Edition #7 ~ March 2003
Hearts Of Hope United
Hearts Of Hope United
Featured In This Newsletter
~Dr. Mani Sivasubramanian's NEW Fontan Site
~March Feature Child
~Heart Defect Review
~Our Journey to Acceptance
~Feature Quilt Block
~CHD Quilt Project Fabric Request
~Feature Receipe(s)
~Feature Craft
Press Release from Dr. Mani Sivasubramanian
The report on early and late outcome after the Fontan repair of complex heart birth defects like Tricuspid Atresia, Pulmonary Atresia, Hypoplastic Left Heart Syndrome (HLHS) and Single Ventricle conditions answers the most common questions that parents ask about their child's treatment - in a manner they can actually understand.
The unique operation performed first by Dr.Francis Fontan in 1968 is now done routinely for various complex birth defects of the heart and is today one of the most common complex heart operations in children.
Dr.Mani's Fontan report provides a taste of the uniquely readable explanation of the surgical outcome, written by a specialist children heart surgeon.
While most doctors enjoy speaking a highly technical language, using scary medical jargon to explain things to anxious and worried parents, Dr.Mani believes that reports must explain, writing must be read and understood, and teaching must really educate. That's why his Fontan Report is written in a style that is simple and easy to understand.
"I did this because I feel parents were not being involved enough in treatment planning and decision making about a person very very important to them - their child" says Dr.Mani.
The reason is that parents don't understand the technical details and long-term implications of such a complex operation. Hours spent researching medical journals, visiting libraries, surfing the internet, and trying to take a crash course in interpreting medical literature leaves many stressed-out parents confused and dazed.
Dr.Mani's Fontan Report finds the answer to this problem. It covers all three categories of the Fontan operation
* early and late survival
* quality of life issues and
* complications of a Fontan procedure
The recent, accurate and reliable information presented in the report applies to all conditions for which a Fontan operation is done - tricuspid atresia, HLHS, single ventricle and others.
"Dr.Mani presented the data in an easy to understand manner that allowed my wife too to read the report on her own" says John Penn, whose daughter, Peggy, underwent a Fontan operation. And that, after all, is the purpose of this report.
The report is available from the Fontan Operation website at http://www.FontanOperation.com
AFTER THE FONTAN - How Fontan survivors fare in the long term www.FontanOperation.com/fontanreport.htm
For more details, contact Dr.Mani ([email protected]) or visit: www.FontanOperation.com
Put a Banner on Your Web Site Today!
March 2003 ~ Feature Child ~
Be sure to sign the guest book too!
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Picture from American Heart Association
Normal Heart
~*~*~Our Journey to Acceptance~*~*~
~ Featured Quilt Block ~
The Congential Heart Defect Awareness Passionately Promoting CHD Awareness One Stitch at a Time
The CHD Awareness Quilt Project, Inc. is always in need of fabrics to continue our volunteer work. We use 100% cotton fabric and we are always in need of any style of blue for our background. We also can use any childrens themes and are always looking for angel appliques in order to customize the blocks to the individual child. Childrens themes only need 1/2 yard. Chris Mundt and Cathy Schweinberg are volunteers for the project and you can privately email them for an address to send these fabrics.
You can also go to the CHD Quilt Project Page to see if there are any specific fabrics they are searching for.
1 cup (2 sticks) butter or margarine, softened
Directions:
1. Beat butter, sugar, egg and vanilla in large bowl until well blended. Stir together flour, cocoa, baking powder and salt; gradually add to butter mixture, beating until well blended. Divide dough in half; place each half on separate sheet of wax paper.
2. Shape each half into log with squared sides, about 7 inches long and 2-1/4 inches wide. Wrap each log in wax paper or plastic wrap. Refrigerate until firm, at least 8 hours.
3. Heat oven to 325°F. Cut logs into 3/8-inch thick slices. Place onto ungreased cookie sheet.
4. Bake 15 minutes or until set. Cool slightly; remove from cookie sheet to wire rack. Cool completely. Remove wrappers from chocolate pieces.
5. Prepare QUICK COOKIE GLAZE; drizzle over top of cookies. Immediately place a chocolate piece on each cookie. About 3 dozen cookies.
QUICK COOKIE GLAZE: Stir together 3/4 cup powdered sugar, 3 to 4 teaspoons milk, 1/4 teaspoon vanilla extract and 3 or 4 drops green food color, if desired, in small bowl until of drizzling consistency.
Lucky Stones
You don't have to be Irish to have fun making these!
You need:
Stones
Instructions:
A Great Parenting Site Who
Quilt Project, Inc.
Blarney Stone-Kissed Cookies
1 cup sugar
1 egg
1 teaspoon vanilla extract
1-3/4 cups all-purpose flour
1/2 cup HERSHEY'S Cocoa
1-1/2 teaspoons baking powder
1/2 teaspoon salt
HERSHEY'S Kisses® Chocolates or HERSHEY'S HUGS Chocolates
QUICK COOKIE GLAZE (recipe follows)
Thanks to: HERSHEY'S Kisses and Crafts
This idea comes from Kim Tilley of Frugal-Moms.com
And
Making Friends.Com
Glitter
Tacky Glue
Gemstones
Wash and dry your stones. Coat with tacky glue.
Sprinkle with glitter and glue on rhinestones.
Feel Free to email us with any suggestions or comments
Supports Hearts of Hope United