Let's Fight Cystic Fibrosis Together !

Mike needs to raise money for a vest that will make life more bearable as he waits for a lung transplant. The particulars are listed below in an email from Mike. If you can help, even with the smallest donation... I plead you to... hell .. I'm begging you to. If you want to find out more information on how to make a donation, contact me at [email protected]

CLICK HERE TO SEE THE DONATIONS THAT HAVE BEEN MADE SO FAR

Events

Creative Solutions

Bottle Drive

May 21st - 25th

Karaoke for a Cause
This is a letter from Mike Nadon, (Please note that the Chocolate Fest has already passed and was a huge success, but there is still more that needs to be done)

March 25 01

American Biosystems, Inc.'s "the Vest" is a piece of medical equipment that uses high frequency chest wall oscillation to shake up secretions in the lungs and move them to larger airways where they are easily cleared through deep breathing and coughing. The current way we do Chest Physio Therapy (CPT) and Vibrations is to lay in different positions so that gravity can help move secretions while a parent, loved one or friend does percussions by either hand clapping or use of a mechanical percussor. It can be very uncomfortable and takes a lot of effort and energy from both caregiver and patient. The vest can be strapped on and the therapy takes as much time (15 - 20 minutes) to do the entire lungs, as it would take to do just one or two lobes of the lungs with manual CPT. The patient can also do their inhalation therapy while using the vest, which is an additional savings of time. The Vest has also been scientifically proven to be more effective than traditional therapy, and has actually slowed the decline of some patient's condition and improved the lung functions (FEV1) in others. My health has seen a decline over the years and I am currently being treated in London in preparation for being listed for a double lung transplant in London, or Toronto if my doctor thinks that would be a better option due to the # of lungs they do in TO. The Vest will help me to stabilize my lungs and allow me to be in good health if/when the time comes to get new lungs. However, my main concern is this; the fact is there is medical equipment available that has shown improved health benefit through not only improvements in lung functions, but also in terms of quality of life for those afflicted with Cystic Fibrosis. There are no alternatives currently on the market that allow an individual to do his own chest percussion and vibrations, which are necessary to do 3-4 times per day to prevent infections from overwhelming the lungs and blood. A person with CF must rely totally on friends and relatives to provide this type of therapy on a daily basis unless they are hospitalized. This means CF people must choose to be either totally dependant on others and maintain their health, or gain some independence and try to manage on their own. This results in non-compliance with treatment required to manage your condition properly, and is always accompanied by a deterioration of your condition. The frustrating part is that the equipment is readily made available in the United States to CF individuals and is covered through both Medicade and private insurance carriers. They recognize the value of being individually responsible and independent and also recognize the long term savings that can be found through less hospital visits, and healthier CF Patients. In Canada, Ontario's Assistive Devices Program will not cover the equipment even though it is a program developed to help "give people independence and control over their lives." Private Insurance is an option but I have to apply for approval since it is not a piece of equipment that has been approved by my carrier. That process is likely to be lengthy and without any guarantees.

These are the ways you can offer your support:

1. Making and donating an item made from chocolate for our Chocolate Festival

2. Coming to our Chocolate Festival and purchasing some goodies

3. Writing a letter to your Member of Parliament expressing your wish to have your tax dollars used to fund this type of equipment to help enrich and lengthen the lives of those with CF.

4. Writing or sending Mike {via his mom}a card with words of support and encouragement

5. Making a financial contribution to help offset the costs associated with a down payment for a physiotherapy vest, and travel expenses incurred for treatment in London {possibly Toronto} (assessment for transplant).

 

Here is the information if you would like to donate some money towards this very worthy cause... and Thank you!

 

The friends, coworkers and family of Mike Nadon, a young man with cystic fibrosis, are raising funds to assist with the purchase of a therapeutic vest and upcoming expenses related to a lung transplant. The Rotary Club of Windsor [1918] is accepting donations towards this and will issue charitable receipts. Anyone wishing to make a donation may do so to:

The Rotary Club of Windsor Foundation Fund
c/o Bob Fields, Treasurer
787 Ouellette Avenue
Windsor, Ontario N9A 4J4

 
Together we can beat this.... stay strong Mike... we're all thinking of you..

 

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