- You can pray for John Hudson, his doctors and his other health care providers and all the researchers looking for a cure.
- You can ask to be added to the "Bath Brigade." These are volunteers who help with John Hudson's daily dressing change and bath.
- You can help spread the word about EB to your friends, family and doctors. The Dilgens have "EB Packets" which they would be glad to give you to forward to others.
- You can wear your EB bracelet, put an EB magnet on your car, or help to sell them. All proceeds will go to research for a cure!
- You can join the New York DebRA Support Group, which Faye now leads to help provide support to the other families in the Tri-state area with EB.
To get involved, contact Faye at [email protected].
- We never stand taller than when we kneel to help a child... -
