february2001

Jason had his pre-op visit on February 7. Everything is all set for Friday the 9th.

February 9- Jason has had his second surgery , the Bi-directional Glenn, where they connect the vein carrying blood from the upper third of the body directly to the artery going to the lungs. This will reduce the load on his heart and bring up his oxygen saturations. As usual, post-op course was hectic and not entiirely smooth, but nothing major.
February 10- Jason is off the ventilator. He is still pretty sedated.
February 12- Slow feeds, 5 cc/hour
February 13- Jason is off oxygen. Continuous feeds are on at 25cc/hour. Jason is being visited by Dr. Rossi (GI), OT and Speech.
February 14- Echocardiogram is normal. Starting bolus feeds. The developmental doc and feeding clinic nurse were around today. Jason is watching lots of Bear in the Big Blue House. Mom and dad had an anniversary dinner from Dinosaur Barbecue, the best ribs in town, courtesy of Miya and Papa. We are heading home tomorrow.
February 15-We are home. It feels great. They have added Magnesium to his meds, but have stopped potassium and Vitamin D.
February 19- Post-op clinic with blood work.
February 22- the Glenn seems to agree with Jason. Lots of smiling, laughing,giggling, kissing, eating... He is getting a lot better at grabbing objects and using two hands

February 27- Jason has not been feeling well and has had up and down fevers. We had cardiology check him out and do echo. Everything s ok.
February 28-Strong ED due to high temps and irritibility. Double Ear Infection, start Amoxicillin.
March 2 REturn of fever and crankiness. Switch to Augmentin
March 6 - clear ears - yeah
March 11- Jason is doing really well. He is reaching for and playing with toys, holds books and constantly has his hands in his mouth. He shared an artichoke for breakfast with mom.
March17- Jason's head and trunk control are really developing and he has this new scream.
March 19- feeding clinic- ear infection, start Zythromax
March 23- cardiology clinic- EKG with alternating beat- sending out to specialist Find out it's a conduction delay that is trying to catch up. rare , but seen before.