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Resources and Online Support Groups |
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I cannot say enough about these two sites for medical information, research and providing forums to ask questions to the experts. A schedule is provided at MDA for regular chats concerning a variety of health related topics. |
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The United Mitochondrial Disease Foundation has been extremely beneficial in my case. They were able to provide necessary answers to help aid in surgery and prevent complications. |
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While watching the MDA Telethon, Labor Day Weekend 2003 I happened to see a gentleman named Elio Navarro. Elio has SMA (Spinal Muscular Atrophy), but lets nothing slow him down. He has an awesome website called You Will Never Walk Alone.com. It's a place to make new friendships and share the "I can" attitude. Check out his site below. |
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More links to come. Check back often! |
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