Autism Newsletter

May 2001 Vol. 5 # 5


Make sure you arrange to get your self (bring your kiddies!) to the Chicago CycleUSA Rally, Sunday May 20, 2001, Chicago Daley Plaza from 2:00 - 4:00 p.m. John Keating, a parent and police officer, will be cycling across the USA to raise funds for Autism Research and to Promote Autism Awareness on a national level. The trip will end at the ASA National Convention on July 19, 2001 in San Diego, CA after completing 44 stops along the way. Lets make a big media splash in Chicago by all showing up downtown May 20!

Volunteers are still needed for CycleUSA, in particular shadow riders to accompany Mr. Keating along parts of his route, and volunteers, mainly to man the phones on the 19th, the day before the rally, and to be useful worker bees at the rally on the 20th. The Cycle USA contacts and Co-Chairs in Illinois are Arlene Blaha and Marie Amenta. Arlene has asked that you please contact Marie for any OFFICIAL information or if you would like to help. Marie will then put you in contact with the appropriate coordinator.

Marie Amenta - Chicago Leg Co-Chair CycleUSA
[email protected]
(708)206-0379


Thanks to all of this month's contributing Newsletter Moms and Dads! Anybody with news to share, deadline is more or less the third Monday, monthly, for the next issue.
JFS
P.O. Box 5551
Elgin, IL 60121-5551


[email protected]

Ask to join the local AutismNews on-line list and get news, advice and info every day.

To subscribe to this snailmail version of AutismNews donate $15 for 12 issues, checks made out to "JFS". Extra donations to help send complimentary copies to other first-time readers appreciated.

This is not written for profit - then it would seem like WORK!!!!
 
 
 
All contents herein copyright 2001 by the Newsletter Mom. Freedom to recopy and share information fully granted as long as you credit the Autism Newsletter. Any typos present are simply the end result of letting a nine-year-old do my proofreading as his Cub Scout good deed of the day.

back to AutismNews.net
 

Contents for May 2001



Multiple Meetings

All are opportunities to network/vent/commiserate with your fellow parents unless a speaker is mentioned. All data current at time of writing.

May 1, Skokie 7:00pm
North Suburban ASI Chapter meets at Skokie Village Hall, 5127 W. Oakton in the Lower Level Community Room. This month, from STARnet Region II comes Pat Kluzik Stauch returns to discuss Accessing and Using Resources on Local, State and National Levels. ÊEffective parenting requires good skills as a researcher, communicator, advocate and manager. This meeting's discussion will focus on the kind of information and resources that are available to parents. Ms. Stauch will provide tips on finding and using resources to meet you and your child's needs. A resource packet will be provided. Michael: 847/541-9969 or email [email protected]

May 5?, Chicago, 10:00am
Chicago South Side ASI chapter probably meets at the Hayes Park District Building, 2936 West 85th St. on Saturday from 10 - 1. I could not confirm with Wanda (815/469-5870) but they always meet the first Saturday. You might call her before you go.

May 7, Park Ridge 7:00pm
Join Parent-2-Parent for Special Students will meet at a memberÕs home for an evening of just networking! The Friedenson's have opened their home to us for Monday, May 7th at 7pm- 9pm. Their address is... 9348 Home Circle , Des Plaines, IL. Please contact Eva at 847 699-1223, email: [email protected] if you require directions. We will be back at our regular meeting place in June. Hope to see all of you in May.

May 7, Romeoville 6:30pm
Parent support group meets at R.C. Hill Elementary School, 616 Dalhart Ave. A local attorney will provide info on Financial Planning, Wills and Trusts so we can start planning for our special kidÕs future. Daycare on site for special siblings and younger kids). Miki : 815/886-0080.

May 8, Chicago 6:00pm
The ASI Metropolitan Chicago Chapter meets at the Easter Seal Therapeutic Day School, ITT campus, 3424 S. State St. Last I heard, the group was hoping to have a speaker on nutrition. Grace: 773-233-4716.

May 8, Villa Park 7:00pm
Parent support group meets at DuPage Easter Seals . Limited on-site free kid-kare if you rsvp asap - please call Sharon Pike at 630/620-4433.

May 10, Algonquin, 7:30
Parent support group meets at Northwest Pediatric Therapy, 1320 Chase St. to network and have a post April 20th "conference debriefing". Kim: 847/352-7678.

May 10 & 24, Freeport 6:00pm
Networking For Families will meet May 10 at St. Mary Catholic Church (school building) 825 S. State Ave., where adults will continue their discussion of IEPÕs and 504Õs. Siblings age 8 and up have their separate support group (speaker TBA). Child care is provided for younger kids and kids with special needs. May 24 - each group will enjoy open networking. Nancy: 815/235-7553.

May 12 , Rockford 9:30 - 11:30am
The Northwest Illinois Autism Support Group meets at ChildrenÕs Development Center, 650 N. Main.. Come learn about Stress Management from speaker Wendy Partridge this month. Patty Hobbs: 815/965-6745.

May 14?, Chicago 6:00pm
Parent support group of Illinois Masonic probably meets at The Pediatric Development Center, 3040 N. Wilton, 2nd fl. Kidkare is available IF you RSVP ASAP. Wendy: 773/296-5677. Note I could not reach Wendy to confirm this month's meeting info!

May 14, Peoria 6:30-8:00pm
Parent support group will meet at Faith Missionary Church, 1825 S. Airport Rd. in Bartonville (close to Peoria) . This month Charlotte Cronin from Family Support Network will be on hand to answer questions, etc. Child care provided by the supervised local high school key club. Contact: Lauri Hislope 309-697-3300 or [email protected]

May 15, Bolingbrook 7:00pm
Far West Suburban ASI meets at the Bolingbrook Medical Center to hear from a speaker from the National Reading Diagnostics Institute in Naperville, who will speak on the use of Interactive Metronome Training. The Interactive Metronome Web Site states,"..., initial studies have shown that 15 one-hour sessions on IM bring about statistically significant improvements in motor planning and sequencing capabilities." 630/969-1094.

May 15, Flossmoor, 7:00pm
Chicago South Suburban ASI Chapter meets at Flossmoor Community Church, 2218 Hutchinson. You are in for a treat tonight - Massage Therapy Students will attend, special chairs and all, to provide complimentary back rubs while teaching you about relaxation techniques for parents and kids. IÕm melting away just thinking about a back rub right now! Ahhhh! Marie: 708/206-0379.

May 15, Elmhurst 6:45pm
Parent group meets at Center for Speech and Language Disorders, 195 W. Spangler, suite B. to see a presentation and learn about Kid Kit, which provides a selection of materials tailored to your childÕs needs for use at home. Margie: 630/530-8551, ext. 108

May 15, Gurnee 7:00pm
Come to the Warren Township Center (Southwest Corner of Washington and Almond Rds.) to learn about options for Summer Camps and related activities for kids in Lake County. Representatives from WSRA (Warren Special Rec.), SRACLC (Central Lake County), Henry Horner/Camp Redleaf from Fox Lake, and Little Gym of Gurnee will be on hand. Eric: 847-543-4502.

May 20, Western Springs 3-5 pm
Asperger/High-Functioning Autism Support Group this month will have Jenny Potanos, everyoneÕs favorite SLP, on hand to share some of the best practices she has used in working with children with AS/HFA. Emphasis will be placed on communication and social interaction. Ms. Potanos will also bring some of the toys and activities she has used to motivate all children during social/communication play groups. Please note: This meeting will take place at the Western Springs Village Hall, 740 Hillgrove, in Western Springs. If you are traveling on 290, exit at Wolf Rd. south, drive past Ogden on Wolf to Hillgrove. If you need directions from another location, call Suzanne Coll: 708-246-0493. To cover the costs of this program there will be a charge of $3.00 per person at the door. For info about the group call Debbie: 708/383-1209

May 21, Geneva 7:30pm
Parent support group will meet at Community Therapy Services, 2700 Keslinger Rd. to hear Robert Thurlby discuss legal, insurance, and financial issues you must face in planning for the future of your child. Shelley Swanson:630/208-8880

May 24?, Oak Lawn 7:00pm
Parent support group probably meets at Hope Children Hospital, sw corner 93rd & Kostner. I was unable to reach Amalia at 708/346-1356 to confirm this monthÕs meeting info.

May 29, Schaumburg 7:30pm
Northwest Suburban ASI Chapter meets at the Township of Schaumburg Meeting Hall, 25 Illinois Blvd., in Hoffman Estates. Randee : 847/884-9194.

River Forest
The Illinois Interdisciplinary Council will not meet this month. Yes, they will eventually meet. Jane: 708-771-1918.

Hoffman Estates
NEW GROUP! Parents of daughters with Rett Syndrome invited to attend this support group, which will meet periodically (not this month - there will be a picnic in June) at 1325 Chatsworth Lane. For more info contact Paul at 847/310-8876, email: [email protected]. For more info about Rett Syndrome go to : www.RettIllinois.org

Wheaton
Advocacy 200 probably not meeting this month. Brian: 630/690-6385 or 630/462-1980

Contents



 

Conferences - Workshops

(**** means first time listed here)

NOTE - StarNet workshops give priority to parents living within their region. If there is a workshop you wish to attend but it is not in your region - let your local StarNet folks know (parents living in Region IV could call the Region IV office and yelp "Hey, StarNet II gets Jennifer Rosina - we want her too!").

****May 3, Burr Ridge
Ray Graham Association Family Support Department presents A Family Education Presentation on Thursday, May 3, 2001, at 7:00 p.m. at the Hanson Center, Lower Level, 59W431 59th Street, Burr Ridge, IL 60521. Info on residential options will be presented by Barb Camp, Ray Graham Association Intake Coordinator. Also on hand will be folks from PACT, Inc. and Suburban Access, Inc. to discuss residential options and procedures for residential placement. Please RSVP to Debbi Sponsler at 630-628-5839.

May 11, Oak Park
"Conducting Social Language Groups".
Sally Bligh, MCD, CCC-SLP, originator of social language groups for children with AS/HFA, and Susan Thompson Moore, M.Ed., present this workshop. Subjects to be covered include "What is Asperger Syndrome?", "Developing Academic Strategies and Social Skills", and "How to Set-Up and Conduct Social Language Groups". Short videos will also be shown. Call the Bligh Speech Therapy Center at 708/386-8971 for more info.

May 8, Tinley Park
"If You Do That One More Time: Behavioral Approaches"
David Hingsburger, a consultant who provides direct service to people with developmental disabilities, will help attendees understand motivation for behaviors and develop positive strategies to reinforce desired behaviors. This all-day workshop is sponsored by the ARC of Illinois, so call 708/206-1930 for more information.

May 8, Elk Grove Village
"The Role of Emotions in Development: The Floortime Approach"
Jennifer Rosina will explain Stanley GreenspanÕs five-step process that can be used to support emotional, social, and communicative development in youngsters. This workshop is open to parents living in the region covered by StarNet II, so you folks can call 847/803-3565 for details.

May 15, Villa Park
"What Makes My Child Act This Way? Behavior, Disability or Both?"
Dr. Roger Stefani, pediatric Neuropsychologist, offers the second-half of a free presentation on how behavior is affect by a child's disability - and then gives some solutions to those often difficult situations. RSVP to Sharon Pike at 630/282-2036.

May 15, Tinley Park
"Help Me Understand...Living With Autism"
I am starring this as if it were a new conference since I have two more speakers to add besides Temple Grandin, Ph.D., an adult with autism who will discuss "This is Me." Carol S. Kranowitz, M.A., author of The Out of Sync Child will discuss How to Help the "Whole Person" Develop Necessary Life Skills. And, if you missed hearing him at Lake Forest in January, here is another chance to get an update on findings in the biology and neuro-chemistry of autism and learn about innovative treatment options from pediatric neurologist Michael G. Chez, M.D. This conference is a co-presentation of Blue Cap and The ARC of Illinois. Call 708/206-1930 if you are not already on the ARCÕs mailing list and wish to receive a conference flyer.

May 15, Lake Forest
"An Overview of University of Kansas Learning Strategies"
Sue Meyer, Certified Learning Strategies Trainer, and Chris Fontanetta, Special Education Teacher, Northbrook Junior High will present the above overview from 9:30-11:00am at Lake Forest West, 300 S. Waukegan Road, Room 140. This is sponsored by the NSSED. For more info contact Ginger Reese at (847)831-5100 [email protected]

May 15, Carterville
"A Floortime Approach: Supporting Emotional Development"
Jennifer Rosina will explain Stanley GreenspanÕs five-step process that can be used to support emotional, social, and communicative development in youngsters. This workshop is open to parents living in the region covered by StarNet IV, so you folks can call Gary at 618/397-8930, ext. 171 for details.

May 24- 25, St. Louis, Missouri
"Autism 2001"
Featuring Dr. Lianne Holiday Willey, Elizabeth Gerlach (one of the founders of the original Mothers From Hell!), Carol Gray, Michelle Winner, De Anne Hyatt-Foley, and a High-Functioning Panel. For more information, call 800/489-0727.

****May 31 - June 1, Oakbrook Terrace
"Identification, Assessment and Intervention with Very Young Children (0-5 years) with Communication Disorders: The CSBS Model"
Barry M. Prizant, Ph.D. and Amy M. Wetherby, Ph.D. will explain their CSBS model and the newly developed CSBS Developmental Profile (CSBS-DP) that aims to identify communication disorders in children early in the second year of life. For more info or a workshop brochure contact Childhood Communication Seminars, 4938 Hampden Lane, suite 229, Bethesda, MD 20814, phone 301/656-2190. Or look at www.barryprizant.com
 

May 31, Villa Park
"How Does Your Engine Run?"
Occupational Therapist Laura McElwee will discuss the Alert Program and how it relates to attention, hearing and behavior. This is another free, limited seating offering from DuPage Easter Seals, so call Sharon Pike at 630/620-4433 asap to rsvp!

****June 19, Schaumburg
"An Overview of Sensory Integration from Occupational Therapy to Home and Community"
Colleen Patton, OTR/L & Dawn Zibricky, RN, MS, CSN present an overview of sensory integration designed to help you understand what may be causing varied sensory problems. Strategies to help your child will be emphasized. For more information about this StarNet II workshop call 847/803-3565
(This workshop will be repeated in Tinley Park 7/31.)

****July 10 & 11, Springfield
"Kids: Our Future" is the moniker for this yearÕs Summer Institute sponsored by Project Choices. Ginny Cooke and Bob Farley will discuss "Parents as Partners and A Legal Perspective on ParentÕs Rights"; other speakers will cover topics as diverse as "Successful High School Inclusion: Strategies that Work"; "Differentiated Instruction"; "Forrest Gump and Multiple Intelligences"; Sensory Integration Principles in the Classroom", and many others. For more information contact Project Choices at 630/778-4508, or check their website at:
www.projectchoices.org

July 18 - 22, San Diego, CA
"Millennium of Hope"
ASAÕs National Conference on Autism. Information is available from ASA Conference Registration, 4424 Montgomery Ave., Suite 201, Bethesda, Maryland, hotline number: 1-888-233-2864, e-mail at: [email protected].

****July 31, Tinley Park
"An Overview of Sensory Integration from Occupational Therapy to Home and Community"
Colleen Patton, OTR/L & Dawn Zibricky, RN, MS, CSN present an overview of sensory integration designed to help you understand what may be causing varied sensory problems. Strategies to help your child will be emphasized. For more info about this StarNet VI workshop call 708/385-2199

****August 8, Matteson
"Instructional Formats for Teaching Young Students with Autism Spectrum Disorders"
Steve Goodman, Ph.D. will cover strategies of discrete trial training, incidental teaching, direct instruction and precision teaching along with discussing each strategies implementation, benefits and limitations. For more info about this StarNet VI workshop call 708/385-2199

****September 17, Glen Ellyn
"ABCÕs and 1,2,3Õs of Autism: What is It? Where Do I Start? How Do I Plan?"
Peg Mazeika leads this introductory workshop that explores the basic learning characteristics of children with autism. The use of positive planning and instructional strategies will be emphasized, along with environmental and social supports. This is a StarNet II workshop so pester the good folks at 847/803-3565 for more details.

****September 21, LaGrange
"Supporting and Educating Students with AspergerÕs Syndrome / High Functioning Autism"
Cathy Pratt tackles the problem of "challenging behaviors" and will discuss positive behavior supports and the role of functional assessment in behaviors and strategies for teaching alternative appropriate behaviors. This useful workshop comes from the folks at StarNet II, and they await your call at 847/803-3565 to ask for more information.


CTS Summer Programs (Geneva)

Summer Therapy Musical Camp
- small groups of 4 - 5 kids ages 7 - 14 with complimentary needs make up each dramatic troupe, along with a non-therapy peer. Musical "scripts" are prepared for each child, with his/her goals/needs in mind, by both a speech and a music therapist. Starting the week of June 25, camp runs for seven weeks and culminates in a musical extravaganza for family and friends.
Regular music therapy camps are also available for younger kids.

Super Sibs -
siblings of special needs kids are special too, and have their own unique needs. Super Sibs and Art is a program that combines the usual fun of the sib support group with art therapy (and nice, messy projects I bet!). Super Sibs at the Farm is a collaborative effort between CTS and Blazing Prairie Stars, Inc. of Elburn. Kids and horses - need I say more?

For information about the above please contact Community Therapy Services: 630/208-8880.
 
 

Contents


A Steppers' Night Out

Fundraiser for CycleUSA
May 11, 7pm - 11 pm
Come out and dance the night away -
families welcome!
$10 (children under 18 free)
Hayes Park District
2936 W 85th Street

For more info contact the Chicago Southside Autism Support Group: Wanda B. Satkas at 708/614-4368 or 815-469-5870 (email is [email protected]
 

Contents


Second Annual "Race For Research"


The Michael G. Chez, M.D. Foundation
for Autism and Epilepsy Research
invites you to a Day at the Races

Saturday, June 30, 2001
12:00 noon (1:05 Post Time)
Buffet Lunch and Cocktails

International Room
Arlington Park Racetrack
Arlington Heights, Illinois

$100 per person
Business Casual Attire Required
(no jeans, racing silks or lab coats)
R.S.V.P. by Friday, June 22, 2001

Reservations are limited
to 350 guests.
Enter Racetrack at East Gate
Wilke Road Entrance
Pick up Tickets at Gazebo

To order tickets or for additional information
please call Cathy Williams
at 847/202-6542
 

Contents


CAN Wants Your Child's Artwork


Cure Autism Now will be starting a greeting card program and would like to include your children's artwork. If you are interested in participating, please send artwork to Karen Lippold, Development Associate, Cure Autism Now, 5455 Wilshire Blvd., #715, L.A., CA 90036. Please include your contact information, your child's name and age.

Thanks!
 

Elizabeth Kilpatrick
Director of Development
CURE AUTISM NOW
[email protected]
5455 Wilshire Boulevard, Suite 715
Los Angeles, CA 90036
tel:(323) 549-0500
fax:(323) 549-0547
www.cureautismnow.org
Think CAN would like pictures of skeletons, bladders, brains, hearts and eyeballs? Newsletter mom's son drew an entire anatomical series for me the other day. A change from the usual 30-40 page comic-book style stick-figure drawings of his favorite movie plots!
 
 

Contents



 

Recommended Professional of the Month

(Not only do I know parents who have used Dr. Nowinski, and recommend her highly, but I have had her "take a gander" at one of my kidlets, too, so have first hand knowledge that this lady is good!)

V.L. Scaramella-Nowinski, Psy.D.
Pediatric Neuropsychologist

Dr. Nowinski and her associates offers diagnosis and rehabilitation of autistic spectrum disorders and related developmental disorders.
 

Neuropsychology Diagnostic Center: Autism & Related Disorders
Neurophysiology psychology Program
Century Medical Park
16001 S. 108th Ave., Suite 2
Orland Park, IL 60467
708/403-9000
email: [email protected]


Contents


Summer Camps

Many thanks to all the folks who contributed the following information via the on-line AutismNews list. As promised, I am printing the information here for benefit of the folks not on-line. Thanks esp. to Debbie Mercer for letting me repeat an entire section from her newsletter!

The American Camping Association has a web page with nation wide information on camps for children with and without "special needs". You can search based on disability and location. Here is the addies: http://search.ACAcamps.org/search.html

In Illinois, Easter Seals-Timberpointe, near Bloomington has a residential (week-long) camp. The lowest ratio is 2:1. Your local Easter Seals may offer funding assistance (they all handle it differently.) The cost is @ 425.00. For more info:
Marie Helvie
Business Manager
Phone: (309)-365-8021
Fax: (309)-365-8934
E-mail: [email protected]
 

Many parents on-line had positive comments to make about Joni and Friends Ministry to the disabled and their families, including "I hear their family camps are outstanding -- really life changing and renewing." They have several retreats throughout the country, the closest being two in Indiana (6/25-29, and 7/9-13) and one in Ohio. "The ministry will provide free of charge one on one volunteers for each child with a disability -- the same volunteers for the whole week! It is Christian, so emphasis will probably somewhat evangelistic, but not pushy (from what I've seen so far). " Another parent wrote (edited for brevity/privacy) "The Joni and Friends folks are excellent. I have had representatives from their office speak in the chapel programs where I work, and they are always very professional. There would, as indicated, be a focus on evangelical Christianity, but it would be pretty soft-sell and not oppressive, from what I've observed. They're more concerned with service to their community than they are keeping track, notches-in-the-holster style, of successful proselytizing (which, for my money, is a stronger testimony to the seriousness and validity of their faith anyway). I would recommend them highly. " For more info contact:
 

Joni and Friends
7510 W. Madison St.
Forest Park, IL 60130

Careen Peterson at (708)771-0000
email [email protected]
or
Margaret Matasic at (330)315-5522.
email famret@joniand friends.org
 


This part is straight from Debbie Mercer. If a camp listed is already full or the deadline to apply is past, contact them anyway and ask to be placed on a mailing list for information about next year's camps.

Here are the names of some camps recommended by members of the Asperger Syndrome/high-functioning Autism Support Group.

Camp Determination, sponsored by the Autism Asperger Resource Center in Kansas City, KS, will hold two sessions this summer: June 29-July 1 session is for children with autism/PDD ages 8-18 and has 1-to-1 staff to camper support. The second session will meet July 31-August 3 and is designed for higher functioning children ages 8-18, including those with high-functioning autism and AS. The cost for either session is $650. The camp location is 45 miles west of Kansas City. Registrations for this camp are due on March 23. To receive a packet, call 913-588-5988.

Camp Buckskin, Ely, MN: 218-365-2121

Camp Algonquin, 4151 Camp Bryn Afon Rd., Rhinelander, WI 54501. (I don't
have the phone number.)

Camp Courageous of Iowa, Monticello, Iowa: 319-465-5916; www.campcourageous.org
July 15-20 and July 22-27 are listed as the weeks for children 3-18 with high functioning autism.

Camp Kodiak, 4069 Pheasant Run, Mississauga, Ontario, Canada L5L 2C2, 905-569-7595

Camp Henry Horner in Ingleside, IL Contact Susan Klein at 847-740-5010.
[actually, the Newsletter Mom did call a month ago, but has yet to receive any information : - ( ]

Advocate Lutheran General Children's Hospital has announced the summer 2001 dates for SOAR-Special Outdoor Adaptive Recreation. These are one week overnight camps for children with all special needs, ages 7-19. Camp dates are July 15-21, and July 22-28. The kids stay in cabins at Hoover Outdoor Education Center in Yorkville. The counselor to camper ratio is one-to-one. For more information or an application, please contact Ingrid Thompson at 847-723-9444.
 

(For now, the Newsletter Mom's 9-year-old kidlet is content to camp in our backyard with Dad and siblings (someone has to stay indoors and keep the cats company!) or as a tag-a-long to his fraternal twin brothers Cub Scouts campouts. But I suspect we will be looking to send Joe off to a "real" camp of his own in a year or two. I do not think he could go this year without wondering if we were abandoning him! )
 

Contents



 

IEPs, IDEA, SPED LAW etc.


The U.S. Department of Education has a new guide available to help parents, teachers and schools develop IEPs that comply with IDEA by explaining the federal law and its regulations; also how to distinguish between IEP requirements under federal law and additional requirements established under state or local policies and procedures. The 35-page guide is free by calling 877-4-ED-PUBS or by going to www.ed.gov/pubs/edpubs.html

Here are some more excellent resources:
 

Family Resource Center on Disabilities

20 E. Jackson Blvd, #900
Chicago, IL 60604 312/939-3513
The FRCD publishes a newsletter on disability rights and benefits and provides up-to-date information on SSI (Social Security Income - some of you may find your children qualify as autism is a covered disability.), Medicaid, IDEA (Individuals with Disabilities Education Act), etc. They have lots of information on your childÕs education rights, how to deal with your local school and write an appropriate Individual Education Plan (IEP) and much, much more (the good folk at FRCD keep their eye on the antics in Springfield!).
 

Wrightslaw: Special Education Law

Peter W.D.Wright & Pamela Darr Wright
Harbor House Law Publications, 1999
P.O. Box 480, Hartfield, Virginia 23071
tollfree 877-529-4332

This $29.95 tome contains not only the full text of IDEA 1997 (as finally issued in spring 1999) AND Section 504 of the Rehabilitation Act AND the Family Educational Records and Privacy Act AND text of key U.S. Supreme Court Decisions extremely pertinent to parents of special education students. Also valuable are the Wright's own analysis and interpretation of all of the above (in marked typeface throughout) - drawing our attention to and explaining to us non-lawyer parents exactly what the law says about, for example, our participation in an IEP meeting, or whether our schools must measure progress towards IEP goals with objective tests rather than "teacher observation". What a useful tool this book could be - imagine having the complete text of IDEA at hand to refer to during an IEP. No more taking the school folks' word for it that you can or can not request something or write something in the IEP.
(Note - the Wrights are preparing another work aimed at helping us parents become our child's best advocate. Once completed, I will certainly review their new book and fill you in on all the details!)
***** Whether you purchase the above book or not, if you are on the internet do subscribe to the Wright's free electronic newsletter, The Special Ed Advocate, which you can learn more about in their most useful website: http://www.wrightslaw.com/
 
 

more.........

**Better IEPs - How to Develop Legally Correct and Educationally Useful Programs**

3rd e.Barbara D. Bateman, Ph.D., J.D.
Mary Anne Linden, M.S., J.D.
ISBN # 1-57035-164-3
Sopris West Publisher , www.sopriswest.com
303-651-2829

From Amazon.com website:
"This is the definitive guide to understanding and writing Individualized Education Programs (IEPs). It presents a powerful, three-step process that focuses on the individual student and avoids the all too common routinized approach to program development. "
 

From JFS (moi):
This book, along with the Wrightslaw tome which has the full text of IDEA, etc (Bateman's book does not), is one of the few works I have actually purchased for my home library, since I believe I will find it extremely useful as an aide in preparing for, and surviving, all the IEP meetings lurking in my child's future. Any author can write about the need to make goals objectively measurable, etc, but in this book Bateman and Linden provide actual samples from real IEPÕs that make absolutely clear both what typically gets written as a goal with teacher-observed "%" benchmarks, and what can and should be written to provide not only a clear-cut goal and objectively measurable benchmarks but also the practical "hows" of fulfilling that goal. Invaluable resource! If you have to chose between the Wrightslaw book and this book buy this one and make your library purchase Wrightslaw so you can check it out as needed!

Useful Website


Another mom on another list sent the info about this website. It has around 15-20 printable newsletters dealing with all kinds of different subjects. Each newsletter is 16 pages. Some of the topics include:
 


http://www.teleport.com/~dsolns/news.htm
 

(and don't forget - you can find this newsletter, prior newsletters, and my slapped-together "new parent packet" which I will never have time to organize any better than it is now, at another useful (well, I like to think so) website: www.autismnews.net feel free to link to it, copy from it, etc.
Contents



 

FathersMothers From Hell 2


Get your Father's Day shopping done early - The Mothers From Hell2 have cool Father From Hell2 baseball caps (tan with logo,$10) and t-shirts ($20, cream with logo, L, XL, XXL, XXXL) available in addition to our vast array of Motherly merchandise. See the last page of the Brimstone* for more info on merchandise and tiny weeny pictures of our stuff; we also offer these goodies through our website:

www.mothersfromhell2.org
 

Mothers From Hell 2
P.O. Box 19
German Valley, IL 61039
815-362-5303
*What, you don't get the Brimstone Bulletin? But I am editing the Summer 2001 issue even as you read this! Send your $10 (check made out to Mothers From Hell2) to join us (or renew) - today! We have "Whose IEP is it?" pins for sale, too, - great to wear to IEP meetings!



 

Cooking Healthy Gluten and Casein-Free Food for Children

This is information straight from Betsy Prohaska. Contact her for more information or to purchase this useful video/booklet set.

It's done! Finally! The two hour video and 40 page booklet is now available to buy. The video is like watching a cooking show using GFCF foods that are high in protein or high in vegetables and all with little to no sugar. It's fun and light viewing. The booklet includes a meal planner, recipes from the video and a great resource section created by Mary Kramer. It's titled: Cooking Healthy Gluten and Casein-Free Food for Children. Possibly not the snappiest title but it tells it like it is. It will sell for $27.95 +tax in book stores, but I will sell it to members of this group for $26 including tax and shipping.

To order send check or money order to:

Betsy Prohaska
Prohaska Productions, Inc.
434 Starwood Pass
Lake in the Hills, IL 60156
or call: 847-854-6601 for more info.
Credit card charges are also acceptable.
 

Contents


more info snitched from Debbie Mercer... I went to the website listed below and there are examples of how to write social stories, articles - lots of useful stuff!
 

The Gray Center for Social Learning and Understanding

"Carol Gray, creator of "Social Stories" and "Comic Strip Conversations" for children with autism, has established The Gray Center for Social Learning and Understanding, in Jenison, Michigan. Visit their website, www.TheGrayCenter.org, to find out about the Center's mission, programs, and to read about the Gray Center's first conference on October 16-17 in Grand Rapids, MI. Speakers will include Carol Gray, Temple Grandin, Liane Willey, Tony Attwood, and Diane Twachtman-Cullen. If you don't have internet access, call the Center at 616/667-2396 for information"
 

The Morning News


Is a quarterly that contains useful articles each issue that can be used to help more advanced children with autism/Asperger's correctly interpret, and appropriately use social language. The Morning News is an excellent publication, largely written by Carol Gray, creator of Social Stories. To subscribe send $18 for four big quarterly issues to: The Morning News, Jenison Public Schools, 2140 Bauer Rd., Jenison, MI 49428. Or - just write and ask for a list of all Gray's publications on Social Stories (including several useful books.)
 

Contents



 

Lock Laces


(info taken from the special needs homeschooling newsletter At our Own Pace)

Lock laces are elastic shoe laces with a spring loaded locking device which makes it possible to wear regulation athletic shoes without having to tie them. Since the laces are made of the same kind of elastic as bungee cords, they are very sturdy and assure a snug but not tight fit, allowing good support without unnecessary restriction.....They are used by people who for any number of reasons find tying their shoelaces difficult or painful. in other words, these are not in any way babyish. They only are available in black and white, and are only recommended by the manufacturer for people over the age of five.

To use them, the shoes must first be laced with the laces, and then they are tightened to the point of comfort and optimal support, then knotted through the spring loaded locking mechanism. And that's it! The shoes are tied like that indefinitely, until someone decides to retie them.

The cost for each pair of laces is around five dollars plus postage and handling. They can also be purchased in bulk and used as fundraisers.

You can buy then on the Internet at www.locklaces.com or you may write to:
 

Street Smart, LLC
105 Sunset Drive
Glen Burnie, Maryland 21060
410/590-7676
[email protected]
 
 

Contents

Hosted by www.Geocities.ws

1