~My Life With Crohn's Disease~
The Story Continues...
-Page Four-
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Several things have taken place during this past year. In September of 2001, I took advantage of an opportunity I had to go back to school. I took courses to strengthen my knowledge and skills in medical transcription. I had been suffering on and off throughout the year with some pain and discomfort in my body that didn't appear to be related to Crohn disease in any way. It started out as being only occasional episodes, but became progressively worse. Finally, I had no choice but to get myself to a doctor. After I explained the symptoms to my doctor, he quickly informed me (without any tests or further investigation) that he believed I was suffering from acid reflux. I was given a handful of heartburn medicine samples, a 'pat on the back' and sent on my way. I tried to explain to him that I did not feel that reflux was causing my problems, but he wouldn't listen to any of it. He only told me to make an appointment to come back to see him if the medication didn't work. It typically can take up to 3 months to get an appointment to be seen, so that wasn't cool. Needless to say, my symptoms didn't get any better. Actually, they got much worse. I called and made another appointment during the same week, and they were able to schedule me another appointment for 4 weeks from the time I called. Unfortunately, I didn't make it to my appointment because I was admitted to the emergency room with the diagnosis of 'possible bowel obstruction'. At that time, I had been having the same problems as I was having throughout the year, only it had become much more frequent and intense. I was experiencing an intense and dull crushing pain under my breastbone and through my back. I wasn't able to eat anything without creating more discomfort and pain. I also was having difficulty going to the bathroom and my abdomen was EXTREMELY bloated and tender. While I was in the ER, they gave me a CAT scan. Drinking all of that liquid caused me such excruciating pain under my ribs, that it was necessary for the nurses to quickly give me an IV with a shot of demorrhal to get me to stop screaming. I have given birth to two children, and I can honestly say that I NEVER hurt like that! I think I would've gladly passed out if I hadn't gotten that pain shot. Afterwards, I ended up throwing up ALL of the contrast they gave me. During my three day hospital visit for observation, I saw my GI doctor (the one who had given me samples and sent me on my way). He asked me what I wanted him to do. I told him that I would like to have ALL of the tests done while I was there in order to find out what was wrong with me, but he said, "no". He performed an pan-endoscopy (scope down the throat), but that was it. He told me that he would not do any other tests until after I got out of the hospital. I was released to go home and left to figure out what to do for myself. I then began a desperate search to find myself a new doctor. It was a long, frustrating, and time-consuming ordeal, but I finally did find a doctor who was willing to help me find out what was wrong and get to the bottom of the situation once and for all. I had noticed a lump in my abdominal area for a long time. I recall it being there ever since I had my last surgery in 1996. I had always thought it was merely internal scar tissue that had caused a thickened area. Early in 2001, and over a 12-month period of time, the 'lump' began to grow noticeably larger. In 1999, the then small mass had been seen on an upper GI/small bowel follow through series I had done. It was observed as being a "filling defect" or bolus of bezoar trapped between two strictures. However, my doctor acted like it was no big deal. He said it was probably just a bit of undigested food and never did any more tests or follow up on it. Eventually, the 'mass' had grown so large that when I would lie on my back, it could sometimes be seen sticking up and bulging from my belly. Sometimes it would move by itself, and I could also push it around and move it myself. It almost felt like when I was pregnant--the way it would move up under my skin like that. I have to admit, it was pretty freaky. I used to call it 'my baby', but that was only because it was my way of making a 'joke' out of something that really disturbed me. When I made mention of the abdominal mass to the ER doctors, they were simply amazed! I can't believe they were just realizing now what I had known and tried to get them to notice for several years. I had many doctors from the hospital stopping by my room to 'feel the mystery lump'. You see, this thing sometimes hid. It was very mobile and moveable. It could remain hidden under a rib or become obvious by surfacing to the top of my belly on one side or the other. I had a lot of tenderness in the area where this 'mass' was and noticed it moving more at the times when I would experience one of my 'episodes' of pain and distress. After my third visit to the ER, I was FINALLY admitted to the hospital for "emergency surgery". I say "emergency", but actually they did make me wait a day because another person had presented to the ER on the same evening with a gunshot wound to the abdomen. That took priority over my situation. I spent 2 weeks in the hospital, and as an added bonus, on my BIRTHDAY, the incision wound decided to BURST open and pour a generous amount of bloody/pustular discharge all over. I thought my insides had burst and were coming out! It almost threw me into a literal state of SHOCK! My surgeon then had to REOPEN the incision IN my hospital bed--WITHOUT any pain medication or anesthesia! That left me with a 4-inch wide, gaping hole in my abdomen that took over six weeks to "heal". I had to have my bandages and dressings changed twice a day in a very sterile procedure.
I'm not sure what tomorrow holds, or even if I will have a tomorrow. I only know that the One who holds tomorrow, holds me. And that is ALL that matters. I'm His, and I'm going to praise Him and tell others about all of the wonderful things He's done in my life every day that I'm allowed to live. He has given me so much HOPE! I only want to share this hope I have with anyone and everyone who will listen. God doesn't play 'favorites'. What He's done for me, He'll do for anyone.
To learn more about inviting Jesus into your life and getting to know Him and understand To read my personal testimony click here! April 15, 2003
Tami Brunner © |