Autism News
Volume 6 Issue 6

Letter from the editor:
Thank you to everyone who has helped contribute information to me. It has been a tremendous help. Please send all comments, criticisms, renewals, etc. to:

Autism News
PO Box 1255
Crystal Lake, IL 60039-1255
Email address is [email protected]

Also remember to make your checks out to Autism News for $15 now. ***Starting in July the newsletter will be $17.50 a year thanks to Uncle Sam raising the price of stamps***

Don't hesitate to send me stuff, I love to read it all and do appreciate everything that is sent to me.

Happy Reading,

Amy

All contents are copyright 2002 by the Newsletter mom.
Total freedom is granted to recopy and share information as long as Autism News gets credit.

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Contents:

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Meetings

Galena Parent Advocates

Saturday June 8, 2002
DeSoto House Hotel
230 S. Main St
General Smith Room
10:00AM-1:00PM


Topic: IDEA for Spanish Speaking Parents
We have invited a representative from the National Center for Latinos with Disabilities to inform parents, students, etc of their rights under State and Federal Laws.
Target audience: Spanish speaking parents, teachers, paraprofessionals, related service providers, administrators.
Please contact us for a registration form (registration required).
 

AIT

June 10-14 & June 17-21 Downers Grove
July 8-12; July 15-19 Dyer Indiana
Auditory Training & Education Center
Sharon K. Hurst, M.S.
17220 Ashdale Court
Granger, Indiana 46530
(574) 272-2795 or (888) 248-0990
e-mail: [email protected]
****Call now to schedule times******

These are the dates for the Northeast Illinois Chapter of the Autism Society of America meetings from June thru August.

We will be meeting at local restaurants to be determined each month. Call Eric L. Smith 847-543-4502 as the meeting dates approach for location information.
 

FAR WEST SUBURBAN: Monthly Chapter Meeting (6/18/2002 7:00:00 PM)

We will have a Janet Alonso the intake coordinator from Therapeutic InterActions. She will speak to us about the programsand services their agency provides. They are located in LaGrange. They provide Occupational Therapy, Physical Therapy, Speech and language Therapy and Psychological Service as well as family support.Community Room of Bolingbrook Medical Center / (630) 969-9131 - Joanna Roman - [email protected]

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Conferences-Workshops

NOTE-StarNet workshops give priority to parents within their region. If there is a workshop you wish to attend but it is not in your region-let your local StarNet folks know you'd like them to replicate it in YOUR region. StarNet folks are waiting to hear from YOU. Don't make them guess what you want or need to learn about.

June 4 Rockford 8:30-4
 

Taking Charge: Responding to Abuse, Neglect, and Financial Exploitation for Persons with Disabilities

Too often people with disabilities are not given the knowledge to protect themselves from abuse, neglect and financial exploitation. This one day workshop is designed to empower individuals to increase awareness of the relationship between disability and abuse, resources available to prevent abuse, and pro-active strategies that encourage self-empowerment and self-advocacy Topics include Disability and Maltreatment, Your safety your rights, recognizing maltreatment, external and internal barriers to action, taking charge, understanding the system, and self-advocacy and empowerment. The cost is $80 for professionals and $40 for parents and students. There is a $10 fee for registering after 10 days before the conference.
Rockford location is Ramada Suites and Rockford Conference Center 200 South Bell School Road 815-226-2100. For more info on the conference contact 312-413-1535 or fax at 312-413-1620
 

Six-week special art therapy socialization group for children with Asperger's Syndrome and PDD.

Starting Thursday June 13th 9-10:30 a.m. or Thursday July 11th 7-8:30 p.m. for children up to 8th grade. This is with Wendy Lauter A.T.R. LCPC and Alison Bailey MA at 120 N. Oak Park Avenue Suite 206 Oak Park.Call Wendy at 708-848-4333 for more information. The cost is $270, which is $45 a session, and art materials fee is included.
 
 

2002 Autism Seminars for staff and families

June 14, 2002
 Normal West Community High School
501 North Parkside Road
 Normal, Illinois
 Guest Speaker: Dr. Patrick A. Schwarz
Sponsored by Family T.I.E.S. Network
To register please contact:
Linda Davis, Family T.I.E.S. Network 1-800-865-7842 or [email protected]
 

"Collaboration in Action"


How Families and Schools can collaborate to improve education
 June 15, 2002

 Holiday Inn
222 Potomac Blvd.
 Mt. Vernon, Illinois
 Guest Speaker: Dr. Patrick A. Schwarz
 Sponsored by Family T.I.E.S. Network
 To register please contact:

Linda Davis, Family T.I.E.S. Network 1-800-865-7842 or [email protected]
 

Autism Seminars for Staff & Families

(6/17/2002 9:00:00 AM) Presented by Barbara T. Doyle M.S. Clinical Consultant. A two day seminar intended for direct service providers, supervisors and managers, educators and therapists, parents, persons with disabilities, family members, and college students. You will learn about: People of all ages with ASD including autism, PDD, Asperger Syndrome, and related disorders.
Presented by Barbara T. Doyle M.S. Clinical Consultant. A two day seminar intended for direct service providers, supervisors and managers, educators and therapists, parents, persons with disabilities, family members, and college students. You will learn about: People of all ages with ASD including autism, PDD, Asperger Syndrome, and related disorders. Diagnostic features and learning characteristics. Designing individualized programs focusing on strengths and interests. Effective teaching strategies. Using social stories and other social skills teaching ideas. Improving communication. Addressing sensory issues. Addressing problematic behavior. Prioritizing goals for success across the lifetime. Lifetime planning. How to work more effectively as a team. Family issues and supports. Personal interaction styles that support learning and relationship. Strategies to improve working together as a team. CPDU's will be available for teachers at no charge. Five CEU's per day will be available for other types of professionals for an additional $10.00 fee. The cost is $95.00 per day for professionals, Nonprofessionals will be charged $40.00 per day. Agencies sending six or more employees are entitled to a 10% discount. To get a registration form, call 217 356-8323. Illinois Beach Resort / Zion, Il (217) 356-8323 - C.J. Sizemore - [email protected]

I got this off of an email so you may want to email her or try 847 area code. I have heard Barbara speak and she is very informative and speaks a little from experience, she has a relative with autism.

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Asperger Syndrome Support & Awareness of Central IL.

Welcomes Barbara T. Doyle, M.S. Clinical Consultant-
 June 18, 2002, from 6:45-8:15 p.m. at the Springfield Lincoln Library

"10 Tips for a Successful Life".


This topic is focused towards Asperger Syndrome and related disorders. Everyone’s welcome. $7.00 donation at the door.

Wednesday, July 10-11, 2002
Project CHOICES Summer Institute
 Crowne Plaza Hotel
 Springfield, Illinois
**For more information contact PROJECT CHOICES 630-778-4508

For a schedule go to www.projectchoices.org/Program2002.pdf

It' s F r e e



Asperger Syndrome Support and Awareness of Central Illinois

Welcomes Dr. Karen Kirkendall,

Associate professor in the psychology department at the University of Illinois, in Springfield, a counselor for asperger syndrome children and a board
Member for our support group will be at our meeting to answer questions.

Thursday-July 11th
At the Koke Mill First United Methodist Church at 7 p.m.
We are hoping for a big turn out!
 


"IEP's …Don’t you be the weakest link!"

 July 17-21 Indianapolis IN

2002 ASA Conference

2002 Conference theme: "Champions and Challenges"
Where: Marriott Hotel in Indianapolis, Indiana
Why: To hold a national forum for the presentation of important field studies, intense educational sessions, structured networking opportunities, information exchanges, and interaction between individuals interested in the well being of children and adults with autism.

For registration information, please email us at:

[email protected].

Monday, July 28 - 2nd Annual Golf Outing at Arrowhead Golf Course, Chillicothe - details to follow. Questions or commentss call Renee Killion at 309-692-1433

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I would like to invite the Asperger's Support Group to attend the August 4, 2002 Celiac and R.O.C.K. Support Groups' Meeting at St. John's Hospital, CJV Building, 4th Floor, Conference Room C/D, 1:30pm-4:00pm - guest speakers will be: Dr. John Hicks and Betsy Prohoska, from Grayslake, IL.
Dr. Hicks is a Pediatrician who has worked extensively with developmentally delayed individuals for the past 12 yrs. His primary focus is functional medicine. Betsy Prohaska is a diet counselor who works with Dr. Hicks. She has released two videos on the subject of dietary interventions (gluten free/casein free diets). Betsy has an autistic son and 2 daughters with ADD. There will be a small intermission between Dr. Hicks' and Betsy's presentations. There is no charge for attending the meeting - however we do ask people to bring a gluten free and/or gluten free/casein free dish (plus a copy of the recipe), or bring a gf/cf product (such as pretzels, cookies, chips, etc), or donate $3.00 at the door if they prefer not to bring anything.
If you have questions, contact Joyce via email [email protected].

August 6, 2002
 6:45 – 8:30
 Springfield Lincoln Library
 Capitol and 7th Street
 Springfield, Illinois
 Guest Speaker: Chris Wasik, Family T.I.E.S.

 Sponsored by Family T.I.E.S. Network and Asperger’s Syndrome Support and Awareness of Central Illinois
 To register please contact:
 Linda Davis, Family T.I.E.S., 1-800-865-7842 or email [email protected]
 Diana Noble, 217-585-7276



Lincoln Way Special Education Office is again replicating the training offered through the Illinois Autism Training and Technical Assistance Project. This 10 Day Training is open to Educational Teams and MUST include a parent to receive the FREE training.

The dates are as follows: August 6, 7, 8, 14 and 15 October 2 and 3 November 19 and 20
 Parents: Let your school staff know about this and organize a team ASAP.
 Call Amy Gatch at 815-485-6969 or Kathy Gould at 708-354-5730

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NIA To Present "A Series of Topics on Autism"

 

 
August 14-15, 2002 Functional Analysis and Positive Programming with Victor Morris
September 25, 2002 Asperger Syndrome with Barbara Doyle
October 2, 2002 Communication with Jenny Potanos and Nan Negri
October 23, 2002 Sensory Processing with Sheila Frick
November 21, 2002 Strategies for Success with Peg Mazeika
December 3, 2002 Teaching Social Skills with Peg Mazeika

Visit the NIA website at www.thenia.org for final dates and registration information.
These workshops sold out quickly when presented last year. Please register early to ensure participation. Workshops are suited for parents, teachers, related service providers, paraprofessionals, etc. If you are the parent of a child with autism, you MUST attend these seminars and if at all possible, encourage your school district to sponsor you AND your child's educational team!!!

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General Meeting for Coalition for Curing Autism for Research and Education.
Tuesday May 22--7:00p.m.  Location:VIP of Bourbon Street (115th/Kedzie)
Discussions on setting up Resource/Training Autism Centers throughout the state of Illinois, The Race for Autism and future Public
Awareness Event/fundraisers, goals and objectives for the Coalition.
RSVP to Mary Higinbotham 708-798-0923

Lincoln Mall, Bally Total Fitness and HMH & Associates have are all sign on as Silver Sponsors for the I-Run/Walk 5k for Autism.
Silver Sponsors are sponsors who have donated funds or in-kind gifts worth $1,000-$2,000.

Click here for a copy of the flyer.

A big thank-you to Lincoln Mall who has donated $1,000 worth of gift certificates to be awarded at the award ceremony.
Attached is the race information for this year.   Please feel free to pass it on to family, friends, or business members of the community.

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Galena Parent Advocates will sponsor its first annual golf outing


August 15th 2002 at:

 "The General"
 Eagle Ridge Inn and Resort-Galena
 1:00PM Shotgun Start
 18 Holes of Golf, Cart, Box Lunch, Dinner, Raffles, Prizes, Hole in One Event and more!!!!!!
Watch the newsletter for more information as we approach summer!!

August 19 Vernon Hills White Deer Run Golf Club



-Charity golf outing to benefit the BHARE Foundation (promoting autism awareness, research, and education).
-Hosted by: David & Donna Rosuck and Kids Therapy, Ltd.
-11-1 (lunch); 1:00 shotgun start; 6-8 buffet dinner and reception & silent auction
-4 person scramble, prizes, lunch and beverages, beat the pro, $10,000 hole-in-one, unlimited range balls, unlimited beverages (open bar), buffet dinner, silent auction
-costs: golf and reception $175; reception only $50
-Questions call Sarah Kozak at 847-573-9486 ext.12 or you may email [email protected]
 

2002 Autism Seminars for staff and families
by Barbara T. Doyle, M.S. Clinical Consultant, (217-793-9347)

August 20 and 21, 2002
Quad Cities, Illinois Continuing Education Units (and CPDUs) will be available.
For more information contact: C.J. Sizemore (217) 356-8323

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"Conflict Resolution"

 Saturday, October 12, 2002
 PACE Center for Independent Living
 Urbana, Illinois

Sponsored by: Family T.I.E.S. Network and PACE

To register please contact:
 Linda Davis, Family T.I.E.S. 1-800-865-7842 or email [email protected]
 **More information will be added at a later date.

October 14 - 15, 2002 Kansas City, Missouri

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Asperger's Syndrome with Dr. Tony Attwood

This conference will cover two days. Day One will include the topics: Encouraging Friendship Skills and Managing Emotions. Day Two will include discussion of Asperger's Syndrome in the Adolescent Years and a question and answer forum.

The conference registration fee includes all materials and handouts, continental breakfast, lunch and afternoon refreshments. Participants can either register for either day or both days. Early registration fees will be $175 for BOTH days and $125 for ONE day. For Groups of 4 or more, please contact BusyWeb Solutions, Inc. for information on discounted fees.

Registration received after September 1, 2002 will be $215 for BOTH days and $165 for ONE day.

Fees can be paid by check, credit card, money order or purchase order. Please contact BusyWeb Solutions by phone 618-397-2131 or e-mail to receive a registration form. A printable registration form is also available at www.tonyattwood.com

October 25-27 San Diego

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DAN Conference


Email: [email protected]
Speakers: Sidney Baker, M.D. * Jayne Barese, R.N. * Mark Blaxill, MBA * Kenneth Bock, M.D. * Jeff Bradstreet, M.D. * Timothy Buie, M.D., Ph.D. * Jane El-Dahr, M.D. * Barbara Loe Fisher * Sudhir Gupta, M.D., Ph.D. * Paul Hardy, M.D. * Walter Herlihy, Ph.D. * Woody McGinnis, M.D. * Jon Pangborn, Ph.D. * Karl Reichelt, M.D., Ph.D. * Bernard Rimland, Ph.D. * Karyn Seroussi * Paul Shattock, Ph.D. * Andrew Stoll, M.D. * Andrew Wakefield, M.D. * Rosemary Waring, Ph.D. * Carol Wester, MSN, CSN *

Topics: Neuro-toxic effects of and successful treatments for elevated mercury and other heavy metals

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Announcements:


Refrigerator Mothers will broadcast on national public television July 16 at 10 PM EST. That would be on WTTW in the Chicago area, but you will need to check local listings for exact time and date (sometimes stations change their local air dates) in your area.
There will be a big screen premiere at the Gene Siskel Film Center downtown Chicago on July 13 at 8 PM. Tickets can be purchased in advance through Ticketmaster, and it is recommended that you do so as there is only one screening and it is expected to sell out. At least three of the seven mothers in the film will be at that premiere. The film can be purchased for educational use at www.fanlight.com, or you can call them at 617-469-4999 to get a special deep discount price if you are a parent of a person with autism.(editor's note…I will try to get the exact time and date for Chicago in time for the July newsletter)

To all those who think their child's autism is a result of vaccinations, please take the time to contact your Congressman and urge him to support of
The National Vaccine Injury Compensation Program Improvement Act of 2002.
To read the Bill Summary & Status, go to Thomas, Legislative Information
on the Internet http://www.thomas.loc.gov/
Enter hr3741 in the Bill Number Search, select Link to the Bill Summary & Status File, and finally select the All Bill Summary & Status Info
To find out who your Federal Representatives are, go to http://www.congress.org/
You can enter your Zip code, which will give you the name of your congressman, and senators.
If I can be of help to anyone who is interested in contacting their representatives but are having a problem doing so, please do not hesitate to contact me mailto:[email protected]
Please, please, take the time to do this if you believe vaccines are, at least in part, the cause of the rapid rise in autism.
 

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 In honor of Father's Day:

 *DADDY'S TEN RULES OF DATING*
 Rule One: If you pull into my driveway and honk you'd better be delivering a package, because you're sure not picking anything up.
 Rule Two: You do not touch my daughter in front of me. You may glance at her, so long as you do not peer at anything below her neck. If you cannot keep your eyes or hands off of my daughter's body, I will remove them.
 Rule Three: I am aware that it is considered fashionable for boys of your age to wear their trousers so loosely that they appear to be falling off their hips. Please don't take this as an insult, but you and all of your friends are complete idiots. Still, I want to be fair and open minded about this issue, so I propose this compromise: You may come to the door with your underwear showing and your pants ten sizes to big, and I will not object. However, in order to ensure that your clothes do not, in fact come off during the course of you date with my daughter, I will take my electric nail gun and fasten your trousers securely in place to your waist.
 Rule Four: I'm sure you've been told that in today's world, sex without utilizing a "Barrier method" of some kind can kill you. Let me elaborate, when it comes to sex, I am the barrier, and I will kill you.
 Rule Five: It is usually understood that in order for us to get to know each other, we should talk about sports, politics, and other issues of the day. Please do not do this. The only information I require from you is an indication of when you expect to have my daughter safely back at my house, and the only word I need from you on this subject is: "early"
 Rule Six: I have no doubt you are a popular fellow, with many opportunities to date other girls. This is fine with me as long as it is okay with my daughter. Otherwise, once you have gone out with my little girl, you will continue to date no one but her until she is finished with you. If you make her cry, I will make you cry.
 Rule Seven: As you stand in my front hallway, waiting for my daughter to appear, and more than an hour goes by, do not sigh and fidget. If you want to be on time for the movie, you should not be dating.   My daughter is putting on her makeup, a process than can take longer than painting the Golden Gate Bridge. Instead of just standing there, why don't you do something useful, like changing the oil in my car?
 Rule Eight: The following places are not appropriate for a date with my daughter: Places where there are beds, sofas, or anything softer than a wooden stool. Places where there is darkness. Places where there is dancing, holding hands, or happiness. Places where the ambient temperature is warm enough to introduce my daughter to wear shorts, tank tops, midriff T-shirts, or anything other than overalls, a sweater, and a goose down parka -- zipped up to her throat. Movies with a strong romantic or sexual theme are to be avoided; movies which features chain saws are okay. Hockey games are okay. Old folks homes are better.
 Rule Nine: Do not lie to me. I may appear to be a potbellied, balding, middle-aged, dimwitted has-been. But on issues relating to my daughter, I am the all-knowing, merciless God of your universe. If I ask you where you are going and with whom, you have one chance to tell me the truth, the whole truth and nothing but the truth. I have a shotgun, a shovel, and five acres behind the house. Do not trifle with me.
 Rule Ten: Be afraid. Be very afraid. It takes very little for me to mistake the sound of your car in the driveway for a chopper coming in over a rice paddy near Hanoi. When my Agent Orange starts acting up, the voices in my head frequently tell me to clean the guns as I wait for you to bring my daughter home. As soon as you pull into the driveways you should exit the car with both hands in plain sight. Speak the perimeter password, announce in a clear voice that you have brought my daughter home safely and early, then return to your car -- there is no need for you to come inside. The camouflaged face at the window is mine.
 

I got that from another list so I apologize to all the dads out there without daughters. Sons are just as good.

Autism News Survey

The newsletter is going to be making some changes as to the content and make it more reader driven. Please take a few minutes and fill out this survey and mail it back to Autism News, PO Box 1255, Crystal Lake, IL 60039-1255.  You may also copy this section and paste it into an email  back to me at [email protected]. I do appreciate the time you are taking out of your lives to do this so I can make this newsletter better.
1. What do you like to see in the newsletter?
a. meeting info.
b. conferences
c. the news
d. other (please explain)  ___________________________________
2. What don't you like about the newsletter?
a. not enough meeting info
b. not enough conference info
c. too many fluff pieces
d. other(please explain)_____________________________________
3. For the announcement/news section what would you like to see?
a. legal updates
b. medical updates
c. education updates
d. personal stories
e. letters to the editor
f. other (please explain)____________________________________
4. How many pages would you like to see the newsletter?
a. 1-4
b. 5-8
c. 8+
5. Additional comments/criticisms/suggestions ______
 
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