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Células madre, celulas tallo. |
Aqui ponemos unos comentarios al respecto recogidos de un foro en ingles:
So i heard some more good news the other day. I went to go visit a neuro psych specialist. Well it seems like my pupils are not dilating properly anymore. Blindness can come anytime he told me. Wooahhh how blessed i have been with ets.lol. All my senses are being taken away. Obviously i've had eyechecks before ets and never had this problem. I wonder i wonder... how the super duper ets doctor can blooper..... tsk tsk....
Archangel
Darkprince
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Just what you needed, another thing to worry about and a very serious worry it has to be too. I am so sorry that you have to go through this.
I'll never forget the day I was told the same thing--that I might go blind and it might happen very quickly. I already knew that I had macular degeneration which is where you can lose the central part of your vision. It was less than a month after my husband died that I got a call from my opthamologist that besides having the macular, I also had retinal pigmotosa (sp?) which could move very quickly and I had to see a retinal specialist that very day, couldn't even wait another day. Well, it's almost ten years later and I'm still able to see, so don't give up hope. They're not always right with their diagnosis.
Hang in there!!
Carole
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had worn contacts for twenty years before my ETS. Then after ETS the problems with them started. I just couldn't wear them anymore. I know it was the loss of much tearing, and I knew the reason. Perhaps there's more wrong with them. I didn't tell the optometrist I had ETS. I'm tired of explaining what a fool I was. No doctors know what it is or does, but we as patients know. I went back to glasses. The reason I liked contacts was that sweat didn't interfere with them when I worked out. Something I used to enjoy very much, my escape. ETS also took that joy away.
Tim
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arch, hang in there. i'm sorry to hear your plight. just remember, lots of these doctors don't know what they are takling about anyway. please seek a second and third opinion before believeing this guy. i'd go straight to an eye dr. for ean evaluation. one dr. told me that medicine is basically based upon guess work and very little facts. keep the hope, see another dr.
tim- yes, i had worn contacts for 20 years, too. i never even felt them while wearing 'um. post ets, of course, my right eye is too dry to tolerate the script. maybe it's just the type of lens i was wearing the created the problem, but i don't think so in my special case.
i do wear glasses now, which is okay, but i'd rather go framelessly back to the contacts.
one side effect i'm experiencing now is watery eyes after being awake for about 7 hours. my eyes just tear up and it's annoying as hell. does anyone else have this symptom and would anyone have a qlue as to why there are so teary post ets?
on a different note, i spoke with a neuroscientist about stem cell applications for fixing our sym. chain defects. he said that it makes total sence but that any available technology would be on the 5+ year horizon. let's hope that either we don't get nuked by the so called triangle of evil baby bush is bickering with and scientific research with stem cells isn't shut down by his frkn admin. before we will benefit from stem cell cures.
this dr. told me that science has already developed all kinds of cures for nerve and tissue related defects in the laboratory using stem cells and that new discoveries are being made daily.
arch & tim, i hope that you will benefit from this exciting science someday and that your wait isn't, too, long. i'll be in that line, too.
keep the faith,
benson
btw, join the christopher reeve foundation to keep informed on the latest breaking news involving nerve regeneration and stem cell research in the medical field. this foundation has the money and power to make positive things happen. and, most importantly, it's comprised of a global network of scientists that will test their breakthroughs before they implement their discoveries. i will be writing to them about our plight today. if anyone (everyone of us) would write to the crf, then the chances of them applying their breakthroughs to post-etsers is that much closer. we need to get our message out that we're looking for help.
write today. stem cell research need not go away. and we may be truely cured someday.
hey hey, ho ho, stem cells have got to stay.
hey hey, ho ho, stem cells have got to stay.
benson
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Is this blindness related to ETS? I have so many eye problems now i feel as though im going to go blind when im older. im 23 now. I wake up in the morning and my eyes are so puffed, i see blurry for a while. They are bloodshot all the time, sometimes with big red clusters on the whites in areas. They are constantly dry and stinging. Walking through bright stores in dry winter is the worst, i can barely keep them open. Does this sound like stuff that could cause me to go blind? What a nightmare this all is. A life long nightmare. My whole face is swollen and burning as i write this and its only noon.
- By the way i have 20/20 vision and had no eye probs pre ETS
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Archangel, I am due to seem my optician soon as a ollow up on my horners, which includes improper dilation of th epupil. Did you chap follow the argument through as to why improper dilation could cause blindness please ?
I don't know much about this, but horners means the pupil is slow to dilate in darkness. To me this does not sound dangerous as you are not letting too much light in. If it is slow to shrink in bright light, then this would sound dangerous. Again, I know much about this
Posibles Efectos Secundarios de la operación ETS