UPDATE 3-10-2000
Well hi again everyone!
We spoke to UC today and they are trying to get everything arranged to start on Monday the 20th.If everything work's out as planned ,it will go like this.......
Monday the 20th, we arrive and Jenna has a dental appointment to see what's going on with her teeth.They don't seem to be able to cut through her gum's.They tell us that it is typical "Hurler's", the fact that everything is thicker mean's that her gum's are thicker, therefore making it hard for her teeth to come through.We have heard of some kid's who had to have their gum's cut to allow the teeth to come through,let's hope not! Then in the afternoon she has an appointment in "prepare" which is where we went before her tube surgery also.They just check her out and see if she is healthy enough for surgery and check her vital's which is alway's fun with Jenna because she is far from compliant when it comes to having a Dr. come near her.Last week was the first time they ever got Jenna's blood pressure because she freak's out so bad they can't get a reading! Humm... I wonder where she get's that red headed temper??????Then on Monday the 21st, she goes in and has her broviac line put in.Then that afternoon we go in again for the MRI. Wow! Thing's are getting very close and we are getting quite tense around here.We are finding it hard to get a good night's sleep already. Well that's the plan. I will let you know if anything change's.
Take care everyone!
Love,
The Watson's