| The National Center of Medical Home Initiatives for Children with Special Needs http://medicalhomeinfo.org MUMS C/o Julie Gordon 150 Custer Green Bay, Wisconsin 54301-1243 Phone 1-877-336-5333 for parents only or (920) 336-5333 Website: www.netnet.net/mums/ Email: [email protected] Nord-National Organizations for Rare Diseases Attn: Abbey S. Meyers, President P.O. Box 8923 New Fairfield, CT 06812 1-800-999-6673 or (203) 746-6518 Website: http://www.rarediseases.org/ Federation for Children with Special Needs Director of Health Issues 1135 Tremont St. Suite 420 Boston, MA 02120 (617) 236-7210 Fax (617) 572-2094 Website: http://www.fcsn.org Email: [email protected] [email protected] Genetic Alliance 4301 Connecticut Ave. Suite 404 Washington D.C. 20008-2304 1-800-336-4363 or (202) 966-5557 Fax (202) 966-8553 Web Site: ; http://www.geneticalliance.org Email: [email protected] March of Dimes Birth Defects Foundation 1275 Mamaroneck Ave. White Plains, NY 10605 1-888-663-4637 or (914) 428-7100 Fax (914) 997-4763 Website: http://www.modimes.org Email: [email protected] National Parent Information Network Website: http://www.npin.org National Institutes of Child Health and Human Development 31 Center Drive, MSC 2082 Bethesda, Maryland 20892-2082 (301) 402-4336 Fax: (301) 402-0420 Web Site: http://www.nichd.nih.gov/ NIH/National Institute of Neurological Disorders and Stroke 31 Center Dr. MSC 2540 Building 31 RM 8806 Bethesda, MD 20892 1-800-352-9424 or (301) 496-5751 Fax (301) 402-2186 http://www.ninds.nih.gov/ NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases 9000 Rockville Pike Bethesda, MD 20892 Phone: (301) 496-8188 Web Site: http://www.nih.gov/niams/ |
| STATE AND AREA LINKS Heartland Area Education Agency 511 S. 17th St. Ames, IA 50010 515-232-7583 or 1-800-375-6817 Direct Dial (515) 232-7595 then ext. # Fax (515) 232-1091 Website- http://www.aea11.k12.ia.us People Place 219 6th St. Ames, IA 50010 (515) 233-1677 Parent Training and Information Center of Iowa 321 6th St. DesMoines, IA 50309 (515)243-1713 or 1-800-450-8667 Web Site: http://www.askresource.org email: [email protected] Department of Human Services 126 Kellogg Ames, IA 50010 Website: http://www.dhs.state.ia.us/ Social Security Administration- http://www.ssa.gov/disability/ Medicare Site- http://www.medicare.gov/ Disability Resource Library University of Iowa 100 Hawkins Dr. Iowa City, IA 52242 Phone- 1-800-272-7713 http://www.medicine.uiowa.edu/uhs/drl/index.cfm Email- [email protected] |
| Phone Iowa Pilot Parents-1-800-952-4777 The Parent Connection- (515) 255-5943 EPSDT Program-1-800-928-8004 Infotech 1-800-331-3027 National Zero-Three (703) 528-4300 National Info Clearinghouse for Infants with Disabilities 1-800-922-9234 Childserve (515) 232-7220 Websites Shriners Hospitals- http://www.shrinershq.org/ Healthlinks http://www.healthlinks.net/ Feeding Disorders sites Pediatric/Adolescent Gastroesophageal Reflux Association PO Box 1153 Germantown, MC 20875-1153 Phone: (301) 601-9541 Web Site: http://www.reflux.org Email: [email protected] New Visions: http://www.new-vis.com |
| Healthfinders Attn: Joice Burrage, Bilingual Info Specialist PO Box 1133 Washington, DC 20013-1133 (301) 565-4167 http://www.healthfinder.gov The Arc TheArcLink�s goal is to provide resources that empower individuals with disabilities and their families to make sound choices about services that support their full participation in the community. |
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| NATIONAL LINKS |