Shela is twelve years old and full of life and love. She suffers from a disease known as cystinosis. This is an inherited disease which affects the kidneys. She takes 31 pills a day and sees her specialist every six months. She receives the growth hormone through injection twice a month. Although she has been through horrific ordeals that most people never have to endure, you could never tell by the smile this little trooper wears on her face. The smile that I get up in the morning everday just to see. She lives with her father, sister, and I and ,well, it must be said she is our baby.
Since she was a baby she has had a g-tube in her belly, which in a way, became a security blanket for her. She received all of her medications through this tube until just recently when she began taking the pills. She is looking forward to the removal of her tube, but at the same time she is very scared. Shela also has developed rickets and is being treated for that as well.
Now entering her sixth grade year of school, our baby is growing up and doing great. She even has a boyfriend now. We thank God every day for Shela and for Valarie. We would be lost with out them. God has many miracles and Shela is one of them. When she was a year old she became very sick and the doctor told her parents that she would die. But she proved them wrong and came back to brighten our days. We just want to say we love you both more than anything in the world.
Love, Daddy and Heather |
