3-year-old keeps her smile in
battle with rare cancer
By KIESHA JENKINS Staff Writer
CHRIS CROOK
Hannah Moody does crafts with her sister
Allie, 5 in their Adamsville home. Hannah, 3, has a rare form
of kidney cancer, but recent x-rays show great
improvement.
Hannah Moody
ADAMSVILLE -- Hannah Moody's day starts out differently from most
3-year-olds. She wakes up between 7 and 8 a.m., but rather than
making the tough decision of whether to eat Froot Loops or Lucky
Charms for breakfast, she faces a morning of medicine and machines.
In September, Hannah was diagnosed with Wilms' Tumor Stage 4
Difuse Anaplasis, a rare form of kidney cancer which begins to form
in a fetus. After the diagnosis, Hannah had surgery to install a
broviac catheter and had her infected kidney removed. Unfortunately,
before the kidney could be removed, the cancer had spread through
Hannah's bloodstream and infected her lungs. Doctors gave her a 40
percent chance of surviving for 5 or more years.
Hannah has undergone a lot since the diagnosis, including
multiple trips to the hospital for infections in her catheter, a
viral infection, the flu, an ear infection, Shingles, a swollen
liver and now, chemotherapy. She even spent Christmas Day in
Children's Hospital in Columbus, confined in isolation with only her
parents and doctors allowed in.
"The nurse practicioner brought her a Christmas tree," Hannah's
mother Connie Moody said. "That was nice. They brought her gifts
too. And (someone dressed as) Santa Claus came around and stood
outside the door and waved."
Hannah's doing better, but still has a long road in front of her.
Through all the adversity she tries hard to be a normal 3-year-old.
In the mornings, Hannah takes two medications for mouth care as
the chemotherapy causes sores in her mouth and throat. She also
takes the first of three antibiotics which are given to her through
the catheter in her chest.
She doesn't eat, except for a few nibbles here and there. She
gets her calories and nutrition through a machine called the Total
Parental Nutrition. The machine contains a fluid similar to milk,
which is pumped through a tube connected to her catheter.
Hannah's mother Connie stays home to care for her youngest
daughter while her two other children, Steven, 13, and Allie, 5, go
to school and her husband, Brian goes to work.
During the day, Hannah is confined to indoor sit-down activities.
"She can't be too active," Connie said. "She can when she feels
good and is healthy, but this week, her platelets are low and she
can't do a lot because she could get hurt and bleed to death."
Connie said her daughter is good with her hands and especially
enjoys doing arts and crafts.
"Play-Doh is her favorite toy," Connie said.
Hannah loves animals, especially the family cat Mittens and
Chihuahua-terrier mix Jake who is kept outdoors.
"(The doctors) let us keep the cat in the house, but at night the
cat has to be in the basement because it tries to eat her (Total
Parental Nutrition medication)."
Nighttime is when Hannah is at her best, as her entire family is
at home.
"We have to keep her calm," Connie said. "When she gets around
the other kids she gets excited, so we try to do calm activities."
The family watches television, and Allie and Hannah will sit at
the computer and play games on the Barbie Web site.
"Hannah tells Allie what she wants to do, and Allie will move the
mouse around," Connie said.
After four months of hardship and hospital trips, the Moodys were
given some good news at the beginning of January. A CAT scan
revealed there were no cancer cells in Hannah's abdominal area, and
her lungs had improved 95 percent.
"The CAT scan showed five smudges on her left lung and one or two
on the right," Connie said. "And the doctors said that may just be
scar tissue."
While she was in the hospital, Hannah did not undergo
chemotherapy. Now that she is healthy and over her infections, the
chemo treatments will begin again.
"She has 33 more weeks of treatment," Connie said. "And at the
end of the treatment they'll do another CAT scan. If the smudges (on
her lungs) are still there, they'll do a lung biopsy."
Despite the good news, the doctors have kept Hannah's prognosis
the same, but Connie is looking on the bright side of things.
"(Hannah's) a fighter, she's really hanging in there," Connie
said. "She's going to make it all the way."
Connie took advantage of her oldest children's day off from
school on Martin Luther King Jr. Day and took her three children to
the River Deli on Wayne Avenue in Zanesville for lunch. Hannah
trotted around the restaurant delighting the employees and coyly
tried to slip away from her mother and into the kitchen.
"I want to help cook something," Hannah said.
As they were leaving, Hannah asked for a goodie and was rewarded
with a brownie. Although she's sick, she is not immune to the lure
of chocolate. She clutched the dessert to her chest and walked back
out into the dining room.
"I got a brownie," she told her mother.
"Yes, you did," Connie said.
"But you can't have any because I'm sick," Hannah explained.
Connie smiled and helped her daughter put on a white surgical
mask and pulled a hat down over the few wispy hairs Hannah has left.
Hannah may feel self-conscious about losing her hair, but she has
someone in the battle with her. Her father, Brian, shaved his head a
few weeks ago when Hannah began losing her hair.
"It's something he's going to continue to do until her hair comes
back," Connie said.
Hannah still has a long road to travel. Because she spent so much
time in the hospital, and will continue to undergo chemo treatments,
she has lost a lot of her strength.
"A physical therapist and an occupational therapist met with her
to assess what she might need," Connie said. "They came in and
worked with her in the hospital. They're doing different exercises
to get her strength back."
Hannah went back to Children's Hospital in Columbus Friday for
another round of chemotherapy. If everything goes well, she will be
able to come home on Wednesday. While Connie is in Columbus, Steven
and Allie will spend the time with Brian's father.
Connie said Steven and Allie have learned to cope with their
sister's illness.
"In the beginning, they were afraid to touch her," Connie said.
"My son was old enough to go on the computer and read about chemo
and the different drugs. He was afraid that by touching her, he
might get sick, but that's a myth."
Now, Steven helps care for Hannah on weekend mornings.
"She's emotional," Connie said of Hannah. "When she's around her
brother and sister, she's in a really good mood. Obviously, she
doesn't have as much energy as the other kids, but I think she's
doing really well."