 |
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
 |
|
|
|
|
|
|
|
Links |
|
|
|
|
|
|
|
|
|
 |
|
|
|
I have carefully chosen some of the web sites that I have found very useful. |
|
|
| The following site has information on Viral Myocarditis. In brief Joe contracted a virus which I can not have come into contact with us he was not getting any immunity from me despite being breastfed. In its rareist forms the heart muscles become inflamed causing Heart Failure. |
|
|
| For more info visit - http://www.entourages.com/angels/links.htm |
|
|
| The next sites contain information about the condition Hypoplastic Left Heart. The consultant felt quiet sure that Joe had an underlying genetic heart disorder due to the symptoms that he had and the failiure to respond to treatment. The only way the condition could have been diagnosed without doubt would have been by Post Morton but we declined this option for personal reasons. |
|
|
| British Heart Foundation - http://www.bhf.org.uk/ |
|
|
| CRY - http://www.cry.dircon.co.uk |
|
|
|
Left Heart Matters |
|
|
| Childrens Heart Fed - http://www.children-heart-fed.org.uk |
|
|
|
HLHS - http://www.pavillion.co.uk/hlhs |
|
|
| Congentital Heart Defects site offers some very useful information and is very user friendly. Definately worth a visit. |
|
|
|
CongenitalHeartDefects |
|
|
| Next is web sites who offer support to parents, Sands support mothers of babies lost to Stillbirth and Neonatal Death. I am going to attend my first group on 11th June 2002. My Parents are Survivors are a wonderful web site support network that I found by accident. I have found great comfort from browsing the site and they created a page for Joe on my behalf. |
|
|
| Sands - http://www.uk-sands.org |
|
|
| My Parents are Survivors - http://www.myparentsaresurvivors.com |
|
|
| The following link will take you to a selection of beautiful poetry written by a beautiful lady I have met at Guiding Light. |
|
|
|
Touch Heart Poems. |
|
|
|
I have found a wonderful caring community of poeple at a site called Spirit Journey ( Guiding Light ). If you are interested in spiritual matters or want to know more you won't be disappointed. |
|
|
|
Guiding Light |
|
|
|
This link is for fun. Phoneimage has loads of screensaver wallpapers for your mobile phone. You can even upload your own pictures and turn them into mobile phone wallpaper. I have a Picture of Joe as my wallpaper thanks to this site. I paid �3.80 via paypal and that gave me 50credits to download 50 images eithr to my own phone or to send to a friends phone as a gift. |
|
|
| PHONE IMAGE |
|
|
|
I hope these links can be of some use to you. |
|
|
|
HOME |
|
|
|
|
|
|
|
|
|