Update

October 29th, 2001 update:
Well I am doing fairly well. Just had gallbladder surgery on October 16th because of gallstones. It has been 1 year and 11 days since my surgery (hysterectomy) and I have regretted it ever since. I pray sometimes wishing I could go back or that I would wake up from this "BAD DREAM" , but I can't ~ I see friends of ours that are expecting and don't get me wrong I am so very excited for them, but at the same time, I guess you could say that I am jealous. I feel so bad for feeling that way , but I guess it is normal being the circumstances. I think that if the surgery would have helped some with the pain then I might could accept it, but since it hasn't - I just feel like I did it for nothing..

May 20th, 2002 update:
Here I am again, wishing I could bring some good news, but unfortunately I can't. My pain seems to increase day by day. Both of my sides are killing me, I assume its my ovaries. I can't sleep at night because either way I try to lay down they hurt. I haven't gone back to the doctor because to tell the truth my funds are all tapped out. I am still paying for surgeries I had 3 years ago. As I am sure that if you have Endometriosis and are reading this, you understand completely.... I want so much to wake up and not hurt any longer. I often wonder what I did so bad to derserve this.
I truly enjoy reading your responses in my guestbook. Please feel free to email me anytime @ [email protected] !

Thank you so much & God Bless!

July 11th, 2002 ~
I am still battling this disease. The pain now is worst than I could have ever thought. I had to go to the ER one night b/c of the pain. I went to see my Gyn. and he wants me to go back on Danazol, however I don't want to. So now I have an appt. with another doctor. Will keep you updated! Take Care & God Bless

August 2nd, 2002 ~
Wished I could bring GOOD news for once, but I still can't. Went to another Doctor and he wanted me to try LUPRON, which I just can NOT make myself do. SO again I am sitting here in horrible pain, with basically NO other options. I really do try to keep my spirits up, however I am sure that u all understand how hard that is, when you are in constant pain. Maybe soon, hopefully VERY soon there will be more treatments/options available for us!
I wish you all the very best and pray that "Pain Free" days are in our Future! God Bless!

I would like to personally take time to thank a very special friend of mine (u know who u are *jr*) for her constant care & support ~ U have helped me more than U know! I love U Girlie !!

September 3rd 2002 ~
I went to see Dr. Lyons today in Atlanta, and he came to the conclusion that I need another Laprascopic surgery done. I also signed up for a research on an adhesion barrier, spray gel, the only thing to that is that w/in 4-6 weeks of the first one I have to have a 2nd look. My surgery is set up for Sept. 9th at 10:00.

September 16th 2002~

Well I am recovering fine from my surgery on the 9th. Dr. Lyons said that I had an awul lot of adhesions and that he was actually like where do I start. Surgery lasted around 3-1/2 hrs. and I got to go home the same day. I won't know if I was one of the lucky ones who got the spray gel or not till after the next surgery. I so hope I did!!

October 22nd 2002~
Well I just had my 2nd look surgery and all on the 18th of October. I am recovering fine. Dr. Lyons said he saw more adhesions building back up but he did not take them down bc of the probability that more will grow back and be worse. I was not one of the fortunate ones to get the spray gel, which I went in w/the understanding that I may not be, but I was so hoping I was. Oh well.... He also found that my fal. tube was bleeding, he tried to zap at it to get it to stop but it wouldn't, so he ended up taking some if it out. I will go back for a post op in about 2 weeks so as soon as I know some more I will post!!

January 29th, 2004 ~

Boy how time just seems to fly by! I hope that everyone had a wonderful Christmas, I know we sure did.
I apologize for not updating my page in awhile, hopefully I can start trying to do it more often.
Let's see what is going on - In September of 2003, I lost my grandmother "Nannie". It was harder than what I could have ever imagined. She suffered severly from COPD and Asthma, and was terrified of dying "smothering". We weren't quite ready to give her up and I guess now that I say that No One is ever to give up a loved one. However, she didn't die of the asthma or copd, she all of a sudden had a massive heartattack and died instantly. I am thankful that she didn't suffer with the others and at least she died peacefully. I just would have liked to have told her I love her and all one more time.
I have been doing pretty good I have to say with my pain. My doctor seems to believe my adhesions are back on my bowel, etc. However the pain has been tolerable so I told him let's just wait and see how it goes.
I hope everyone is doing as well as can be expected dealing with this awful disease! I will continue to keep you all in my thoughts and prayers!

Thank you all so much for visiting my website!

God Bless!!!

September 2006~
Goodness it sure has been awhile. I figured I would update since I haven't in so very long!
Things are going good, unfortunately my sister was just diagnosed with Endo. I feel so bad for her, we all have different symptoms but we all know how she is feeling and how bad the pain can be. She is also battling Type I Diabetes along with it. I wished I could help her, I love her to death and it just breaks my heart knowing she is in pain....She had surgery this past Friday to clean the Endometriosis. One positive thing for her is she had no adhesions which is a blessing.
As for me, I have had some cysts on my ovaries, my doctor put me on some medicine to try to shut my ovaries down for a while. I still suffer from the pain in my back that radiates down my legs, it is so hard to explain... I just know the pain is awful... And of course I feel like only a few people can understand... Occasionally I will get pain in my lower right side. I haven't been back to the doctor in several months, I really need to make an appointment but I have just gotten where I really dread it...
I hope everyone is doing well...