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CAMR Urges Bush to Expand Access to ESC’s Monday, 11 August 2003
Washington, DC — Two years after the President's decision on whether or not to allow federal funding for embryonic stem cell research (August 9, 2001), scientists, patient groups, and universities agree that progress in the US is stalling due to the limited scope of the Administration's policy.
"Stem cell research may be the key to unlocking the mystery of ALS. While we are closer, I don't have years to wait for a cure, we must push the envelope now," said Andrew Knipe, who was diagnosed with ALS three years ago. ALS, more commonly known as Lou Gehrig's disease, attacks nerve cells and pathways in the brain and spinal cord. It is always fatal and the average life-expectancy for someone with the disease is two to five years from time of diagnosis. If successful, stem cell transplants could help grow new connections between nerves and muscles and help ALS patients regain motor function. "It's frustrating that as new data trickle out reinforcing the obvious potential of this important line of research, it's so apparent that we are only scratching the surface because of the extreme complications and limitations imposed by the Administration's policy. The combination of a restrictive policy and a lot of red tape continues to bar many of our best scientists from switching their research focus to this very important field," added Dr. Goldstein. "Our coalition has worked diligently with the Administration and the National Institutes of Health (NIH) to ensure that the President's policy be implemented to its fullest potential but the policy is just too restrictive. While the NIH should be applauded for developing the Stem Cell Registry, establishing high-quality training programs to encourage scientists to pursue the research, and its genuine good faith efforts, progress is just not moving fast enough. This policy must be expanded to allow research on stem cell lines derived after August 9, 2001," added Manganiello. About: The Coalition for the Advancement of Medical Research (CAMR), is comprised of US nationally-recognized patient organizations, universities, scientific societies, foundations, and individuals with life-threatening illnesses and disorders, advocating for the advancement of breakthrough research and technologies in regenerative medicine — including stem cell research and somatic cell nuclear transfer — in order to cure disease and alleviate suffering. For more information on CAMR, visit their website: http://www.camradvocacy.org. Source: Press release from CAMR, Progress on Stem Cell Research Stalling in U.S. Due to Current Administration Policy Two Years Post-Decision, Coalition for the Advancement of Medical Research Urges Administration to Expand Access (http://www.camradvocacy.org/fastaction/news.asp?id=648). |
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