Vinblastine...6MP...Bactrim...Prednisone
December 1, 2000- she had her regular visit to Pittsburgh where she recieved Vinblastine.
November 16, 2000- Maddie had her third MRI today. She did great, but the medication really made her miserable when she woke up. (She cried and hour and a half until she finally recognized me!)
November 11, 2000- we traveled to Pittsburgh today for Madison's regular chemo treatment. She slept from four in the afternoon until 10am the next day. She's really getting worn out.
November 2, 2000- we had to travel to Pittsburgh today because Madison has not only been sleeping about 17 hours a day but she has been complaining that her head hurts. Dr.Wollman had us go over to the hospital to get an x-ray. It ended up being the chemo sitting in the area that was causing the pain.
October 20, 2000-Madison recieves her regular dose of vinblastine. She got really sick after this dose, I wish that I could do more to make her feel better.
September 29, 2000-This is Madison's last weekly visit for vinblastine. She will now come in every three weeks.
September 22, 2000-Another good week for Madison, chemo went good, but she did have a lot of nausea the next few days.
September 16, 2000-Today Madison has her MRI, we just kept her port accessed from clinic the day before so we wouldn't have any other problems. The results showed that the tumor has moved out of the sinus, yeah!
September 15, 2000-Week four of the treatment, Madison still has low iron, but we are going to wait to do anything. It has been low since she lost so much blood before starting chemo. Maddie was suppose to have an MRI this morning, but the nurses in the radiology lab couldn't access her port. It was a huge mess, she got some of the sadation medsbut they didn't know exactly how much, so we are going to hold off until tomarrow morning.
September 8, 2000-Madison has her third round of chemo. Again, everything is looking good!
September 1, 2000-We travel to clinic in Pittsburgh for the first time, it's a long three hour car ride. Everything looks good, her bloody nose finally stopped two days ago. Dr.Wollman said that it shows that the chemo seems to be working. Madison recieves another round of chemo
August 25, 2000- We are introduced to Madison's Oncologist,Dr.Wollman. He tells us the news that she has Langerhans Cell Histiocytosis. She will be placed on a sixth month protocol that should clearup the tumor. She gets a port-a-cath placed and then recieves her first round of chemo. She got really sick the next day so they had us stay another night in the hospital. For the next six months she will be on many different medications. She recieves vinblastine through her port at every clinic visit,I give her prednisone three times daily, and in the second phase of her treatment she will be recieving oral chemo at home called 6-mp.