Let's clarify those job descriptions . . .One of our HHA tells this story: I was taking care of Mr. T one morning, going through our usual bathing routine. Things were going accordingly with no difficulties. I began helping Mr. T back into his bed. While straightening the linens and his pillow for comfort, I asked if he was comfortable?
Job description clarification, continued . . . Then there was the patient who asked the social worker, "Are you going to get me naked and wash me?"
Never put anything smaller than your elbow . . . One of our patients started
complaining of pain in her right ear and dizziness. The nurses looked in her ear and it appeared
that something (a tick, old ear wax, who knows) was in her ear. Over the counter ear wax
preparations were of no help. Finally the patient's daughter took her to an ENT specialist. And
the diagnosis was . . . a Foreign Body was removed from her ear. And the Foreign body was . . .
a cough drop?
Our four-legged friends really do know . . . One of our families had a Pekinese dog named "Teeka", who never had gotten along with the patient until he got sick. Teeka's behavior mirrored the patient's condition; if Robert had a good day, so did Teeka. If Robert had a bad day, so did Teeka. When I visited on 4/20 AM, Teeka sat behind my car, not wanting me to leave. (The patient's daughter had to pick her up.) When the on-call nurse visited that night, prior to Robert's death, Teeka barked at her and tried to bite her, which this dog has never done to any hospice staff member.
Today one of our nurses visited a patient who is very thin and wears overalls. The top pocket of the overall is very large, and because of his emaciated nature, hangs down over his waistline. As the nurse was listening to his chest, she heard a "Tick, Tick" like a watch. She continued to listen for a minute, then realized: This patient carries a pocket watch in his front bib pocket of his overalls! She shared her thoughts with the family and all of them had a good laugh.
One (or is that many?) of our patients is very independent. For several months the HHA has been trying to get her to allow her to help with bathing and shampoo. Finally the patient shared her concern: "I just don't know how both of us can get into the shower at one time." After being reassured by the HHA that this would not be necessary, the HHA was able to help her with her bath and shampoo.
Little things mean a lot . . . Our patient had been in bed most of the time for the past month. It was almost July 4th. The volunteers had made some cute flags out of cross stitch that were magnetized. The patient asked to be lifted out of bed, put in her wheel chair and rolled to the kitchen so that she could put the flag on her refrigerator. We sometimes underestimate how much the "little things" will mean to the terminally ill.
One of our patients had died. The nurse was waiting with the PCG for the funeral home to come. The PCG was busying herself to avail her grief and was preparing boiled eggs for potato salad. As the nurse visited with her, the PCG turned, said "catch this" and threw an egg to the nurse. Unfortunately, this egg had not been boiled. Both the nurse and the PCG had a big laugh and will remember this for a long time.
Hospice Diary Story I was working on call on a Wednesday night and was asked to make a visit to a local area hospital. I was told the patient was yelling: "I want to die, I want to die, I want to die." The family was not dealing with the patient's condition and requested a chaplain. When I arrived, the family had made the decision to go home. I visited with the patient initially, read scripture, and said a prayer. At the conclusion of the visit I shared with the patient that he could go when he and God were ready. The patient was short of breath and only able to respond to "yes" and "no" questions. The patient responded in a very clear and precise statement like someone else's voice: "So you are giving me permission to let go?" I said, "Yes, I am giving you permission to go." He replied, "Thanks." I had chill bumps from the visit.
Some people will adapt to any situation . . . Joe W was an inpatient. His condition was declining and he was no longer able to eat much. Mrs. W, on the other hand, still had a marvelous appetite. So, she filled out his menus and ate his meals. She enjoyed the hospital food so much, she began to order extra portions. The doctor was a bit distressed by this turn of events, and thought he would remedy the situation by changing patient's diet from Regular to Pureed. Undaunted, Mrs. W ate the pureed meals, also!
Life goes on . . . One of my patients, Randy, was a man who was able to respond with facial expressions and a few sounds and words. After his great grandson, Cody, was born, his granddaughter brought Cody over to see him. She put Cody in bed next to Randy. Cody turned and smiled at Randy; Randy smiled back! Although Randy could not express his feelings in words, the expression of joy on his face said it all!!
More mysterious ways . . . Or . . . Heavenly Help in Time of Need In times of grief and loss we hope we can find strength, comfort and peace. I spoke with the sister of a patient who shared such an experience of strength and peace. A.B. (the patient) had been having a rough night battling seizures. The sister mentioned praying after A.B. had a severe seizure. Following the prayer, the sister felt a warm presence in the room. The only persons in the room were A.B. and her sister. The sister described the feeling as if there were angels in the room with her, supporting her and A.B. The sister gave verbal permission to the patient to go on and be with their mother in heaven. The sister mentioned how there will be a great reunion taking place and how wonderful it will be for the patient to go ahead and go on. The patient at that time had a peaceful look on her face unlike any she had had for a long time. The patient was able to verbalize the word, "Mama" and then she died.
A slip of the tongue . . . The minister at a funeral of one of our young patients meant to say that Wendy did not want an open casket service. Instead he noted that she did not want "an open cactus" service.
How many people do you know who are chronically late to everything? Here's a story about a man who was late to his own funeral . . .
What's in a name? . . .Our first Director of Volunteers had a patient at one of our contract nursing homes. He suggested that we really needed to charge our company's name, because, after all, he said, "Hospice" sounded an awful lot like "horse piss"!
Miss Ruby . . . One of our patients is a confused, very head-strong patient I call Miss Ruby. Miss Ruby is blind and very hard of hearing. She recognizes everyone who sees her by their voices. One Wednesday, I visited Miss Ruby at the same time HHA Charlene was visiting. The PCG said Miss Ruby was in a wonderful mood and had been cheerful all morning. As soon as Charlene spoke to Miss Ruby, she became very agitated, saying she had already had a bath and did not want another one. The PCG verbalized that Miss Ruby had her face and hands washed after breakfast and that was all.
I am "Miss Ruby's" caregiver. Ruby is Ruby--No one like her. No amount of pills change her personality. I admire her spirit and strong will. She is very hard to handle. Without the help of good and wonderful people, I could not do it alone. I thank God for my family, Dr. C., and Hospice
One of our nurses went to visit a patient who was disturbed about all the people talking around her. "Can't you see I'm dying? . . . Sh. . . Sh . . . ," she said. Her daughter replied, "Well, you'll have a lot of time for quiet when you die."
How do you spell relief? . . . Then there was the time one of our nurses called the pharmacist to check on the spelling of a generic drug, which always seem to be a challenge to spell. "Spell generic Synthyroid," she asked the pharmacist. Dale (the pharmacist) replied, "G-E-N-E-R-I-C S-Y-N-T-H-Y-R-O-I-D".
If it could go wrong . . . Most of the time our visits to tend people at the time of death go smoothly. This is a story that ended well, but it was bumpy all along the way. Just about anything that could go wrong, did go wrong.
Getting to know Granny . . . When I first started to work for hospiceI had to float from one nursing home to another and I filled in for others when then went on vacation. I didn't really get to know the patients too well before I had to give them their showers. One of the patients we all call "Granny" didn't want to take a shower, so I asked the aide that work there if she always refused. She said she did, so we finally talked her into taking a shower.
I have a patient that is unable to speak clearly, but today I was able to get him to speak my name, Anna. He smiled really big and it made me feel so good, knowing that he can understand me and that he spoke to me. I turned him so he could see out the window. I asked him if he liked that pretty sunshine outside, and he said, "Yes" and again smiled so big. I told him about my two daughters and asked him if he would like to meet them. He nodded "yes" and his face lit up with delight. I hope to bring them to see him real soon. It's days like today that make what I do so rewarding and worthwhile.
What did he say? . . . The widow of one of my patients told me this story: As her husband's condition declined, but before he became a hospice patient, she and her son-in-law took him to the doctor "to find out what was wrong". Marion (the patient) began talking, and he made very little sense in what he was saying.
Patient autonomy . . . The same woman told me another story about Marion. He had a very dry wit. After he became a hospice patient, he became totally bedfast and dependent on her for all his care. He was frequently incontinent, and as he was not a small man, getting him turned and changed was frequently a challenge. She had managed to get him cleaned up on one side, and the new diaper under him. He was lying on his back "in all his glory" as she put it, and she told him that he had to turn one more time. He looked right at her and said, "I don't gotta do anything!" (Yes, eventually, she did convince him to turn, just that one more time!)