DAY
+57
JUNE~8~2000
Well hi there! I didn't think I would have much to report because Jenna wasn't scheduled to go in to clinic for 2 more weeks,but we ended up going today anyway.Yesterday she started to develop a rash like she had in the hospital and it was worse today so they had me bring her in.Well they think it is GVHD so they put her on a high dose of Prednisone.She was on 8 mg twice a day then they tapered her down and she was on 6 mg once a day, now they have her on 12 mg twice a day!That is alot!I cant imagine how this is going to make her feel,the low dose had her acting like a bear, if you remember right.They said before they had her on a preventitive dose now they are actually treating her for GVHD.Hopefully this will take care of the problem.She looks like she has a sunburn on her face and all over her body,it feels hot to the touch,but no fever.She is also teething really bad so she didn't sleep very well last night at all.Today she has been a happy little camper though.
I put her mask on her to take her in the clinic so I couldn't see her face but she was making smacking noises and leaning up to give me kisses through the mask,it was adorable!I just LOVE her!!Her personality is just too much,she cracks us up constantly!
Okay well i'll stop now.
I just want to say a huge congratulations to Leif,Caroline and baby Lucas Knies in Sweden,they just found a perfect 6/6 bone marrow match for little Lucas,HURRAY!!Good luck to you, our thoughts and prayers are with you all!
Well take care guys,lots of love,
Kristi,Randy,Lindsay & Jenna bean