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Living With Rett Syndrome |
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Vanessa Lynn LeBreton |
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This is a page Grandma made for all the little girls out there living each day with Rett Syndrome. Only they know what I live with day after day. I am confined to my wheelchair. I cannot speak, walk, talk nor do I have any motor skills. They were all lost with this dissorder. I live with epilepsy, and have no use of my hands. I can only communicate with my eyes. I will be having an operation in January to have a feeding tube placed in my belly and will be fed that way. I am forever hand mouthing, which means I always have my hands in my mouth. I suck in the air all the time, which is no good for me, but I can't stop doing it. I have cronic constipation and lots of colic..ouch, does that ever hurt. |
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I'm just a wee little girl. |
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We are just beautiful little girls born with this neurological dissorder. They don't call us "Silent Angel" for nothing...it is because we cannot talk, but are little angels. Grandma says that she thinks that we understand, and that its everyone else that do not understand us. If we could talk, we would have so much to say. We love to laugh. And most of all, we need everyones love and support to get us through each day. So if you have come to visit my web page, please support the Rett Syndrome Association, you can visit their web site. The link to the site is posted on this page, and while in there, you can visit "Other Rett Angels" just like me. While in the RS site, you will see Julia Roberts, that narrated the movie "Silent Angels" which you can buy....it is well worth it because it tells all about the dissorder and answers a lot of questions I am sure you have. It will surely be worth the visit. |
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An Important Link For Us Girls...Please click below. |
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Rett Syndrome Association |
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