DAY+
26
May~7~2000
Hi all!Well Jenna had a much better day today!
Her blood pressure is finially leveling out!She had great pressure's all day without any Nifedipine.
She was happy and gigglie most of the day and then toward's the end of the day she kinda got mean.I'm tellin you ,it's either give her what she want's or watch out!!The Dr. keep's telling us that once they start lowering her prednisone level it will get alot better.She is still so sweet even when she is feeling mean you can tell she doesn't know why she is doing it,she look's as shocked as we do!Craig Wigglesworth told us how Maddy would call the nurses over to her then smack them,well Jenna has been doing this too.The nurses are all onto her so they know to watch out!!They still love her too!
Randy has been home trying to get the house cleaned up and ready before Jenna get's there,hopefully Thursday or Friday!We are still waiting to see the engraftment study come back.Her count's were the same as yesterday,so that's great!
We have a very huge THANK YOU to all of our friend's
and family who donated money and time to getting Jenna's lawn in for her!Oh my gosh you guy's are soooo sweet!Now she will have somewhere to play when she get's home.Since she is still going to have to be isolated from other children for 9-12 month's,the park is not an option.We can't wait to get her home to play on it.Randy started the project last fall before Jenna was diagnosed and we never got around to finishing it.Also the huge mound of dirt that was in her play yard was not a good thing because fungis lives in dirt and that is what is the most dangerous for Jenna right now.We are so thankful to all of you guy's, you are really the BEST!!* I am so excited to get home and see it!*=)
Another good note is Romie may be going home soon also!They don't have a definite date but possibly in the next couple of week's!That will be so great for all of them to get settled at home before the new baby comes!He look's wonderful!
Okay well it's getting late and Jenna is finially sleeping so i'll relax.It is alot harder here when Randy is gone.I am appreciating all of his help right now!
Lot's of Love,
Kristi,Randy & Jenna