To those of you wondering how Rachael's illness has  affected the rest of us. Our son was asked to write a    poem about himself at school. This is what he wrote
                             I am Alec
 
            I am Alec
            I wonder if my sister Rachael's disease will go away
            I hear Rachael from the past
            I see Rachael playing with me
            I want Rachael's encephalomyelitis to go vanish
            I am Alec
            I pretend Rachael is in front of me
            I feel her love in my heart
            I touch her baby soft skin
            I worry she will never get better
            I cry that she got sick
            I am Alec
            I understand her love for me
            I say "you're a silly bean" to her
            I dream about Rachael having adventures with me
            I try to do my best to make her better
            I hope we can play again
            I am Alec 
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