June~1~2000
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Wow,I can hardly believe that Jenna is almost 2 months post transplant!Amazing!We have been home for 3 weeks already,time is just flying by!
We have some awesome news,Jennas enzyme level is in the normal range!!Thats what we've been waiting to hear!Those little enzymes have been working overtime to clear out all of the built up storage,and it's working.Jennas liver is normal her spleen is normal and her gums are starting to go dowm so those teeth that looked like they were only half way in are looking like they are all the way in.She is still having a hard time cutting the new ones but hopefully that will improve.We are still waiting for an orthapedic appointment to have her back accessed.Her rash is totally gone,she is looking very good.They started tapering her off of the prednisone so hopefully some of this puffiness will go down.
We got to see Romie and Shawna Perkins at clinic yesterday,he looks fantastic!!He is off of the cyclosporine and the Prednisone and he is just shrinking,he looks so much taller and his little face is coming back,those drugs just puff these little guys right up.Shawna will be having her baby at
the end of this month,it's great that they are home for all of this.
Well since I wrote last I turned into an old lady!Yes I turned 30!!
Randy bought me a new bike and a bike trailer for Jenna so we had a nice weekend bike riding,the trailer is great for Jenna because it's like a little bubble,so we can go to the park or the bike trails and she is perfectly protected,it does get kinda warm in there tho,so we have to go when its not too hot outside.
I guess that's about it for now!Take care everyone!
Lots of love,
Randy,Kristi,Lindsay & Jenna