HER TO THE EMERGENCY ROOM ASAP FOR IV ANTIBIOTICS AND TESTING. WE WERE IN THE EMERGENCY ROOM FROM 11:35PM UNTIL 5AM. MADISON ONLY SLEPT FOR 15 MINUTES THE ENTIRE TIME. SHE WAS SO BRAVE, WHEN THEY WENT TO ACCESS HER PORT SHE TOLD THEM THAT ONLY SANDY CAN DO IT. SHE REALLY WANTED NURSE SANDY TO BE THE ONE TENDING TO HER BUT WITH MOE AND I BY HER SIDE SHE MADE IT THROUGH. THEY DID BLOOD TESTS, URINE TESTS, AND SHE GOT A CHEST X-RAY DONE. ALL CAME OUT CLEAR, BUT THE RESULTS OF OTHER BLOOD TESTS ARE STILL PENDING. THE ONLY THING THAT THE ER DOCTOR COULD FIND IS THAT THE TUBE IN HER LEFT EAR SEEMED TO BE BLOCKED, SO WE HAVE A FALLOW UP APPOINTMENT WITH MADDIE'S REGULAR DOCTOR TO CHECK THAT OUT. SHE HAD TO GET IV ANTIBIOTICS, ROCEPHIN. THE AMOUNT THAT SHE RECEIVED IS THE AMOUNT YOU WOULD TAKE IN OVER A 10 DAY PERIOD. THEY ALSO GAVE HER MOTRIN TO HELP WITH THE FEVER. SHE IS CURRENTLY HOME, AND IS JUST TAKING MOTRIN FOR HER FEVER, THAT COMES AND GOES BUT ONLY REACHES ABOUT 101.

MARCH 14TH, 2001- MADDIE WENT TO SEE HER ENT, DR.PLOTNICK TODAY. HE CONFIRMED THAT SHE DID INDEED HAVE BLOOD BLOCKING HER TUBE ON THE LEFT SIDE. THEY PREFORMED A HEARING TEST AND THEY GOT NO RESPONCE TO FROM HER LEFT EARDRUM. WE ARE PUTTING DROPS IN HER EARS AND CONTINUING WITH ANTIBIOTICS. SHE WILL GO BACK ON THE 23RD TO BE CHECKED AGAIN. IF IT IS STILL BLOCKED HE WILL HAVE TO THEN TRY AND UNBLOCK IT.

MARCH 23rd, 2001- MADDIE'S ENT HAD NO LUCK UNBLOCKING THE TUBE. HE SAID THAT IT COULD BE A NUMBER OF THINGS, BUT HIS BET IS THAT IT'S SCAR TISSUE FROM THE CHEMO.

MAY 5TH, 2001- MADISON WILL GO IN ON FRIDAY FOR YET ANOTHER MRI. WE WILL THEN FIND OUT WHAT IS NEXT IN LINE FOR HER.

May 21st, 2001- MADISON'S MRI SHOWED NO CHANGE IN THE TUMOR, IT HASN'T GROWN BUT IT HAS NOT GONE AWAY COMPLETELY. WE ARE PLEASED TO SAY THAT MADDIE GETS TO HAVE HER MEDA-PORT TAKEN OUT IN TWO DAYS! HER ENT IN PITTSBURGH WILL BE PREFORMING SURGERY ON HER LEFT EAR AT THE SAME TIME. IT WAS STILL BLOCKED WHEN WE WERE LAST IN PITTSBURGH, ON THE 11th, THAT WOULD MEAN THAT IT HAS BEEN BLOCKED FOR ALMOST 3 MONTHS. I WILL TRY TO PUT A NEW UPDATE ON THE SITE BY THE 25th.

June 7th, 2001- MADISON HAD HER PORT REMOVED TWO WEEKS AGO. SHE WILL BE HAVING SURGERY ON HER LEFT EAR ON THE 19th OF THIS MONTH. BESIDES HER EAR EVERYTHING SEEMS TO BE GOING REALLY WELL!

July 1st, 2001- THE SURGERY ON MADDIE'S LEFT EAR WENT WELL, IT ONLY TOOK 7 MINUTES! THE DOCTOR SAID THAT HE COULD NOT SEE WHERE THE BLEEDING WAS COMING FROM. SHE HAS A NEW TUBE IN, AND WILL CONTINUE TO HAVE ONE PLACED FOR THE NEXT FEW YEARS. MADDIE WILL HAVE ANOTHER MRI ON THE 9th OF AUGUST. SHE THEN HAS AN APPOINTMENT WITH DR.WOLLMAN ON THE 14th, WE WILL GET THE RESULTS BACK THEN.

July 7th, 2001- MADISON' S 3rd BIRTHDAY WAS YESTERDAY, SHE HAD A BLAST! TODAY HAS BEEN A LONG ONE FOR HER, WHEN WE GOT HOME FROM HER PARTY I NOTICED THAT SHE WAS UNUSUALLY TIRED. SHE HAD A TEMP OF 102F. THIS LASTED ALL NIGHT, ALONG WITH WHAT SHE SAID WAS A "HEADAPE".