Books On Living with CHD's
Indicates a Recommended Book
A Hospital Story:An Open Family Book for Parents and Children Together (An Open Family Book)
Sara Bonnett Stein
Brothers, Sisters, and Special Needs:
Information and Activities for Helping Young Siblings of
Children with Chronic Illnesses and Developmental Disabilities
Debra J. Lobato, Paul H. Brookes ~ ISBN#1-55766-043-3
Cardiac Kids
The Dayton Area Heart and Cancer Association and Vicci Elder ~ ISBN#1886165114
Coping with Your Child's Chronic Illness
Alesia T. Barrett Singer ~ ISBN#1885003145
Chronic Kids, Constant Hope:
Help and Encouragement for Parents of Children With Chronic Conditions
Elizabeth Hoekstra, Mary Bradford
Easy For You To Say: Q & A's For Teens Living With Chronic Illness And Disability
Miriam Kaufman ~ ISBN#1550136194
Heart Defects in Children; What Every Parent Should Know
Cheryl Wild ~ ISBN#0471347353
Heart of a Child, The: What Families Need to Know about Heart Disorders in Children
Catherine A. Neill, Edward B. Clark, Carleen Clark ~ ISBN#0801842344
Heart of a Mother, The
Anna Marie Jaworski ~ ISBN#0965250814
How Will They Get That Heart down Your Throat?: A Child's View of Transplants
Karen A. Walton, Allison P. Peterson ~ ISBN#1880664992
Matty's Heart:
A Child's and Parent's Guide to Open Heart Surgery
Jean Clabough, R.N. ~ ISBN#0-963-8662-3-0
My Brother Needs an Operation
Anna Marie Jaworski ~ ISBN#0965250822
Parent's Guide to Children's Congenital Heart Defects, The:
"What They Are, How to Treat Them, How to Cope with Them"
Gerri Freid Kramer ~ ISBN#0609807757
Sillwee Wobbert ~ The Happy Heart Kid
ISBN#0970486111
http://www.sillweewobbert.com/index.htm
Special Kids Need Special Parents:
A Resource for Parents of Children With Special Needs
Judith Loseff Lavin
Surgery for Congenital Heart Defects
J. Stark, M. De Leval, Michael Courtney ~ ISBN#0721636489
Teens Face to Face with Chronic Illness
Suzanne Levert ~ ISBN#0671745417
When I Die, Will I Get Better?
Joeri Breebaart, Piet Breebaart
Reading level: Ages 4-8
When Molly Was In The Hospital:
A Book for Brothers and Sisters of Hospitalized Children
Debbie Duncan ~ ISBN#1-877810-44-4
When Will I Feel Better?:
Understanding Chronic Illness (Comforting Little Hearts Series)
Robin Prince Monroe
When Your Child Has a Chronic Illness
Lynn Sonberg ~ ISBN#0440216672
You Can Go On: A Family Guide to Coping with Chronic Illness
Janet R. Maurer ~ ISBN#0201093642
The CHD Webring
Congenital Heart Disease Book Store
They have an extensive list of specific Heart Defect Books
Kids With Heart
Book Store
They have lots of different titles available through them
WoodbineHouse
Publishers of the Special-Needs Collection
Don't forget another great source,
your local Children's Hospital Family Resource Library.
If you have read one of these and would recommend
it OR you would like to recommend a book that isn't listed here:
Please email us
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