My name is Jennifer and I live in Australia. In 2000, I had a baby girl Lauren, she is a sacrococcygeal teratoma (SCT)survivor. At the time, I was very worried because I could not find a single image or story of a survivor of a teratoma on the internet. I was worried that this must have meant that none existed! This caused much stress and worry for me so I set up an email group. This email group grown from 50 families in 2002, to 200 members in 2007with a direct experience with a teratoma. The experiences relate mostly, to sacroccygeal teratomas as they are the most common, but also brain and neck.
Renee
Renee is a co-moderator with me and lives in the United States she is the mother of 3 girls, the youngest of whom, Becky, is now a teenage survivor of an sct. Renee brings to the group a high level of knowledge, experience,compassion. She is also a disability advocate and has relevant professional qualifications to assist the group area. Renee is one of the most intelligent,helpful people I have ever known!
We hope you enjoy this site and together, we extend a warm welcome to you.
Please also check out our email support group -- we now have 200 families from around the world!
Michelle and Brad
Bonnie
